Sickle Cell Awareness with NAOMI

Sickle Cell Awareness with NAOMI This page is to create awareness to all sickle cell warriors “sicklers “ out there like myself.

🩸 Sickle Cell Disease is real, and so is the pain and uncertainty behind it.Behind every hospital bed is a warrior fight...
19/05/2026

🩸 Sickle Cell Disease is real, and so is the pain and uncertainty behind it.

Behind every hospital bed is a warrior fighting battles many people cannot see. Sickle cell disease is not just “pain” it is fatigue, crises, emotional struggle, and resilience all at once.

Let’s not stigmatize. Let’s not misunderstand.
Let’s educate, support, and show compassion.

To every warrior out there: you are stronger than you know, and your story matters. 🤍


FUNI DieudonneVanguard Oncology NetworkAzawe NaomiDiDi DiaMondNora Brown OfficialSickle Cell Awareness with NAOMI

04/05/2026

Living with Sickle Cell Disease is a reality many people don’t fully understand.

From the outside, someone may look “fine.”
But behind the scenes, there are painful crises, hospital visits, fatigue, and moments of uncertainty.

For warriors, it is a life of strength, fighting battles that are often invisible.
For parents, it is constant care, worry, and hope.
For families, it is learning to adapt, support, and stay strong together.

But living with SCD is not only about pain.

It is also about resilience.
It is about courage.
It is about showing up every day, even when the body says otherwise.
It is about hope.

This is why awareness matters.

When we understand, we stop judging.
When we are informed, we make better decisions.
When we care, we create a more supportive society.

To us warriors: our strength is seen, even when it goes unnoticed.
To parents: your efforts matter more than words can express.
To everyone else: take the time to learn, to support, and to act.

Because living with Sickle Cell Disease is not a choice…
But how we respond to it as individuals and as a society.

I have seen this reality up close, and I am still living in it…💜🌸

Brown OfficialDiDi DiaMondVanguard Oncology NetworkFUNI DieudonneSickle Cell Awareness with NAOMIAzawe Naomi

04/05/2026

Before love becomes lifelong… have you had the genotype conversation?

In many of our communities, genotype is still something we talk about too late after emotions are already deeply involved.

But here’s the truth:
Genotype is not just a medical detail. It’s a life decision.

Sickle Cell Disease (SCD) is not a myth. It is real. It is painful. And it affects not just the individual, but entire families.

And yet, many young people still don’t know their genotype.

Some avoid testing.
Some assume “it won’t happen to me.”
Some simply don’t understand the consequences.
While others think it’s not necessary and believe that incase incase of marriage and they are faced with such an issue, God will change the genotype and nothing will happen.

But awareness changes everything.

Knowing your genotype early helps you make informed choices not out of fear, but out of responsibility, love, and foresight.

For me, this conversation matters because I’ve seen how much SCD can shape a person’s life. The strength it demands, the silent battles, the resilience.

So today, I’m asking you:

👉 Do you know your genotype?
👉 Have you had that conversation with your partner?
👉Are you planning on doing the genotype test?

Let’s normalize early testing.
Let’s choose awareness over assumptions.
Let’s protect the next generation.💜🌸

Brown OfficialDiDi DiaMondVanguard Oncology NetworkFUNI Dieudonne

02/05/2026

💔 The Hidden Battles of Living with Sickle Cell Disease (SCD)

Many people hear about Sickle Cell… but few truly understand what it means to live with it every single day.

It’s more than just pain.

⚠️ Frequent Pain Crises
Sudden, severe pain that can last for hours or days, sometimes and most often requiring hospitalization.

😞 Fatigue & Weakness
Even simple daily activities can feel exhausting due to low oxygen levels in the body. To the point where trekking for long distances or climbing hills become a problem.

🏥 Frequent Hospital Visits
Regular check-ups, emergency care, medications… it becomes a way of life.

📚 Interrupted Education & Work
Missing school or work during crises can affect dreams, goals, and opportunities. This is very accurate because I can very much relate to this.

💸 Financial Burden
Treatment, medications, and hospital bills can be overwhelming for families. Especially average families and struggling families like mine.

💔 Emotional & Mental Strain
Living with constant uncertainty, pain, and sometimes stigma can take a toll mentally. People judging you and making side comments without even knowing you or the trauma you go through on a daily basis.

And yet…
💪🏽 Warriors still rise every day.

They smile, they push forward,even though most often the journey becomes unpredictable and they fight battles many people never see.

🙏 Let’s show more understanding.
🙏 Let’s reduce stigma.
🙏 Let’s support warriors and their families.

Sickle Cell is not a choice but compassion is.💜🌸

Brown OfficialFUNI DieudonneDiDi DiaMondVanguard Oncology Network

02/05/2026

🧬 Do You Know Your Genotype?

Many people go into relationships without knowing this simple but powerful detail and it can change everything.

Before saying “YES” to any man wether with regards to a relationship or a marriage, the first thing to know or ask about that person is their genotypes.

Your genotype (AA, AS, SS, etc.) determines the kind of child you and your partner can have.
For example:

* AA + AS = Lower risk
* AS + AS = 25% chance of having a child with Sickle Cell Disease (SS)

Sickle Cell Disease is not just a medical term it’s a lifelong journey of pain, strength, resilience and always fighting to stay alive and hopeful.

💡 Why this matters:
Knowing your genotype early helps you make informed decisions about your future, your family, and your legacy.

Don’t wait until it’s too late.
✔️ Get tested
✔️ Know your status
✔️ Have open conversations

Awareness today can prevent pain tomorrow.

And for all those already living with the disease, always have it at the back of your mind that it’s not the end of the road for you.

Sickle cell disease is not a death sentence. We too can live a normal and happy life, if we take our health seriously.💜🌸

Nora Brown OfficialDiDi DiaMondFUNI Dieudonne

27/04/2026

Do you know that there are different types of sickle cell crisis?

I guess most of us are unaware….I myself was until recently.

“ Not all sickle cell pain is the same”

I know when most of us hear of a “sickle cell crisis”, we think it’s just pain…but there are various type of sickle cell crisis, which varies from person to person and affects the body in different ways.

Below are the most common types of a sickle cell crisis:

🔴 Pain Crisis (Vaso-occlusive crisis)
This is the most common. It happens when sickled cells block blood flow, causing severe pain in bones, chest, or joints. I can attest to this because this is the type of crisis I have been experiencing since the day I found out I was a warrior and understood what it meant.

🟡 Sequestration Crisis
Blood gets trapped in organs like the spleen, causing sudden swelling and a dangerous drop in blood levels.

🟢 Aplastic Crisis
This happens when the body temporarily stops producing red blood cells often due to infection.

Sickle cell is not just “one type of pain.”
It is complex. It is serious. And it deserves understanding.

💡 The more we know, the better we can support warriors.💜🌸


Nora Brown OfficialFUNI DieudonneDiDi DiaMond

27/04/2026

Do you know your genotype? 🤔

It’s a simple question… but one that can change lives.

Your genotype (AA, AS, SS, AC…) is not just letters, it determines your health and the future of your children.

Here’s what many people don’t realize:

➡️ AA + AA = AA (No risk of sickle cell disease)
➡️ AS + AS = 25% chance of having a child with SS (Sickle Cell Disease)
➡️ AS + SS = Higher risk of SS children

In my own case, both my parents were carriers of the Sickle cell trait. They didn’t know the importance of genotype testing then and were uninformed of the danger lying ahead but thankfully, I am the only person among four children with SCD. In most cases, ignorance was one of the major reasons why many children were being born with SCD back in the days because there was little or no awareness.

But now that the world has evolved and become digitalized, I believe most of us are aware of the risk involved if both parties of the carrier trait get married.

Sickle Cell Disease is not something that “just happens.”
In many cases, it can be prevented through awareness and informed decisions.

💡 Knowing your genotype early helps you:
✔️ Make informed relationship choices
✔️ Plan your future responsibly
✔️ Avoid preventable pain for your children

Sadly, many people only find out their genotype after it’s too late.

Don’t wait.

👉 Go for a genotype test
👉 Encourage your friends and loved ones to do same

Awareness is not fear, it’s wisdom.💜🌸

Nora Brown Official FUNI Dieudonne DiDi DiaMond

06/04/2026

According to history, SCD was first discovered in 1910 by James B. Herrick, an American in Chicago, when he discovered or observed abnormal sickle-shaped red blood cells in a student from Grenada.

It was demonstrated in 1927 that low oxygen conditions cause the cells to sickle by Hahn and Gillespie.

In 1949, Linus Pauling, Harvey Itano, and Colleagues published a landmark study showing SCD is caused by an abnormal “hemoglobin S” molecule, making it the first known “molecular disease”.

Although Sickle cell disease was discovered in 1910 by James B. Herrick, the term “sickle cell” was not introduced until 1922 by Vernon Mason. It is said that the name was inspired by the crescent or sickle-like shaped of the red blood cells observed under the microscope.

From the aforementioned, we might really think that SCD was discovered or first known in 1910 but that’s untrue because during the 1600s in Africa, Sickle cell disease was present but it was not yet known as it is called presently nor understood but instead, people with the disease were known or referred to as “Ogbanges” which means “children who come and go”, because of the high mortality rate of the disease.

Sickle cell disease has a high prevalence in Africa because of the presence of malaria. It is said that, out of four babies born with Sickle Cell Disease in the world, three of that four will be from Africa just to show us how prevalent it is in the African Continent.

That is why I will keep stressing on the fact that we should take awareness seriously and know our genotypes before indulging or committing into any serious relationships or marriages.

The world is evolving but still yet there are still high birth and death rates of Sickle cell disease annually across the world, irrespective of the fact that there are awareness programs, adequate medical care, understanding of the disease as compared to before, new born screening etc.

Let’s take awareness seriously so as to spare children from future pain, suffering and high mortality rates.💜🌸

Nora Brown Official DiDi DiaMond FUNI Dieudonne

23/03/2026

I was recently hospitalized because of sickle cell disease. This jogged some memories and reminded me that living with the disease goes hand in hand with uncertainty. One moment you are fine and the next you are not. Coupled with the antagonizing pain you go through. It hasn’t been an easy journey living with sickle cell since infancy till tomorrow but nonetheless, I am always grateful to God for always strengthening me and bringing me out from every crisis alive. In a nutshell, know your genotype before committing to anyone. Because living with SCD is no joke. Not only the child suffers but the parents too and the family at large.
Courage to every warrior out there..💜🌸

Brown Official,FUNI Dieudonne DiDi DiaMond

06/03/2026

Living with sickle cell is not something many people understand unless they experience it.

There are days when the pain and crisis are so overwhelming. The hospital visits,the fatigue,the tears you shed because of the excruciating pain and not to mention the various injections and cannulas pierced onto your skin.

I for one is a living prove because I have undergone and is still under going so much pain as a result of a sickle cell crisis that I wouldn’t even wish on my worst enemy. There are episodes where I will wish I was never born(though it’s a terrible thing to say or think of). Other moments I will wonder why I am going through all this pain and suffering.

There are also moments when I will go into a crisis and my dad will have no money to take me to the hospital. Mind you,raising a sickler is not something to joke with since it requires a lot of financial assistance, constant care and monitoring, but since I am from a struggling family, there are times when I will go into a crisis and there will be no money to take me to the hospital. Thankfully, I have a father who is very much intelligent and thinks out of the box. On days like that,he will tell my senior brothers to make fire in the kitchen so I can go and sit beside and warm myself so the blood cloth in my joints can dissolve and freely flow so that the pains can subside . When that fails,my father will resort to warming water so as to use it and massage the areas where the pains are and that usually gets the job done.

I come from a family of six,my dad,my mum and my 3 older brothers. I am the last born and the only girl,and also the only child with Sickle cell Disease. My brothers have been very caring and supportive in this journey. There was a time when I went into a crisis on Monday( which is a ghost time in Bamenda). This means there is no means of transportation since everyone is said to be indoors on such days. The severity of that crisis made me not to be able to move. My legs became very weak and I couldn’t move them and as a result,my elder brothers had to take turns in carrying me to the hospital on their backs which was further away from where we lived. I am writing this with tears in my eyes because the journey as a sickle cell patient hasn’t been easy for me and my family since when I was little till tomorrow.

Being a sickle cell patient hasn’t been easy for me but I will never allow it DEFINE me.! There are times when I will go to the hospital and nurses will ask me questions like” how many siblings do you have and how many of them are like you” like me how? Let’s ride on; when I answer and tell them i am the only one,they will be like” so you are the unfortunate one” just listen to what a health personnel is saying to “sickler”, but the fun fact is that,I never let such statements or comments get to me because I know who I am!.

“ To every Sickle Cell Warrior out there,you are stronger than you think. Your condition does not define your worth or your future”.💜
Nora Brown Official

NAOMI💜🌸

06/03/2026

Welcome to Sickle Cell Awareness with Naomi 💜🩸

This page was created to educate, inspire, and create awareness about sickle cell disease.

For many people, sickle cell is just a word they have heard before. But for some of us, it is a reality we live with every day the pain, the strength, the battles people cannot see, and the courage it takes to keep going.

Through this page, I want to Educate people about sickle cell disease, Encourage sickle cell warriors who are fighting every day, Create awareness about the importance of knowing your genotype, Share real experiences and helpful information

My goal is simple; to spread knowledge that can save lives and build understanding.

If you believe more people should learn about sickle cell, please follow this page and share this message so we can reach more people.

Together we can build a community of awareness, support, and hope. 💜
Nora Brown Official
Sickle Cell Awareness with NAOMI

Naomi💜🌸

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