19/09/2024
It is always good to hear from a person who is experiencing any type of disability so that we can understand their point of view and true-life experiences.
"Holiday Guide to Autism
My name is Jack.
I have autism.
My autism means I like my schedule very, very much. I like to wrap myself in routine like a soft, cozy blanket.
Loud noises make me nervous. Do not be surprised if I put my hands over my ears when I walk in the door. I need to filter out all the different sounds until I get used to them.
The doctor says I am very tactile. This means I use my fingers to see things. It is okay for you to ask me not to touch things that are important or fragile. It is also okay for you to put them away before I get there.
Please, don’t be upset if you give me a present but I don’t look very excited.
I love getting a present. I really do.
But after I open it, I have to take my time and look at it carefully and decide how it will fit inside my life. I might be so busy thinking about this that I forget to say thank you.
Try not to say words that sound like maple syrup drizzled over a beehive. The kind that taste sweet in your mouth but are meant to give little stings.
Don’t suggest the gluten-free diet when you see me eating a roll with a lot of butter.
Don’t say maybe my autism would get better if I would learn to stop pacing around the floor so much.
Don’t talk about how the latest research states kids like me who take medicine every night will maybe one day get a third eye or the disease of cancer.
Please, don’t insist I pet your dog.
Don’t insist I try your yams.
Don’t insist I sit the whole time for dinner.
In fact, don’t insist anything.
My mother and my father will do the insisting if they want. They know how to stretch me like a rubber band—just far enough so I don’t break.
They know when is the right time to make me try a new food. They know when to make me sit and when to let me pace.
It can be a help for me if there is a quiet place where I can go and do my breathing. It doesn’t have to be anywhere special—an extra bedroom or your sewing room is good.
When it comes to our family, try not to look at your clock too much. Sometimes we are late for parties.
This can be for many reasons. Maybe I took a long time to get dressed.
Maybe I had to keep going back and making sure my pillows were straight on my bed.
If we are late, don’t sing out about our lateness in a weird voice like this: you’re laa-aate! It makes all of us feel bad.
Sometimes, we have to leave early.
When we have to leave early it’s because I have had enough. I have had enough of the smelly food and the loud talking. The breaks in the sewing room aren’t working anymore.
If this happens, please don’t ask why and say we haven’t even had pie yet and can’t we stay a little while longer.
You see, autism families do not measure time in seconds or minutes or hours like everybody else.
We measure it in sensory overload, lack of schedule, and broken ornaments.
Another thing is I don’t like hugging. This is because when people touch me I feel like I am drowning and maybe my skin will come off my body.
This doesn’t mean I don’t care about you. I do. My caring just looks different.
Ask me things.
Ask me about cookies and my school and my music.
I love music.
Listen for my words, for I take longer than most to say them.
I will tell you that my favorite song is by Ariana Grande, and that I tried a new recipe for chocolate chip cookies the other day that said to use Crisco instead of butter.
Ask me.
I will tell you.
Keep your eyes on my face while I search for a way to explain it.
Keep your hands still while you listen to my quiet, halted speech.
Keep my words close to you, for they are the rarest of gifts.
Because inside of our beating hearts, I think we all want the same things. We want to eat food that tastes good on our tongues, and to feel safe and warm and calm like we are wrapped in a soft blanket.
Meet me where I stand.
Hear me when I speak.
See me as I am.
Thank you.
In case I forget to say it.
Thank you."
Shared with permission from Carrie Cariello
