Team Sophy

Team Sophy Team Sophy's aim is to raise awareness & funds for Sophy & Cystic Fibrosis! Thank You for being here to support us ♥ At present, there is no cure for CF...

Cystic Fibrosis (CF) primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus. People with CF develop an abnormal amount of excessively thick and sticky mucus within the lungs, airways and the digestive system. The mucus causes impairment of the digestive function & pancreas which traps bacteria in th

e lungs, resulting in recurrent infections that leads to irreversible damage. Lung failure is the major cause of death for someone with CF. From birth, a person with CF undergoes constant medical treatments and physiotherapy. Donations are heavily relied on for so many things to do with Cystic Fibrosis - Government funding is non existent.

A new combination - AlyftrekCF is caused by mutations in the CFTR gene that result in the loss or dysfunction of the CFT...
17/01/2026

A new combination - Alyftrek

CF is caused by mutations in the CFTR gene that result in the loss or dysfunction of the CFTR protein. This leads to the production of thick, sticky mucus that accumulates in the lungs, digestive system & other organs, ultimately driving most of the disease’s symptoms.
Alyftrek comprises a new combination of three CFTR modulators, a class of medications that can boost the function of the CFTR protein in patients carrying specific disease-causing mutations.

New CF treatment findings: https://bit.ly/3Zf6OOb

A new analysis of clinical trial data suggests that Alyftrek, a once-daily CFTR modulator, may improve quality of life more than Trikafta for children, teens, and adults living with cystic fibrosis.

Researchers looked beyond lung function to understand how people felt day to day, including physical activity, emotional well-being, and participation in school, work, and daily life.

Read more about what the study found and what it could mean for CF care at the link.

22/11/2025
12/11/2025

People with cystic fibrosis are spending an average of almost four hours every day on essential treatments, with many struggling to balance their health needs with financial pressures.

These are the conclusions of our latest Your Life and CF report, based on insights from over 1,000 people affected by CF. The findings show the realities of living with CF today – long daily treatment routines, rising living costs and growing concerns about mental health.

We’re calling on the Government to act now and make meaningful change. 📣

Thank you to everyone who took part in and shared this year’s survey. Because of you, we’re able to use our findings to continue to lobby the Government and campaign for long-lasting and meaningful change.

Visit out website to read more.

➡️ https://ow.ly/ryfV50XpVLy

Help make a difference ❤️
21/10/2025

Help make a difference ❤️

Break a Sweat for cystic fibrosis

25/09/2025

🧬 Educate your friends and family about CF symptoms: persistent cough, lung infections, digestive challenges, and salty-tasting skin. Every person’s experience with CF is unique — understanding these signs helps support those living with it. https://bit.ly/3JZdjQX

16/09/2025

Gene-Editing therapy using Nanoparticles may correct genetic defects in CF lungs. Researchers in Canada and Germany developed a lung-tailored gene-editing strategy using lipid nanoparticles (LNPs) that can deliver gene-editing therapeutics directly into the lungs of people with CF.

The nanoparticles were optimized using cell-based models to pe*****te the thick airway mucus seen in CF. The team evaluated their approach in human cells and CF patient-derived models and found that pre-treating patients with Pulmozyme (dornase alfa) made the gene-editing therapy even more efficient.

👉🏼 Read More: https://www.sciencedirect.com/science/article/pii/S0168365925006753

12/08/2025

Persistent bacterial infection seems to be a main driver of lung inflammation in CF after treatment with Trikafta, a study has found. https://buff.ly/e65MrhV

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