Chronically M.E

Chronically M.E A personal blog about daily life with chronic illness. Sharing experiences, issues and more about the chronic illness community and disability in general.

It feels good to be back writing again, a quick update on me and what I intend to do next.
17/06/2022

It feels good to be back writing again, a quick update on me and what I intend to do next.

It feels like it's been a while since I wrote last, for that I can only apologise! Life seems to run away with me sometimes and it certainly has run away over the last couple of months. After three years of work and dedication I am proud to say I have finally finished my degree in Theology and Philo...

The joys of disabled access 😂
08/03/2022

The joys of disabled access 😂

Oh dear! I wont brave that!

Just a quick hello from me to day I am still here! I hope to be back writing again soon, however for now I am working my...
01/03/2022

Just a quick hello from me to day I am still here! I hope to be back writing again soon, however for now I am working my very tired butt off doing uni work. 🤯🥱😇

Just a quick note to you all as I haven't been able to post as frequently as I would like! My health has been pretty rubbish so far this year, I'm struggling with a lot of flare ups and having a poor immune system leading to me catching all sorts of bugs and infections (not fun!) I am also in the fi...

I am so proud to announce that I have won The Twenty First Century Emily Dickenson Award for my poetry anthology. Please...
12/02/2022

I am so proud to announce that I have won The Twenty First Century Emily Dickenson Award for my poetry anthology. Please take a look below at my blog for a sneak peak of one of those poems, as inspired by my Aunt Dawn Wood.

"If I feel physically as if the top of my head were taken off, I know that is poetry"- Emily Dickenson From the end of November till mid December of 2021 I participated in a poetry challenge. The challenge being to write a poem a day for 21 days, then submitting the anthology at the end of the perio...

21/01/2022

Woke up this morning with a typical M.E flare up, all I wanted is to sleep all day. But now I'm actually trying to sleep I'm wide awake 🤦‍♀️

This is so wonderful 💖  Bonnar raised money for Action for ME, acharity that supports people like me with M.E, while rai...
16/01/2022

This is so wonderful 💖 Bonnar raised money for Action for ME, acharity that supports people like me with M.E, while raising money and recognition of the research needed to understand the condition better.

The Edinburgh-born actor was appearing on Celebrity Catchphrase tonight and won top prize, and decided to donate the winnings to a special ME charity close to his heart.

I can't explain how frustrating it is to feel absolutely exhausted after doing minimal work. I have an assignment to do ...
07/12/2021

I can't explain how frustrating it is to feel absolutely exhausted after doing minimal work. I have an assignment to do for uni, but after a trip to the doctors today I've used up all my energy. Here's to hoping a nap will give me some energy to do a little work. 😴

30/11/2021

.on.wheels

The symptoms of fibromyalgia include widespread pain (different countries have different definitions of what this exactly means), fatigue, sleep disturbances, “fibrofog” and other cognitive issues, muscle twitches and spasms, bowel issues, and palpitations.

The cause is unknown although several theories are based on it being a pain processing error within the brain and/or spinal cord. Fibromyalgia may be triggered by prolonged stress, an infection, or a physical event such as witnessing something traumatic.

Around 1 in 20 people may have fibromyalgia, although this is an estimate as it often goes undiagnosed. Those assigned female at birth are much more likely to be diagnosed with fibromyalgia. It can occur at any age, but is more prevalent in 30-50 year olds. There is no cure for fibromyalgia, and treatment is to help control symptoms.

This is an incredibly painful disease. Being in constant pain is exhausting and debilitating.

Fibromyalgia is often misunderstood by the general population (and some doctors) who believe it to be a psychological condition. It is not. It has been shown to be a disease of the musculoskeletal system and connective tissue.

[ID: An illustrated infographic entitled “fibromyalgia awareness”. There is a kawaii character in the centre with pink bobbed hair, a yellow jumper, rusty red trousers, and grey shoes. Around her are various white bubbles containing green and rust orange text. The text in the bubbles is the same as the main caption text. The background is pale blue.]

25/11/2021

Currently in the wicked flare up. Pain, exhaustion, brain fog its all there and it's all causing me to be stuck in bed. I wish that were a relief but I have uni work that needs to be done as well as orders for the business ☹

16/11/2021

This was simply beautiful on Saturday.

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