08/09/2019
Y O L O
People who do not suffer from sickle cell may never truely understand the physical, psychological and emotional pains we warriors go through and that is quite acceptable to me. So I try as much as possible to create awareness about sickle cell disorder.
In other words, my awareness knows no boundaries. I suffer from this and I know what it feels like and what it is!. No exact words can explain the pains we go through, medical doctors cannot explain it, warriors cannot explain it . Its beyond words and human comprehension. The stress our parents, relatives , friends and those in relationships with sickle cell warriors go through, cannot be described.
I'm on my bed waiting for the day I will walk again. Creating awareness on this deadly blood disorder. Not because I want to be on my bed, but because I have been conditioned by sickle cell .Every day is a struggle to reach the light at the end of the tunnel. A day without pain is a good day
The battle is mine and mine alone. It can never be shared! The support is there but for now long? Sickle cell attacks every part of the body without notice. It comes really hard ,fierce like it's angry with you for something you are not aware of ..All you can do is cry, pray you get by with medications and look up to God. You become a tenant in your body because you have no control over it.
It decides when you are to be happy, healthy , to be in a good state of mind , to walk , sit down or sleep,even your appetite. It affects your job, relationships, education. It affects everything NEGATIVELY. We lost one of our own again yesterday and that is just the one I am aware of. Oh dear SICKLE CELL IS NASTY😭😭. What about those UNKNOWN WARRIORS?
Please talk to people, your friends, relatives , those unmarried, intending couples. Spread the word in churches, mosques, schools, your work places, market places,... wherever you can spread the word. We are tired of new born babies, having sickle cell disorder.We are tired of burying those already living with it
We are tired of pains and the hurt our loved ones go through, because of us.
We are shouting but people are not listening.
Love is not enough
Religious faith or belief is not enough
Lab results excuses are not enough. Go to 2 or more different labs to do your genotype testing.
YOU ONLY LIVE ONCE but dont LIVE IT BY HAVING CHILDEEN WITH SICKLE CELL ANAEMIA
Sickle cell kills
sickle cell awareness month