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Prurigo Nodularis League

Despite its prevalence and severity, prurigo nodularis remains a relatively unknown skin disease. Prurigo nodularis ist eine relativ unerforschte Erkrankung.

Our goal is to raise global awareness and provide current news relating to this debilitating illness. Hier finden Sie aktuelle News rund um das Netzwerk Prurigo nodularis Liga.

24/06/2026

🧒🔬 Prurigo Nodularis in Children: Insights from a Nationwide Finnish Study

Prurigo nodularis (PN; Chronic Prurigo) is a chronic inflammatory skin disease characterized by intensely itchy nodules, but data in children have been scarce. A new nationwide registry study from Finland analyzed all pediatric PN cases diagnosed between 1995 and 2024.

📊 What did the researchers find?
• Only 48 children met diagnostic criteria over the 30-year study period.
• The incidence was approximately 2 cases per million children per year, confirming that PN is rare in childhood.
• The average age at diagnosis was 10 years.
• More than 75% of children had a previous dermatologic diagnosis before PN developed.

🌿 Atopic dermatitis was the most important associated condition
• 52% of children had a history of atopic dermatitis (AD).
• Other associated conditions included unspecified dermatitis, asthma, rhinitis, and recurrent infections.
• These findings support the close relationship between chronic itch, atopy, and the development of PN.

💊 Systemic treatment was required in 25% of patients
• Dupilumab was the most frequently prescribed systemic therapy.
• Methotrexate and ciclosporin were used less often.
• Most children receiving dupilumab also had underlying atopic dermatitis.

💡 Clinical relevance
Although PN is uncommon in children, it should be considered in patients with chronic pruritus, excoriated nodules, and an atopic background. The strong association with atopic dermatitis highlights the importance of early itch control and appropriate management of underlying inflammatory skin disease.

Further information can be found here: https://pubmed.ncbi.nlm.nih.gov/42191639/

📖 Huilaja L, Jokelainen J, Sinikumpu SP. British Journal of Dermatology (2026)

23/06/2026

💚 World Prurigo Day 2026 – Working together for greater visibility
The second World Prurigo Day took place on 21 June. People from Europe, North and South America, and Asia came together to raise awareness of prurigo, present the latest developments and promote international exchange.
Under the slogan ‘Recognise prurigo, act early’, one message took centre stage: an early diagnosis and timely access to effective treatment can make a crucial difference for those affected.
International experts, researchers and patients shed light on the condition from different perspectives. It became clear just how significantly prurigo can affect daily life, sleep and mental wellbeing – and how important education, research and better care are.
The exchange between those affected and experts from around the world was particularly valuable. Together, they sent a strong message calling for greater awareness, understanding and support.
🎥 Were you unable to join us live? The recording of World Prurigo Day will be available on YouTube shortly. We’ll keep you updated!
Many thanks to all the speakers, organisers and participants who made this special day possible. Together, we’re raising awareness of prurigo. Let’s keep the spotlight on prurigo long after this day is over. 💚

21/06/2026

🩸 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝘂𝗿𝗶𝗴𝗼 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 🩸

Today, June 21, 2026, we are raising awareness of a disease that often remains invisible but has a profound impact on the lives of many people: Chronic Prurigo.

Chronic Prurigo is much more than “just itching.” It is a complex condition characterized by a persistent itch-scratch cycle that is extremely difficult to break. Those affected experience not only skin lesions but often also sleep deprivation, fatigue, concentration difficulties, and significant psychological distress. 🩸

World Prurigo Day was established to highlight exactly these issues:
👉 This disease is still diagnosed too late in many cases
👉 Many patients do not feel taken seriously
👉 There is still far too little awareness and understanding 🩸

Key messages of the day:
🩸 Chronic Prurigo is a serious dermatological disease
🩸 Patients cannot simply “will away” or ignore the itch
🩸 It has nothing to do with poor hygiene
🩸 Early diagnosis and modern therapies can significantly improve quality of life

In addition, it is important to remember:
🔬 Research continues to advance, including the development of targeted therapies that address itch mechanisms within the nervous system
🧠 Psychological burden is a major aspect of the disease and should be addressed as part of comprehensive care
💊 Several modern treatment options are now available, offering new hope for patients

World Prurigo Day is therefore not only an awareness day—it is also a symbol of greater visibility, medical understanding, and solidarity with everyone affected by this condition. 🩸

For more information, please visit:

🌐 www.worldprurigoday.org

18/06/2026

🩵𝗪𝗵𝘆 𝗱𝗼 𝘄𝗲 𝗻𝗲𝗲𝗱 𝗮 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝘂𝗿𝗶𝗴𝗼 𝗗𝗮𝘆? 🩵

Chronic prurigo / prurigo nodularis is much more than just an itchy skin condition. The disease can significantly impair sleep, concentration, mental well-being, and quality of life. Yet many people are unaware of the condition—and many affected individuals face a long journey to receiving the correct diagnosis.

That is exactly why World Prurigo Day exists. 🌍

On June 21, 2026, dermatologists, researchers, patients, and patient organizations around the world will come together to raise awareness of chronic prurigo, advance research, and improve care for those affected. The day of action will feature events and webinars in numerous countries and give a voice to those affected.

The message is clear: Recognize prurigo—act early. Those affected deserve understanding, education, and access to appropriate treatment.

📅 Save the Date: June 21, 2026

For more information and free registration for the international webinars:

https://worldprurigoday.org/de/

17/06/2026

🌍 Reminder: Registration for World Prurigo Day is still open!

Together, we are raising awareness and advancing education and research for Chronic Prurigo and Prurigo Nodularis.

Participants and organizations from around the world are joining, including:

🇩🇪 Germany | 🇺🇸 USA | 🇧🇷 Brazil | 🇫🇷 France | 🇬🇧 United Kingdom | 🇮🇹 Italy | 🇹🇷 Türkiye | 🇮🇳 India | 🇯🇵 Japan | 🇨🇳 China | 🇰🇷 South Korea | 🇷🇴 Romania

🤝 Bringing together patients, caregivers, researchers, and healthcare professionals worldwide.

👉 Register now and become part of the global Prurigo community!

17/06/2026

Can Food Support Skin Health? 🥗✨
Many people focus on creams, ointments and skincare products when it comes to healthy skin. 🧴 But what we eat may also play an important role.
Recent research suggests that a diet rich in whole, minimally processed foods may help support skin health. Certain nutrients and plant compounds can help protect the skin from oxidative stress, support the skin barrier and contribute to normal skin repair processes. 🌿

Foods that may be beneficial for skin health include:
🍎 Colorful fruits and vegetables
🥬 Green leafy vegetables
🌰 Nuts and seeds
🐟 Fatty fish such as salmon
🫒 Olive oil
🍵 Green tea
🥕 Foods rich in vitamins A, C, D and E
🐟🌰 Foods containing omega-3 fatty acids and zinc

Researchers also highlight the connection between the gut and the skin. 🦠 A balanced diet may help support a healthy gut microbiome, which could influence inflammation and overall skin health.
Importantly, diet is not a cure for chronic skin diseases such as chronic prurigo, atopic dermatitis or psoriasis. However, healthy dietary choices may be a useful addition to medical treatment and skincare routines. 💙

Take-home message 📌

Healthy skin is influenced by many factors. Alongside medical treatment, a diet rich in vegetables, fruits, nuts, fish and other minimally processed foods may help support overall skin health. 🌱✨

Full tipps can be found here: Nutritional Dermatology: Optimizing
Dietary Choices for Skin Health

17/06/2026

What Affects the Skin Microbiome?

Your skin is home to billions of bacteria, fungi and viruses. Together, they form the skin microbiome – an important part of the skin barrier and immune system.

Research suggests that several everyday factors can influence this delicate ecosystem:

🌫️ Air pollution
Pollutants may change the balance of skin microbes and contribute to skin damage, pigmentation changes and premature skin aging.

🌳 Limited contact with nature
Living in highly urbanized environments with little access to green spaces may reduce microbial diversity. Like walking outside appears to support a more diverse microbiome.

🥗 Diet
What we eat may affect both the gut microbiome and the skin microbiome. Diets rich in whole foods, fruits and vegetables may help support skin health.

😓 Stress
Chronic stress can weaken the skin barrier and alter the environment in which skin microbes live, potentially affecting the microbiome.

🧬 Hormonal changes
Hormonal fluctuations can influence oil production and microbial balance. This is one reason why acne often worsens during puberty, pregnancy or around menstruation.

Take-home message:
A healthy skin microbiome depends on more than skincare products. Lifestyle factors such as diet, stress management, time spent in nature and environmental exposures may also play a role in maintaining healthy skin.

14/06/2026

🌍 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝘂𝗿𝗶𝗴𝗼 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 🌍

Today, together with NIK e.V., we at SkinHealthCampus would like to raise awareness about the importance of understanding chronic prurigo.

Chronic prurigo is much more than “just itching” – the condition can significantly impact sleep, concentration, mental health, and overall quality of life. Many patients suffer for years from severe itch, visible skin lesions, and social burden.

💡 𝗪𝗵𝘆 𝗮𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗺𝗮𝘁𝘁𝗲𝗿𝘀:

✔️ Creating understanding
Prurigo is not contagious and has nothing to do with poor hygiene. Nevertheless, many affected individuals still experience misunderstanding or prejudice.

✔️ Empowering patients
Understanding the disease can help patients better recognize symptoms, seek medical support earlier, and make better use of available treatment options.

✔️ Reducing stigma
Visible skin changes may lead to stigmatization, insecurity, and social withdrawal. Greater awareness fosters empathy and understanding.

✔️ Encouraging early treatment
The earlier chronic prurigo is recognized, the better symptoms can be managed and quality of life improved.

✔️ Improving quality of life
Education, medical support, and connecting with others affected can make daily life noticeably easier. Modern therapies are now offering new hope to many patients. 🤍

More knowledge means more understanding – and more support for people living with chronic prurigo.

04/06/2026

For our German speaking followers:

𝐎𝐧𝐥𝐢𝐧𝐞 𝐄𝐝𝐮𝐜𝐚𝐭𝐢𝐨𝐧 𝐒𝐞𝐦𝐢𝐧𝐚𝐫: 𝐔𝐧𝐝𝐞𝐫𝐬𝐭𝐚𝐧𝐝𝐢𝐧𝐠 𝐚𝐧𝐝 𝐓𝐫𝐞𝐚𝐭𝐢𝐧𝐠 𝐏𝐫𝐮𝐫𝐢𝐠𝐨

In collaboration with NIK e.V., we cordially invite you to an online continuing education seminar titled “Understanding and Treating Prurigo” as part of World Prurigo Month.

🎓 𝐒𝐩𝐞𝐚𝐤𝐞𝐫𝐬: Prof. Dr. Sonja Ständer & Prof. Dr. Matthias Augustin
📣 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐫𝐞𝐩𝐫𝐞𝐬𝐞𝐧𝐭𝐚𝐭𝐢𝐯𝐞: Linda Stockmeier from the Prurigo Self-Help Group
🗓 June 8, 2026
🕖 7:00–8:00 p.m.
📍 Live via Zoom & YouTube

Together with NIK e.V., we are taking a stand for greater awareness, understanding, and networking in the management of chronic prurigo.

👉 Register now via the NIK e.V. website:
𝐡𝐭𝐭𝐩𝐬://𝐰𝐰𝐰.𝐧𝐢𝐤-𝐞𝐯.𝐝𝐞/𝐯𝐞𝐫𝐚𝐧𝐬𝐭𝐚𝐥𝐭𝐮𝐧𝐠𝐞𝐧/

Awareness Networking

01/06/2026

🧬𝗗𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝘁 𝗶𝗻𝗳𝗹𝗮𝗺𝗺𝗮𝘁𝗼𝗿𝘆 𝘀𝘂𝗯𝘁𝘆𝗽𝗲𝘀 𝗶𝗻 𝗖𝗵𝗿𝗼𝗻𝗶𝗰 𝗣𝗿𝘂𝗿𝗶𝗴𝗼 𝘄𝗶𝘁𝗵 𝗮𝗻𝗱 𝘄𝗶𝘁𝗵𝗼𝘂𝘁 𝗮𝘁𝗼𝗽𝗶𝗰 𝗱𝗲𝗿𝗺𝗮𝘁𝗶𝘁𝗶𝘀

🔍 A recent study investigated differences between patients with chronic prurigo with and without atopic dermatitis.

The researchers found that both groups showed marked skin inflammation, impaired skin barrier function, and changes in genes linked to nerve function and skin repair. These findings support the idea that chronic prurigo develops through complex interactions between the immune system, skin cells, and sensory nerves.

However, patients who also had atopic dermatitis showed stronger inflammatory activity🔥.

💉 𝗪𝗵𝘆 𝗶𝘀 𝘁𝗵𝗶𝘀 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁?

The findings may help explain why biologic treatments targeting inflammation can be especially effective in some patients with chronic prurigo. The study also suggests that different inflammatory subtypes of the disease may exist, which could support more personalized treatment approaches in the future.

Full text can be found here (link also in our bio): https://pmc.ncbi.nlm.nih.gov/articles/PMC12627025/

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