FibroSupport - Wales

29/05/2026

Our new Fibromyalgia Patient Passport helps people communicate their condition, symptoms, medications, and support needs clearly and confidently.

Designed to support better understanding, reasonable adjustments, and easier healthcare interactions.

Together, we give people a voice.

28/05/2026

We are delighted and incredibly proud to officially announce our new partnership with HACT as we continue to strengthen and expand the support available to our clients and wider communities.

HACT is a specialist housing and social impact organisation working across the UK housing sector to improve outcomes for residents through research, innovation, and practical support tools. A key part of their work focuses on addressing fuel poverty and supporting social housing tenants, particularly those on prepayment meters during the ongoing cost-of-living and fuel crisis. Through initiatives such as fuel voucher schemes and data-led support systems, HACT helps housing providers deliver targeted financial assistance to vulnerable households, ensuring that those most in need receive timely help with energy costs and essential living expenses.

This partnership represents a significant and positive step forward in our ongoing commitment to delivering high-quality, person-centred support that empowers individuals and families to improve their wellbeing, reduce financial pressure, and access the help they need during challenging times. By working alongside HACT, we will be better equipped to support tenants facing fuel poverty, enhance the distribution of emergency fuel vouchers, and strengthen the practical assistance available to those struggling with energy costs.

Collaboration is essential in creating meaningful and lasting change, particularly during periods of financial hardship affecting so many households. By partnering with organisations that share our values and commitment to social impact, we aim to ensure support is not only responsive but also targeted and effective, reaching those who are most vulnerable within our communities.

We are excited about the opportunities this partnership brings and the real difference it will make to the lives of the people we support. Together with HACT, we are committed to improving wellbeing, reducing hardship, and ensuring that no one is left without the essential support they need during the fuel and cost-of-living crisis.

We would like to extend our sincere thanks to HACT for their collaboration, expertise, and shared commitment to supporting social housing tenants across the UK. We look forward to building a strong and impactful partnership that delivers practical help and lasting positive change for individuals and families now and in the future.

23/05/2026

With warmer weather approaching, it’s important to be aware that certain medications used in conditions such as fibromyalgia can increase sensitivity to heat, dehydration, dizziness, fatigue, and overheating.

For many people living with chronic illness, including members of FibroSupport-Wales, hot weather can intensify everyday symptoms and make management more challenging.

𝙋𝙡𝙚𝙖𝙨𝙚 𝙧𝙚𝙢𝙚𝙢𝙗𝙚𝙧 𝙩𝙤:
• 𝑆𝑡𝑎𝑦 𝑤𝑒𝑙𝑙 ℎ𝑦𝑑𝑟𝑎𝑡𝑒𝑑 𝑡ℎ𝑟𝑜𝑢𝑔ℎ𝑜𝑢𝑡 𝑡ℎ𝑒 𝑑𝑎𝑦
• 𝑅𝑒𝑠𝑡 𝑎𝑛𝑑 𝑝𝑎𝑐𝑒 𝑦𝑜𝑢𝑟𝑠𝑒𝑙𝑓 𝑤ℎ𝑒𝑛 𝑛𝑒𝑒𝑑𝑒𝑑
• 𝐾𝑒𝑒𝑝 𝑐𝑜𝑜𝑙 𝑤ℎ𝑒𝑟𝑒 𝑝𝑜𝑠𝑠𝑖𝑏𝑙𝑒 (𝑠ℎ𝑎𝑑𝑒, 𝑓𝑎𝑛𝑠, 𝑐𝑜𝑜𝑙 𝑐𝑙𝑜𝑡ℎ𝑠)
• 𝐴𝑣𝑜𝑖𝑑 𝑝𝑟𝑜𝑙𝑜𝑛𝑔𝑒𝑑 𝑒𝑥𝑝𝑜𝑠𝑢𝑟𝑒 𝑡𝑜 𝑑𝑖𝑟𝑒𝑐𝑡 ℎ𝑒𝑎𝑡
• 𝑆𝑝𝑒𝑎𝑘 𝑤𝑖𝑡ℎ 𝑦𝑜𝑢𝑟 𝐺𝑃 𝑜𝑟 𝑝ℎ𝑎𝑟𝑚𝑎𝑐𝑖𝑠𝑡 𝑖𝑓 𝑦𝑜𝑢 ℎ𝑎𝑣𝑒 𝑐𝑜𝑛𝑐𝑒𝑟𝑛𝑠 𝑎𝑏𝑜𝑢𝑡 𝑦𝑜𝑢𝑟 𝑚𝑒𝑑𝑖𝑐𝑎𝑡𝑖𝑜𝑛

𝖲𝗎𝗉𝗉𝗈𝗋𝗍, 𝖺𝗐𝖺𝗋𝖾𝗇𝖾𝗌𝗌, 𝖺𝗇𝖽 𝗌𝗆𝖺𝗅𝗅 𝖺𝖽𝗃𝗎𝗌𝗍𝗆𝖾𝗇𝗍𝗌 𝖼𝖺𝗇 𝗆𝖺𝗄𝖾 𝖺 𝖻𝗂𝗀 𝖽𝗂𝖿𝖿𝖾𝗋𝖾𝗇𝖼𝖾 𝖽𝗎𝗋𝗂𝗇𝗀 𝗐𝖺𝗋𝗆𝖾𝗋 𝗆𝗈𝗇𝗍𝗁𝗌.

22/05/2026

Today, we remember the 22 innocent lives lost in the Manchester Arena bombing on 22 May 2017, and we hold in our thoughts all those who were injured, traumatised, and forever affected by that tragic night.

Nine years on, Manchester continues to stand united in remembrance, resilience, and compassion. The strength shown by survivors, families, emergency services, and communities across the UK will never be forgotten.

At FibroSupport-Wales, we recognise that trauma does not end when the headlines fade. We stand with everyone carrying grief, anxiety, chronic pain, PTSD, and the long-term emotional impact that events like this can leave behind.

Today we remember. Today we reflect. Today we stand together in kindness, solidarity, and hope.

22/05/2026

The UK Government is currently piloting a new initiative called WorkWell, designed to shift the focus away from simply signing people off work with traditional fit notes, and instead towards helping individuals remain in employment through tailored healthcare, wellbeing, and professional support.

Backed by the Department for Work and Pensions and the Department of Health and Social Care, the scheme aims to address long-term sickness, reduce pressure on GPs, and respond to the growing cost of welfare support.

While supporting people to stay in meaningful employment can be positive when the right adjustments, understanding, and flexibility are genuinely in place, it’s equally important that lived experience remains at the centre of these conversations.

For many people living with chronic illness, disability, or fluctuating conditions, work is not simply a matter of motivation — it is often shaped by pain, exhaustion, accessibility, discrimination, and whether appropriate support actually exists.

Any system focused on “keeping people in work” must ensure that compassion, dignity, and individual health needs are never overshadowed by targets or cost-saving measures.

21/05/2026

This evening we had the opportunity to join the Co-Production session hosted by Aneurin Bevan University Health Board, which provided valuable discussions, informative conversations, and an important opportunity to share knowledge and experiences.

The session reinforced the importance of collaboration between healthcare professionals, patients, carers, and communities. Meaningful and lasting change can only be achieved when people work together, listen to one another, and ensure that lived experience helps shape services alongside professional expertise.

Thank you to everyone involved for creating such an open, constructive, and engaging space for discussion and shared learning.

The next Co-Production session for the Health Board will take place on 18th June from 5:00pm–6:00pm.

20/05/2026

Join us at the next Fibromyalgia and Pain co-production meeting hosted by Cardiff and Vale University Health Board

📅 𝑇𝑢𝑒𝑠𝑑𝑎𝑦 2 𝐽𝑢𝑛𝑒
🕙 10:00𝑎𝑚 – 12:00𝑝𝑚

𝑾𝒆 𝒍𝒐𝒐𝒌 𝒇𝒐𝒓𝒘𝒂𝒓𝒅 𝒕𝒐 𝒔𝒆𝒆𝒊𝒏𝒈 𝒚𝒐𝒖 𝒕𝒉𝒆𝒓𝒆.

20/05/2026

The UK Government has announced that the DWP will recruit 500 additional staff to help tackle the growing Access to Work backlog.

For many disabled workers, jobseekers, and employers, support delays have become a serious barrier to employment and workplace accessibility.

If you are still waiting for an assessment, decision, payment, or renewal — you are not alone.

Hopefully this investment leads to faster processing times and better support for everyone relying on the scheme.

Tens of thousands of disabled people needing support to move into or stay in work will have their claims processed quicker, thanks to action taken by the Department for Work and Pensions.

20/05/2026

Join us at the next Aneurin Bevan University Health Board Co-Production Meeting on 𝙏𝙝𝙪𝙧𝙨𝙙𝙖𝙮 21𝙨𝙩 𝙈𝙖𝙮 𝙛𝙧𝙤𝙢 5:00𝙥𝙢 – 6:00𝙥𝙢

The meeting is an opportunity to share ideas, collaborate, and help shape services through co-production and lived experience.

𝑷𝒍𝒆𝒂𝒔𝒆 𝒔𝒆𝒆 𝒕𝒉𝒆 𝒑𝒐𝒔𝒕𝒆𝒓 𝒇𝒐𝒓 𝒇𝒖𝒍𝒍 𝒅𝒆𝒕𝒂𝒊𝒍𝒔 𝒂𝒏𝒅 𝒋𝒐𝒊𝒏𝒊𝒏𝒈 𝒊𝒏𝒇𝒐𝒓𝒎𝒂𝒕𝒊𝒐𝒏.

19/05/2026

🌟 𝐕𝐨𝐭𝐞 𝐟𝐨𝐫 𝐅𝐢𝐛𝐫𝐨𝐒𝐮𝐩𝐩𝐨𝐫𝐭‑𝐖𝐚𝐥𝐞𝐬! 🌟

We’re incredibly proud that FibroSupport‑Wales has been nominated for the Community 𝑶𝒓𝒈𝒂𝒏𝒊𝒔𝒂𝒕𝒊𝒐𝒏 𝑨𝒘𝒂𝒓𝒅 𝒇𝒐𝒓 𝑫𝒊𝒔𝒂𝒃𝒊𝒍𝒊𝒕𝒚 at the National Diversity Awards 2026!

𝘍𝘪𝘣𝘳𝘰𝘚𝘶𝘱𝘱𝘰𝘳𝘵‑𝘞𝘢𝘭𝘦𝘴 𝘱𝘳𝘰𝘷𝘪𝘥𝘦𝘴 𝘦𝘴𝘴𝘦𝘯𝘵𝘪𝘢𝘭 𝘴𝘶𝘱𝘱𝘰𝘳𝘵, 𝘢𝘥𝘷𝘰𝘤𝘢𝘤𝘺, 𝘢𝘯𝘥 𝘤𝘰𝘯𝘯𝘦𝘤𝘵𝘪𝘰𝘯 𝘧𝘰𝘳 𝘱𝘦𝘰𝘱𝘭𝘦 𝘭𝘪𝘷𝘪𝘯𝘨 𝘸𝘪𝘵𝘩 𝘧𝘪𝘣𝘳𝘰𝘮𝘺𝘢𝘭𝘨𝘪𝘢 𝘢𝘤𝘳𝘰𝘴𝘴 𝘞𝘢𝘭𝘦𝘴. 𝘛𝘩𝘳𝘰𝘶𝘨h 𝘱𝘳𝘢𝘤𝘵𝘪𝘤𝘢𝘭 𝘳𝘦𝘴𝘰𝘶𝘳𝘤𝘦𝘴, 𝘢𝘸𝘢𝘳𝘦𝘯𝘦𝘴𝘴‑𝘳𝘢𝘪𝘴𝘪𝘯𝘨 𝘢𝘯𝘥 𝘢 𝘤𝘰𝘮𝘱𝘢𝘴𝘴𝘪𝘰𝘯𝘢𝘵𝘦 𝘤𝘰𝘮𝘮𝘶𝘯𝘪𝘵𝘺, along with financial assistance we are 𝘮𝘢𝘬ing 𝘢 𝘳𝘦𝘢𝘭 𝘥𝘪𝘧𝘧𝘦𝘳𝘦𝘯𝘤𝘦 𝘪𝘯 𝘱𝘦𝘰𝘱𝘭𝘦’𝘴 𝘭𝘪𝘷𝘦𝘴 𝘦𝘷𝘦𝘳𝘺 𝘥𝘢𝘺.

👉 𝙑𝙤𝙩𝙚 𝙝𝙚𝙧𝙚:
https://www.nationaldiversityawards.co.uk/awards-2026/nominations/fibrosupport-wales/

Thank you for your support! 🙌

19/05/2026

If you're disabled or have a health condition that affects your mobility, you can apply for a Blue Badge.

You can also apply for a badge if you care for a child who's disabled or has a health condition that affects their mobility.

You can only get a Blue Badge from your local council or at GOV.UK.