Living with Dementia Survey

25/06/2025

20/06/2025

We're incredibly grateful that Nine.com.au's Dimity Clancey has chosen to partner with us to promote Australia's first Living with Dementia survey.

In a story captured beautifully by New Idea Magazine, Dimity talks about her own experience as a carer for her mother Lorraine, and the need for people impacted by dementia to have their voices heard.

If you are living with dementia, or you care for someone who lives with dementia, sign up today to take part in the landmark survey: www.stepupfordementiaresearch.org.au

In collaboration with Australian Institute of Health and Welfare - AIHW, University of Canberra, Living with Dementia Survey

20/06/2025

Last week, StepUp for Dementia Research founder Professor Yun-Hee Jeon was at the Australian Dementia Research Forum in WA, to help spread the word about our innovative platform that helps researchers recruit volunteer participants for studies.

So far, StepUp for Dementia Research has provided volunteers for more than 141 research studies, paving the way for breakthroughs and better dementia care.

StepUp for Dementia Research ignites hope by connecting Australians living with dementia to groundbreaking research opportunities.

Please share with anyone you know who is living with dementia, or providing care and support to someone who is, and let them know to sign up today at stepupfordementiaresearch.org.au

13/06/2025

The Living with Dementia Survey is NOW OPEN.

A joint collaboration between the University of Canberra’s WellRes Unit at the Health Research Institute, the Centre for Aging and Research Translation (CARAT), Faculty of Health and the Australian Institute of Health and Welfare (AIHW) the survey aims to reach Australians with dementia and their care partners residing within the community (i.e. at home) and find out about their experiences with the health, aged care and other support systems.

We now need your help to help spread the word about this landmark and important survey – Australia’s first. So, if you know anyone who might like to participate, please share.

How to participate:
Visit www.dementiasurvey.com.au for more information, sign up to StepUp for Research at www.stepupfordementiaresearch.org.au or contact the Living with Dementia Survey team at [email protected] or on 1800 964 333.

04/06/2025

The Living with Dementia Survey aims to inform, develop and evaluate policies outlined in the recently released National Dementia Action Plan (NDAP) 2024-2034. The NDAP aims to:
• Promote dementia friendly community attitudes (impacting stigma, discrimination, agency and autonomy)
• Improve dementia diagnosis (in the health sector)
• Improve dementia post diagnostic care and support (across the health, aged and disability care sectors) and
• Improve coordination of care and support

Our team is working together with the Australian Institute of Health and Welfare (AIHW) to help track progress of the above policies included in the NDAP.

The survey is NOW OPEN to people living with dementia in the community and their care partners.

The easiest way to participate is by visiting www.dementiasurvey.com.au for more information, signing up to StepUp for Research at www.stepupfordementiaresearch.org.au, or by reaching out to the Living with Dementia Survey team at the University of Canberra at [email protected] or on 1800 964 333.

📷 & ℹ️ credit: Department of Health, Disability and Aging, Commonwealth of Australia

29/05/2025

Imelda’s contribution and passion to dementia research is clearly evident in her story featured below. Our team is thrilled to have StepUp for Research, and Imelda, a member of StepUp for Dementia Research's original founding team, as supporters of the Living with Dementia Survey.

The survey is NOW OPEN to people living with dementia in the community and their care partners.

If you are living with dementia or are a care partner of someone living with dementia, we would like to hear from you. If you know someone who might like to participate, please share this information.

The easiest way to participate is by visiting our website at www.dementiasurvey.com.au for more information, signing up to StepUp for Dementia Research at www.stepupfordementiaresearch.org.au, or by reaching out to the Living with Dementia Survey team at the University of Canberra at [email protected] or on 1800 964 333.

26/05/2025

The University of Canberra, together with the Australian Institute of Health and Welfare, have launched the first Living with Dementia Survey!

The landmark Living with Dementia Survey is Australia’s first national survey of its kind. The survey aims to reach Australians with dementia and their care partners residing within the community (i.e. at home) and will focus on finding out about their experiences with the health, aged care and other support systems.

The survey is NOW OPEN to people living with dementia in the community and their care partners.

If you are living with dementia or are a care partner of someone living with dementia, we would like to hear from you. If you know someone who might like to participate, please share this information.

The easiest way to participate is by visiting our website at www.dementiasurvey.com.au for more information, signing up to StepUp for Dementia Research at www.stepupfordementiaresearch.org.au, or by reaching out to the Living with Dementia Survey team at the University of Canberra at [email protected] or on 1800 964 333.

The survey is designed so there are flexible options for you to participate so your voice can be heard and make a difference.

This survey is a joint collaboration between the University of Canberra’s Wellbeing and Resilience Unit at the Health Research Institute and the Centre for Aging and Research Translation (CARAT), Faculty of Health and the Australian Institute of Health and Welfare. It is supported by Dementia Australia, Carers Australia and StepUp for Dementia Research.

20/05/2025

15/05/2025