Was ist die Webseite?

Improve Preterm, Munich (2026)

03/06/2026

𝗡𝗼𝘁 𝗲𝘃𝗲𝗿𝘆𝘁𝗵𝗶𝗻𝗴 𝘁𝗵𝗮𝘁 𝗺𝗮𝘁𝘁𝗲𝗿𝘀 𝗶𝗻 𝗱𝗮𝗶𝗹𝘆 𝗹𝗶𝗳𝗲 𝗶𝘀 𝗲𝗮𝘀𝘆 𝘁𝗼 𝘀𝗲𝗲 𝗶𝗻 𝘀𝘆𝘀𝘁𝗲𝗺𝘀. 💛 After very preterm birth, a child may seem to be doing well on paper – while everyday life still requires a lot of support, planning, energy, or adaptation behind the scenes.

That does not mean anyone is ignoring what matters. Often, it reflects how systems are built. Appointments are usually short and focused on specific questions. Records tend to capture what is most standardized and easiest to document. And 𝘀𝗼𝗺𝗲 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀 𝗼𝗻𝗹𝘆 𝗯𝗲𝗰𝗼𝗺𝗲 𝘃𝗶𝘀𝗶𝗯𝗹𝗲 𝗶𝗻 𝗲𝘃𝗲𝗿𝘆𝗱𝗮𝘆 𝗹𝗶𝗳𝗲 – at home, in school, during transitions, or in the effort it takes to keep things going. 🌱 𝗦𝗼 𝗲𝘃𝗲𝗻 𝘄𝗵𝗲𝗻 𝘁𝗵𝗲 𝗺𝗲𝗱𝗶𝗰𝗮𝗹 𝗽𝗶𝗰𝘁𝘂𝗿𝗲 𝗶𝘀 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁, 𝗶𝘁 𝗺𝗮𝘆 𝗻𝗼𝘁 𝗮𝗹𝘄𝗮𝘆𝘀 𝘀𝗵𝗼𝘄 𝘁𝗵𝗲 𝘄𝗵𝗼𝗹𝗲 𝗹𝗶𝘃𝗲𝗱 𝗿𝗲𝗮𝗹𝗶𝘁𝘆.

This is one reason family perspectives matter so much. 𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗼𝗳𝘁𝗲𝗻 𝗵𝗼𝗹𝗱 𝘁𝗵𝗲 𝗳𝘂𝗹𝗹𝗲𝗿 𝗽𝗶𝗰𝘁𝘂𝗿𝗲 – 𝗻𝗼𝘁 𝗷𝘂𝘀𝘁 𝗼𝗳 𝘁𝗲𝘀𝘁 𝗿𝗲𝘀𝘂𝗹𝘁𝘀 𝗼𝗿 𝗺𝗶𝗹𝗲𝘀𝘁𝗼𝗻𝗲𝘀, 𝗯𝘂𝘁 𝗼𝗳 𝗵𝗼𝘄 𝗹𝗶𝗳𝗲 𝗶𝘀 𝗮𝗰𝘁𝘂𝗮𝗹𝗹𝘆 𝘄𝗼𝗿𝗸𝗶𝗻𝗴 𝗱𝗮𝘆 𝘁𝗼 𝗱𝗮𝘆. And that perspective can help research and care pay better attention to what matters over time. ✨

27/05/2026

𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗼𝗳𝘁𝗲𝗻 𝘁𝗵𝗶𝗻𝗸 𝗮𝗯𝗼𝘂𝘁 𝘁𝗵𝗲 𝗹𝗼𝗻𝗴 𝘁𝗲𝗿𝗺 𝗯𝗲𝗰𝗮𝘂𝘀𝗲 𝘁𝗵𝗲𝘆 𝗮𝗿𝗲 𝗹𝗶𝘃𝗶𝗻𝗴 𝗶𝘁. 💛 After very preterm birth, what matters does not stop with the early years. Over time, families may be thinking about learning, emotional wellbeing, support in everyday life, transitions between services, and how needs can change as a child grows.

That perspective matters in research. Parents are not only the people researchers collect information from. They also bring something deeply valuable: 𝗹𝗶𝘃𝗲𝗱 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲, 𝗰𝗼𝗻𝘁𝗶𝗻𝘂𝗶𝘁𝘆, 𝗮𝗻𝗱 𝗶𝗻𝘀𝗶𝗴𝗵𝘁 𝗶𝗻𝘁𝗼 𝘄𝗵𝗮𝘁 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 𝗿𝗲𝗺𝗮𝗶𝗻 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲. They often see parts of the journey that are harder to capture in short-term studies or single appointments. 🌱

That is why parent voices matter so much in projects like IMPROVE PRETERM. 𝗣𝗮𝗿𝗲𝗻𝘁𝘀 𝗮𝗿𝗲 𝗻𝗼𝘁 𝗼𝗻𝗹𝘆 𝗽𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁𝘀 𝗶𝗻 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 – 𝘁𝗵𝗲𝘆 𝗮𝗿𝗲 𝘃𝗮𝗹𝘂𝗲𝗱 𝗽𝗮𝗿𝘁𝗻𝗲𝗿𝘀 𝘄𝗵𝗼 𝗵𝗲𝗹𝗽 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗳𝗼𝗰𝘂𝘀 𝗼𝗻 𝘄𝗵𝗮𝘁 𝗺𝗮𝘁𝘁𝗲𝗿𝘀 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲. ✨

20/05/2026

𝗘𝗮𝗿𝗹𝘆 𝗼𝘂𝘁𝗰𝗼𝗺𝗲𝘀 𝗺𝗮𝘁𝘁𝗲𝗿 – 𝗯𝘂𝘁 𝘁𝗵𝗲𝘆 𝗱𝗼 𝗻𝗼𝘁 𝘁𝗲𝗹𝗹 𝘁𝗵𝗲 𝘄𝗵𝗼𝗹𝗲 𝘀𝘁𝗼𝗿𝘆. 💛 After very preterm birth, a lot of attention naturally focuses on survival, medical stability, and the first years of life. And of course, those things matter deeply. But they cannot tell us everything about what comes later.

Very preterm birth can shape health, development, learning, emotional wellbeing, and everyday life far beyond infancy. Some questions only become clearer with time – as children grow, enter school, move into adolescence, and continue through later stages of life. 🌱

The truth is: 𝘄𝗲 𝘀𝘁𝗶𝗹𝗹 𝗱𝗼 𝗻𝗼𝘁 𝗸𝗻𝗼𝘄 𝗲𝗻𝗼𝘂𝗴𝗵 𝗮𝗯𝗼𝘂𝘁 𝗵𝗼𝘄 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗮𝗳𝗳𝗲𝗰𝘁𝘀 𝗹𝗶𝗳𝗲 𝗼𝘃𝗲𝗿 𝘁𝗵𝗲 𝗹𝗼𝗻𝗴 𝘁𝗲𝗿𝗺. That is one reason IMPROVE PRETERM looks beyond the early years.

The project is working to build better evidence for the longer journey – including later childhood, and tools like the new parent-reported follow-up questionnaire for ages 5 to 7. Because understanding life after very preterm birth means looking further ahead, not only at the beginning. ✨

Learn more on our website: https://improve-preterm.eu/about/objectives-goals/

17/05/2026

𝗠𝗮𝘆 𝟭𝟳 𝗶𝘀 𝗡𝗘𝗖 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆! 💙💛

Necrotizing enterocolitis, or NEC, is 𝗮 𝘀𝗲𝗿𝗶𝗼𝘂𝘀 𝗶𝗻𝘁𝗲𝘀𝘁𝗶𝗻𝗮𝗹 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 that primarily affects preterm and medically fragile babies. It can progress quickly, and for families who experience it, its impact may last far beyond the NICU. Some babies who survive NEC go on to face𝗹𝗼𝗻𝗴-𝘁𝗲𝗿𝗺 𝗻𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻𝗮𝗹 𝗮𝗻𝗱 𝗻𝗲𝘂𝗿𝗼𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁𝗮𝗹 𝗰𝗼𝗺𝗽𝗹𝗶𝗰𝗮𝘁𝗶𝗼𝗻𝘀. On this awareness day, we want to help make NEC more visible – and acknowledge the families carrying its impact.

At IMPROVE PRETERM, we care deeply about the longer journey after very preterm birth. Awareness around conditions like NEC is part of that bigger picture. Better research, better prevention, and better long-term understanding matter.

We are joining NEC Society in marking the day and raising awareness for the 𝘂𝗿𝗴𝗲𝗻𝘁 𝗻𝗲𝗲𝗱 𝗳𝗼𝗿 𝗰𝗼𝗻𝘁𝗶𝗻𝘂𝗲𝗱 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵, 𝗲𝗱𝘂𝗰𝗮𝘁𝗶𝗼𝗻, 𝗮𝗻𝗱 𝗮𝗱𝘃𝗼𝗰𝗮𝗰𝘆. 💙💛

13/05/2026

𝗟𝗼𝗻𝗴-𝘁𝗲𝗿𝗺 𝗼𝘂𝘁𝗰𝗼𝗺𝗲𝘀 is a phrase often used in research – but what does it actually mean? 💭

After very preterm birth, it means looking at how 𝗵𝗲𝗮𝗹𝘁𝗵, 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁, 𝗮𝗻𝗱 𝗲𝘃𝗲𝗿𝘆𝗱𝗮𝘆 𝗹𝗶𝗳𝗲 𝘂𝗻𝗳𝗼𝗹𝗱 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲 – not only in the NICU or during the first years of childhood.
That can include many different things: breathing and lung health, movement, learning, attention, emotional wellbeing, mental health, and how someone participates in daily life at home, in school, and beyond. Some of these things become visible early. Others may only become clearer later. 🌱

This matters because very preterm birth is not only something families experience in the hospital. For many families – and especially for the people born very preterm themselves – it can remain part of life far beyond infancy, sometimes into adolescence and adulthood.

That is why research needs to look beyond survival and beyond the early years. 𝗟𝗼𝗻𝗴-𝘁𝗲𝗿𝗺 𝗼𝘂𝘁𝗰𝗼𝗺𝗲𝘀 𝗵𝗲𝗹𝗽 𝘂𝘀 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱 𝗻𝗼𝘁 𝗷𝘂𝘀𝘁 𝗵𝗼𝘄 𝗰𝗵𝗶𝗹𝗱𝗿𝗲𝗻 𝘀𝘂𝗿𝘃𝗶𝘃𝗲, 𝗯𝘂𝘁 𝗵𝗼𝘄 𝘁𝗵𝗲𝘆 𝗴𝗿𝗼𝘄, 𝗹𝗶𝘃𝗲, 𝗮𝗻𝗱 𝘁𝗵𝗿𝗶𝘃𝗲 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲. ✨

06/05/2026

Leaving the NICU is a huge milestone – but for many families, it is 𝗻𝗼𝘁 𝘁𝗵𝗲 𝗲𝗻𝗱 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘁𝗼𝗿𝘆. 💛

After a very preterm birth, health and development keep unfolding over time. A child may seem to be doing well in one stage and later need different kinds of support as new challenges appear – for example in learning, attention, emotional regulation, or everyday functioning.

That does not make the earlier progress less real. It just means that development is not always something we can fully understand all at once. Some questions only become visible later, when children grow into new stages of childhood. 🌱

This is one reason long-term follow-up matters so much. 𝗙𝗼𝗿 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀, 𝘁𝗵𝗲 𝗷𝗼𝘂𝗿𝗻𝗲𝘆 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗼𝗳𝘁𝗲𝗻 𝗰𝗼𝗻𝘁𝗶𝗻𝘂𝗲𝘀 𝘄𝗲𝗹𝗹 𝗯𝗲𝘆𝗼𝗻𝗱 𝗱𝗶𝘀𝗰𝗵𝗮𝗿𝗴𝗲 – and that broader picture deserves attention, understanding, and research. ✨

29/04/2026

𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗮𝗿𝗲 𝗼𝗳𝘁𝗲𝗻 𝘁𝗵𝗲 𝗼𝗻𝗲𝘀 𝘄𝗵𝗼 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝘁𝗵𝗲 𝗳𝘂𝗹𝗹 𝗷𝗼𝘂𝗿𝗻𝗲𝘆 – not just one appointment, one specialty, or one moment in time. 💛 That means they may notice things that are harder to see from within a system that is often divided into separate steps, services, or follow-up stages.

For example, a child may seem to be doing well early on, and then later need different kinds of support with development, learning, behavior, or health. By that point, the earlier picture may no longer tell the whole story. And the professionals involved later may not automatically have access to that background. A pediatrician – or later a doctor caring for a teenager or young adult – may not know their patient was born very preterm and may not think to ask.

Each part may make sense on its own – but the bigger picture can still feel uneven. That perspective matters. 𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗼𝗳𝘁𝗲𝗻 𝘀𝗲𝗲 𝘄𝗵𝗲𝗿𝗲 𝗰𝗮𝗿𝗲, 𝗳𝗼𝗹𝗹𝗼𝘄-𝘂𝗽, 𝗼𝗿 𝗶𝗻𝗳𝗼𝗿𝗺𝗮𝘁𝗶𝗼𝗻 𝗱𝗼 𝗻𝗼𝘁 𝗳𝘂𝗹𝗹𝘆 𝗰𝗼𝗻𝗻𝗲𝗰𝘁 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲. And that can help show where research and systems still need better answers. 🌱

This is one reason family voices are so important in research – they bring continuity, lived experience, and insight into parts of the journey that may otherwise remain harder to see. ✨

22/04/2026

When research tries to answer big questions about life after very preterm birth, 𝗼𝗻𝗲 𝘀𝘁𝘂𝗱𝘆 𝗶𝘀 𝘂𝘀𝘂𝗮𝗹𝗹𝘆 𝗻𝗼𝘁 𝗲𝗻𝗼𝘂𝗴𝗵. 🌱 That is why 𝗜𝗠𝗣𝗥𝗢𝗩𝗘 𝗣𝗥𝗘𝗧𝗘𝗥𝗠 𝗯𝗿𝗶𝗻𝗴𝘀 𝘁𝗼𝗴𝗲𝘁𝗵𝗲𝗿 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝘁 𝗸𝗶𝗻𝗱𝘀 𝗼𝗳 𝗱𝗮𝘁𝗮 – for example from trials, follow-up studies, hospital data, and registers. Each of these can show part of the picture.

But there is another challenge: 𝗻𝗼𝘁 𝗮𝗹𝗹 𝗱𝗮𝘁𝗮 𝗶𝘀 𝗱𝗲𝗳𝗶𝗻𝗲𝗱 𝗶𝗻 𝘁𝗵𝗲 𝘀𝗮𝗺𝗲 𝘄𝗮𝘆. Take lung health as an example. Two studies may both say they are looking at lung health, but they may not mean exactly the same thing. One study might define a good outcome as no respiratory problems at all, while another might define it as minor issues that can be managed with medication and follow-up. Both are studying something important – but they are not measuring it in exactly the same way.

That means researchers have to be very careful before comparing results or drawing conclusions. 𝗠𝗼𝗿𝗲 𝗱𝗮𝘁𝗮 𝗵𝗲𝗹𝗽𝘀 – 𝗯𝘂𝘁 𝗼𝗻𝗹𝘆 𝗶𝗳 𝗶𝘁 𝗶𝘀 𝗵𝗮𝗻𝗱𝗹𝗲𝗱 𝘁𝗵𝗼𝘂𝗴𝗵𝘁𝗳𝘂𝗹𝗹𝘆 𝗮𝗻𝗱 𝗽𝗿𝗲𝗰𝗶𝘀𝗲𝗹𝘆. 🧩

This is part of what IMPROVE PRETERM is doing: bringing different kinds of data together, while also doing the meticulous work needed to make those comparisons meaningful over time. ✨

Learn more on our website: https://improve-preterm.eu/

15/04/2026

Families often want clear answers about what helps – not only at birth, but later on, too. 💛

But some of the most important questions in very preterm care are 𝗵𝗮𝗿𝗱 𝘁𝗼 𝗮𝗻𝘀𝘄𝗲𝗿 𝗾𝘂𝗶𝗰𝗸𝗹𝘆. For example, a treatment may help with an urgent medical challenge at birth and become part of routine care. But that does not always mean we already fully understand how it may relate to 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁, 𝗹𝗲𝗮𝗿𝗻𝗶𝗻𝗴, 𝗼𝗿 𝗵𝗲𝗮𝗹𝘁𝗵 𝗶𝗻 𝗹𝗮𝘁𝗲𝗿 𝗰𝗵𝗶𝗹𝗱𝗵𝗼𝗼𝗱. Those questions often take years to study.

That is partly because 𝗹𝗼𝗻𝗴-𝘁𝗲𝗿𝗺 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗶𝘀 𝗱𝗶𝗳𝗳𝗶𝗰𝘂𝗹𝘁 𝘁𝗼 𝗱𝗼. Children grow and change over time. Outcomes do not always appear early. Families move, health systems differ, and follow-up is not always consistent. And on top of that, 𝗹𝗼𝗻𝗴-𝘁𝗲𝗿𝗺 𝘀𝘁𝘂𝗱𝗶𝗲𝘀 𝗮𝗿𝗲 𝗼𝗳𝘁𝗲𝗻 𝗵𝗮𝗿𝗱𝗲𝗿 𝘁𝗼 𝗳𝘂𝗻𝗱, even though they are essential for understanding what happens beyond the NICU. 🌱

This is one reason why 𝗲𝘃𝗶𝗱𝗲𝗻𝗰𝗲 𝗴𝗮𝗽𝘀 can remain – even in areas that matter deeply to families and healthcare professionals alike. 𝗧𝗵𝗲 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻 𝗶𝘀 𝗼𝗳𝘁𝗲𝗻 𝗻𝗼𝘁 𝘄𝗵𝗲𝘁𝗵𝗲𝗿 𝘀𝗼𝗺𝗲𝘁𝗵𝗶𝗻𝗴 𝗺𝗮𝘁𝘁𝗲𝗿𝘀, 𝗯𝘂𝘁 𝘄𝗵𝗲𝘁𝗵𝗲𝗿 𝘄𝗲 𝗵𝗮𝘃𝗲 𝗵𝗮𝗱 𝘁𝗵𝗲 𝘁𝗶𝗺𝗲, 𝘁𝗼𝗼𝗹𝘀, 𝗮𝗻𝗱 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝘁𝗼 𝘀𝘁𝘂𝗱𝘆 𝗶𝘁 𝘄𝗲𝗹𝗹 𝗼𝘃𝗲𝗿 𝘁𝗵𝗲 𝗹𝗼𝗻𝗴 𝘁𝗲𝗿𝗺. ✨

08/04/2026

Sometimes, families are told different things at different moments – and that can be really hard to make sense of. 💛

For example, one doctor might say a child is doing well and seems to be developing as expected, while later on, a different professional may raise concerns about learning, behavior, or follow-up support. Both conversations can be honest – but 𝗵𝗲𝗮𝗿𝗶𝗻𝗴 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝘁 𝗺𝗲𝘀𝘀𝗮𝗴𝗲𝘀 𝗼𝘃𝗲𝗿 𝘁𝗶𝗺𝗲 𝗰𝗮𝗻 𝘀𝘁𝗶𝗹𝗹 𝗳𝗲𝗲𝗹 𝗰𝗼𝗻𝗳𝘂𝘀𝗶𝗻𝗴.

One reason for this is that 𝗵𝗲𝗮𝗹𝘁𝗵 𝗮𝗻𝗱 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁 𝗮𝗳𝘁𝗲𝗿 𝘃𝗲𝗿𝘆 𝗽𝗿𝗲𝘁𝗲𝗿𝗺 𝗯𝗶𝗿𝘁𝗵 𝗱𝗼 𝗻𝗼𝘁 𝗮𝗹𝘄𝗮𝘆𝘀 𝗳𝗼𝗹𝗹𝗼𝘄 𝗮 𝘀𝘁𝗿𝗮𝗶𝗴𝗵𝘁 𝗹𝗶𝗻𝗲. Some questions only become clearer with time, and not every important issue has a simple answer right away. That does not mean families are overthinking things – it means this is an area where 𝗯𝗲𝘁𝘁𝗲𝗿 𝗲𝘃𝗶𝗱𝗲𝗻𝗰𝗲 𝗶𝘀 𝘀𝘁𝗶𝗹𝗹 𝘂𝗿𝗴𝗲𝗻𝘁𝗹𝘆 𝗻𝗲𝗲𝗱𝗲𝗱. 🌱

At IMPROVE PRETERM, we want to help make that bigger picture easier to understand. When answers feel incomplete or change over time, that is often part of a broader system challenge – not something families are imagining. 🤍

Improve Preterm

03/06/2026

27/05/2026

20/05/2026

17/05/2026

13/05/2026

06/05/2026

29/04/2026

22/04/2026

15/04/2026

08/04/2026

Adresse

Webseite

Benachrichtigungen

Verknüpfungen

Teilen

Kategorie