ME/ CFS South Australia Inc

07/05/2026

The University of the Sunshine Coast are holding a roundtable event on International ME/CFS Awareness Day 2026, Tuesday May 12.

"Shaping the future of Long COVID and ME/CFS research: Lived experience perspectives."

Link for more information and to register here: [https://bit.ly/4nbSIsp]

12 MAY 2026 - We warmly encourage you to be part of an upcoming online conversation conducted by the University of the Sunshine Coast: Shaping the future of Long COVID and ME/CFS research: Lived experience perspectives.

This roundtable is about listening. It’s a space to share your experiences, perspectives, and priorities - and to help guide the future of research into Long COVID and ME/CFS.

Please note that discussions will be recorded to help capture lived experience perspectives and guide future research directions.

👉 Register here: https://bit.ly/4nbSIsp

Please note that tickets for this event are limited. Your perspective is greatly valued.

07/05/2026

Light up the Night!

Keep your eyes open for buildings lighting up blue for ME/CFS including Adelaide Oval and Riverbank Footbridge; Unley Town Hall; Parliament House SA; Adelaide Town Hall; Adelaide Festival Centre and the Uni SA Bradley Building.

We also have a sign on the SAPN Billboard on the corner of Greenhill Road and Anzac Highway.

If you have a connection to a building in SA that could light up on 12 May in future years, please let us know via [email protected].

https://mecfssa.org.au/event/lightupthenight-2026

07/05/2026

May is International ME/CFS Awareness month, with May 12th being our International Awarenss Day.

ME/CFS SA members can join our weekly social zoom on 14th May. We will be celebrating with a Blue Sunday cuppa for M.E. (2.30pm – 4pm)
Head to the Member Resource Login and then to the “Upcoming events: links”

Thank you to those who will hold a 'Blue Sunday' morning or afternoon tea during May to raise awareness and funds to support those with ME.
Anyone can invite their own family and friends to have a Blue Sunday cuppa for M.E. to raise funds for our important work.

https://mecfssa.org.au/event/may-awareness-2026-zoom-2

16/04/2026

ME/CFS Australia is inviting proposals for postgraduate top-up scholarships, consumable grants, and/or travel grants.

All eligibility criteria, guidelines, and how-to-apply information can be found on our website: https://mecfs.org.au/postgrad
Due date: 15 May 2026

11/04/2026

Researchers at Deakin University are investigating if a potential new treatment is effective in treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This study will assess the effectiveness of the medication in a high-quality, clinical trial.

There is a need for ability to attend in Geelong.

For more information, go to: https://mecfs.org.au/get-involved/participate-in-research

27/03/2026

Have you heard about the AusAlert coming in July? A siren will sound on every mobile device with a sim connection. ME/CFS Australia have met with NEMA to ensure the concerns of the ME/CFS community have been considered.

Yesterday ME/CFS Australia met with the Stakeholder Engagement team at the National Emergency Management Authority regarding the AusAlert system which is being prepared.

It was a very reassuring and supportive discussion where we shared our concerns and received some important guidance.

The ME/CFS community has now been considered in this process and we will have some very specific ideas about how people with ME/CFS can better manage their devices.

The AusAlert website is aiming to launch at the end of April. We will receive specific community engagement materials a few days prior. Check back here for this information.

15/03/2026

is holding an online Seminar, 28th March at 2pm ACDT.

Smart Gadgets to make your life better.

The team from CareWindow will present about IT hacks that you can use around the home to make life easier. They will also present on their tech-simple CareWindow communication and care device.

For more information - https://mecfssa.org.au/event/seminar-smart-gadgets-to-make-your-life-better

This seminar is for members of ME/CFS SA only. Annual membership is only $5, and you can join here - https://mecfssa.org.au/get-involved/membership

28/01/2026

Researchers from RMIT University are inviting women living with invisible illnesses to take part in a research study exploring how they navigate their condition with support from family, friends, peers, and healthcare providers.

The study involves completing a short online demographic questionnaire (approx. 10 mins) and participating in a one-on-one interview conducted via Microsoft Teams (approx. 30-60 mins).

The research aims to better understand everyday experiences of care and support among women with conditions including, but not limited to, myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia syndrome, postural orthostatic tachycardia syndrome, and long COVID.

Participants will receive a $50 Coles gift voucher in recognition of their time.

If you are interested in taking part, please contact Gabriella at [email protected]

You can find information from Gabriella on our website at https://mecfs.org.au/get-involved/participate-in-research

24/12/2025

Sorry, please use this link. - https://www.nhmrc.gov.au/health-advice/me-cfs/governance/guideline-development-committee/summary-meeting-november2025

24/12/2025

Wishing you a peaceful Christmas and a welcoming 2026, from everyone at ME/CFS Australia.

24/12/2025

We wish you all a peaceful Christmas and a welcoming New Year!

www.mecfssa.org.au