04/09/2026
🎗️🧡AVARNI-MAE’S JOURNEY UPDATE 🧡🎗️
Yesterday was another incredibly tough day for our little warrior. 😔🧡
Avarni-Mae was still spiking temperatures roughly every 4 hours, and her CRP had risen to 190, showing just how much inflammation her little body is fighting at the moment.
She has also been having some really bad stomach pains and has been throwing up quite a lot. Because of how much pain and discomfort she has been in, the doctors have put her onto a constant morphine PCA to help keep on top of the pain and keep her as comfortable as possible.
The doctors also think she may have mucositis, which could be contributing to the pain, sickness and difficulty she is having at the moment. She is pooling her saliva and not swallowing very much, which is another indication that her mouth and throat are really struggling. 💔
She also needed a blood transfusion last night, as her blood counts continue to be very low. It was an incredibly difficult night, and unfortunately, there wasn’t much sleep to be had because of the stomach pains and how unsettled she was. 😢
But amongst all of the difficult moments, today has brought us some little positives to hold onto. 🧡
Her CRP has come down from 190 to 174, which is a step in the right direction. Her blood cultures have also not shown anything growing as of yet, which is reassuring, although she is still being very closely monitored and treated because she continues to spike temperatures.
She has needed another platelet transfusion today, as her platelet levels remain very low. She is still spiking temperatures, but thankfully the spikes are now lasting longer than the 4-hour mark, rather than happening as frequently as they were.
And then there is the news we have been waiting so desperately to hear… engraftment is starting to happen. 🥹🧡
Her numbers are slowly starting to come back, which means her new cells are beginning to appear and her little body is starting to show those first signs that the transplant is taking hold. It is still very early, and she has a long road ahead of her, but seeing those numbers slowly rise gives us the biggest glimmer of hope.
She is still incredibly poorly, still fighting infections and complications, and still has so much to get through. But today, we are choosing to focus on the little positives. A drop in CRP. Blood cultures still showing nothing growing. Longer gaps between her temperature spikes. And, most importantly, those first signs of engraftment.
One day at a time. One blood result at a time. One transfusion at a time. One tiny step forward at a time.
We are so unbelievably proud of you, Avarni-Mae. You continue to show us just how strong our little warrior is. 💗🎀
Please keep our girl in your thoughts and prayers as she continues to fight her way through this incredibly difficult part of her journey. 🙏🏻
Come on, Avarni-Mae. Keep fighting, beautiful girl. Your body is starting to do exactly what we have been praying for. 🌸💗
