Chiesi Global Rare Diseases

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Chiesi Global Rare Diseases We are making a rare difference.

09/14/2026

There's something special about seeing a friend walk through the door. The smile. The wave. Sometimes, that moment unfolds differently.

A familiar face may not be recognized right away. A moment of uncertainty. A brief pause.
Then, a familiar voice. A familiar gesture. Different ways of recognizing the people who matter most.

This video offers a glimpse into how the same moment may unfold before and after onset — and the ways people adapt to stay connected. Learn more at r.chiesi.com/GRD278FB.

09/11/2026

Reading the menu. Catching the server's eye. Knowing when it’s time to order. When those moments become harder to navigate, even everyday routines can leave someone feeling disconnected from what's happening around them.

This video offers a glimpse into what it's like to live with , a causing central vision loss, whose challenges of everyday life often go unseen by everyone else. Learn more at r.chiesi.com/GRD271FB.

09/09/2026

Listening matters most when it changes what comes next. Conversations with the sickle cell disease community have challenged assumptions, revealed gaps in care and reinforced the importance of elevating voices that sometimes go unheard.

See what members of our team have learned – and how those perspectives are shaping the work ahead.

09/07/2026

Sometimes, finding community starts with a question: Is there anyone else out there going through this? From there, it grows into shared stories, exchanged advice, and connections that can cross borders and backgrounds.

For Maria and her son Peter, Jutta, Moa, and Sandra, reaching out led to a steady source of support. A sense of belonging. A reminder that no one has to navigate this alone.

The more we spread information and awareness of these communities, the more people can find connection, support, and a sense of belonging. Together, we can help strengthen the rare disease community today and . Click r.chiesi.com/GRD262FB to learn more!

09/01/2026

Finding a job. Walking the dog. Buying a new shirt. At first glance, these moments may seem like part of everyday routine. For Moa, Eliane, Jutta and her son Haiko, they represent something more. Each action carries effort, adaptation, and determination — and reminds us that purpose can be found in everyday moments.

Understanding the importance of these experiences helps shape how we support the rare disease community today and . Click r.chiesi.com/GRD261FB to learn more!

08/20/2026

Behind every is a person whose experiences extend far beyond their diagnosis.

The realities of living with disease aren't defined by a single symptom or moment, but by the countless ways the condition can shape everyday life, from the path to diagnosis to family, work and the moments that matter most.

As the rare disease community comes together at , we're reminded that listening to these experiences is essential to advancing care. By understanding what matters most to people living with Fabry disease today, we can help shape a future of care that better supports individuals, families and generations to come.

Because scientific progress isn't only about addressing unmet medical needs, it's also about helping care fit more seamlessly into people's lives, so they can spend more time focused on the people, passions and moments that matter most.

Listen to the full stories and our commitment to amplifying them: https://r.chiesi.com/j845d1l2

07/27/2026

Patricia, Sandra and Jonathan share some of the challenges people living with rare diseases face — beyond their symptoms. Often unseen, these experiences reveal gaps that still go unnoticed.

Through Chiesi’s B Corp certification journey, B Lab, the non-profit organization behind B Corp certification, recognized people living with rare diseases as an underserved population — acknowledging both the challenges this community faces and the importance of addressing them.

For us, this recognition reflects a commitment that is central to how we create shared value, where business success and societal progress are advanced together. We believe people living with rare diseases deserve to be seen, heard and supported, which is why we work alongside communities to better understand their needs and help improve their lives. Learn more by visiting: r.chiesi.com/GRD244FB

06/19/2026

For many people living with rare diseases, being understood is still part of the journey. For Tyler and Ismäel, living with disease has meant learning how to explain their condition, navigate conversations around their care, and find their voice along the way. This is why awareness and education matter — helping create the understanding needed for people living with sickle cell to feel heard, supported, cared for, and empowered. This , share this post help spread awareness.

06/18/2026

Some stories begin with a moment you don’t fully understand — just a feeling that something isn’t right, or a parent’s instinct to look closer. For Karen, Mother of Moisés & Maximiliano, who are living with , that meant searching for answers after her children were diagnosed at an early age.

Share this post to spread awareness and support to the children and families who are navigating this

06/08/2026

Every 8 May, , the world turns red for a reason.

Through the global initiative from the Thalassaemia International Federation - TIF, landmarks and communities are shining a light on those who too often remain unseen.

At Chiesi, this commitment takes shape both locally and globally. From our headquarters to the Parma Town Hall, these lights represent a shared responsibility to amplify the voices of the rare disease community.

Share this post to help shine a light on the thalassemia community.

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