Haemnet

Haemnet works at the heart of the bleeding disorders community.

We're a specialist consultancy, engaged in research, communications, community education and support. Haemnet is a specialist research and communications consultancy embedded in the bleeding disorders community. We undertake research relevant to patients and their families, we communicate on the things that matter in bleeding disorders, and we enable the community to share their experience to expand knowledge.

28/05/2026

🔵 New episode of Haemcast out now!

From teamwork and living in the moment to what's missing in terms of support, the next episode in our special collaboration with Local families with bleeding disorders explores the experiences of partners of people with a bleeding disorder.

🎧 Search for Haemcast on your favourite podcast platform or tune in here: https://loom.ly/Aag-rjQ

22/05/2026

❓Interested to hear more about family life with a bleeding disorder?

❤️ Three episodes of our special family-focused collaboration with Local families with bleeding disorders are now available on — and the next one is coming soon!

🎧 Catch up on your favourite platform or via the link.

🔗 https://loom.ly/A4UWu6M

19/05/2026

There's a strong theme among April's top ten most read articles in Bleeding Disorders: Care & Practice, alongside , , a case study, and the cross-generational impact of .

Interested to know more?

Visit https://loom.ly/uIXcNF8

12/05/2026

Empowered Nurses Save Lives

That’s the message for International Nurses Day 2026.

When it comes to the role of nurses in bleeding disorders care, who better to talk to than Dr Kate Khair, who earlier this year received a World Federation of Hemophilia International Volunteer Award.

On the Haemnet blog, read about the background to Kate’s award, experiences that motivated her as a volunteer, and her thoughts on the difference nurses make in improving bleeding disorders care worldwide: https://loom.ly/K4dPAKs

11/05/2026

❓Did you know about International Heavy Menstrual Bleeding Day?

⭕ Now in its third year, IHMB Day on 11 May aims to raise awareness of the need for better management of heavy periods, and to address its impacts on health and quality of life.

❗Living with heavy periods is not "just one of those things" or "just part of being a woman".

❗Heavy periods can affect physical health, work, education, social life, everyday activities, and mental and emotional wellbeing.

❗Numerous women with bleeding disorders have told us about their experiences of heavy menstrual bleeding, and we understand just how disruptive and debilitating it can be.

♥️ Individualised care relevant to different life stages can make a huge difference.

(Animation based on a real life story told to Haemnet as part of the Cinderella study. Animation: WovenInk. Artist: Giulia Coppola. Voice-over: Kirsty Hine. https://loom.ly/AvzZ0NU)

06/05/2026

We've loved catching up with more poetry reading from the Local families with bleeding disorders 'Bleeding and Belonging' collection — this time on the radio!

You can hear Local families members reading their poems, with an introduction by Rich Gorman, on the April edition of West Wilts Radio's 'The Poetry Place', hosted by Dawn Gorman. Listen here: https://loom.ly/S4kDcyM

The collection is available to read online via the Brighton and Sussex Medical School website: https://loom.ly/z2x2Wtc

For more on 'Bleeding and Belonging' and how the Local families group got involved in writing poems about family life with a bleeding disorder, you can read Lisa Steadman's blog for here: https://loom.ly/RPWSA94

30/04/2026

Making a treatment choice for haemophilia for your child or yourself?

What matters to you most?

Out now, the next episode in Haemcast's collaboration with Local families with bleeding disorders looks at what drives treatment choices.

Three parents discuss their experiences, and how easy — or not — it is to access new treatments, including a mother considering her own haemophilia treatment.

Available widely on podcast platforms, or listen here: https://loom.ly/A-Xo9A0

23/04/2026

Topics in the Bleeding Disorders: Care & Practice top ten articles for March include patient experiences of treatment, haemophilia gene therapy and quality of life.

Explore the BDCP archives, open access, here: https://loom.ly/uIXcNF8

20/04/2026

🇲🇾 Are you attending ?

Bleeding Disorders: Care & Practice's new Editor-in-Chief, Maria Santaella, will be there.

If you'd like to find out more about the journal, you can connect with Maria via the conference app.

17/04/2026

If you live with a bleeding disorder but don't have a diagnosis, how can you access the care and treatment you need?

Bleeding disorders can have significant impacts on health and quality of life, and can be life-threatening. But globally, over 75% of people with a bleeding disorder aren't diagnosed.

On , we're joining the call to improve bleeding disorders diagnosis worldwide.

Diagnosis: first step to care.

Read our blog here: https://loom.ly/ZKyP0To

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