08/11/2022
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Although present in 12–21% of women of reproductive age, it’s estimated that ~70% of Polycystic Ovarian Syndrome ( ) cases are currently undiagnosed*
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It’s now 20 years since my diagnosis, and this statistic still feels absolutely WILD to me. The day I saw a consultant, I remember being told that there “Wasn’t too much to worry about.” Nice one. That felt ok. Maybe this wasn’t so bad after all! And the reason? “Because you’ve got a condition which affects fertility, you’ll receive additional support from the NHS when you want to conceive.” Well that, pretty much, was that. Definitely a priority for a confused-and-overwhelmed 15 year old. A baby was a zillion years away in my head. But the kicker? “You must lose weight.” Mmm. That one stung, then buried deep and hung around … to this day. There was absolutely no further discussion around ‘how’ PCOS manifests, ‘why’ I was experiencing the symptoms I was experiencing, ‘how’ I could manage these effectively, and ‘what’ potential long term health impacts there could be for me if left unmanaged. The only directive? To lose weight. And that it would be harder for me. No what, no why, no how.
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With such low rates of diagnosis STILL, and the condition more often than not discovered when attempting (and struggling) to conceive, this story sadly is still often the current narrative for many of us and will be for those left undiagnosed.
[Continued in comments]
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