Just Treatment

Just Treatment We are fighting for a healthcare system where private profit is never put before patients' lives.

🚨The government signed a deal with Trump that doubles NHS spending on new medicines…and now they’re refusing to publish ...
27/08/2026

🚨The government signed a deal with Trump that doubles NHS spending on new medicines…and now they’re refusing to publish their own assessment of what it will cost our health service.

If this deal is good for patients, show us the numbers.

Ministers have admitted to ÂŁ1 billion in costs over this spending review period alone. And independent research shows the deal could move ÂŁ44.7 BILLION out of the NHS and into the pockets of the pharmaceutical industry over the next decade.

The drug companies have “welcomed” the deal. Of course they have. They lobbied for it. Meanwhile the government has said publishing the true cost would “prejudice” trade talks.

This deal was forced through with no transparency, little debate, and no vote in Parliament. It hands Big Pharma and the US government influence over NICE - the independent body that decides which drugs the NHS can afford.

That’s why we’re taking the government to court, alongside Global Justice Now. To back the legal challenge, follow the link in the comments.

🚨Thousands of NHS patients urge GPs to prevent sharing of data with Palantir's platform! Our campaign to kick Palantir o...
19/08/2026

🚨Thousands of NHS patients urge GPs to prevent sharing of data with Palantir's platform!

Our campaign to kick Palantir out of the NHS has reached a critical moment. Right now, the government is deciding whether or not to cancel their ÂŁ330m NHS contract.

Our movement has been piling on the pressure through every possible avenue. That’s why, over the last few weeks, thousands of NHS patients have been writing to their GPs to raise concerns about Palantir.

Why? Because GPs are official 'data controllers', meaning they can control how data flows into other parts of the health system, and can therefore prevent GP patient data from entering Palantir's FDP.

So we created a template letter which asks GP practices to change their Data Sharing Agreements with ICBs to prevent data flowing into Palantir's platform.

Many patients have been sending us the responses they’ve received from their GP surgeries, and these replies show that many GPs share patients’ major concerns about Palantir’s role in the NHS.

Here are just some quotes we’ve seen from GPs across England ⬇️

“I am also totally against Palantir's involvement in the NHS”

“As a GP partnership, we will maintain our stance of refusing to share any practice data until we are forced by law, unless it is appropriate”

“We share the concerns you have raised regarding patient privacy, data protection, and the use of patient information within the NHS”

“We recognise that this is an issue of interest to many patients”

“Your email has prompted us to formally seek additional guidance from the Data Protection Officer service”

A number of practices have confirmed they are reaching out to their local Integrated Care Board for more information and guidance. Others have already confirmed that their local ICB are not currently sharing data with Palantir’s Federated Data Platform.

We can also see that, worryingly, patients are being given contradictory advice about opting out. One GP surgery said 'at present, patients are unable to opt out of the NHS Federated Data Platform' and warned that opting out could affect their care. Another offered to register a Type 1 opt-out for the same purpose. Others just signposted the National Data Opt-Out - the very mechanism the campaign letter points out can be bypassed by NHS England directions. The fact that GP surgeries are so unclear about how the opt out works only emphasises that these mechanism are not fit for purpose.

All of this shows two key things:

1) Our action is being listened to and is ramping up the pressure on GPs and ICBs.

2) It is possible for GPs to take a principled stance on this in order to protect patient data.

So we need to keep up the momentum.

Tens of thousands of people have engaged with our toolkit already. If you haven’t yet written to your GP, find the link in the comments below. If you have received a response from your GP but haven’t shared it with us, please send it over to [email protected] so we can keep track of how this action is being received and acted on!

"It should not be this way in our NHS". In April 2024, after a 3 hour ambulance wait in the early hours, I am “blue ligh...
18/08/2026

"It should not be this way in our NHS".

In April 2024, after a 3 hour ambulance wait in the early hours, I am “blue lighted” into the Royal Sussex County Hospital with a serious cellulitis infection in both legs. I remember little at that point, but ask a patient next to me why we are in ICU – I find out I am near to a fatal outcome. At this point I descend into what I describe as a form of hell.

I am moved into a “Ward” which turns out to be a long room with 8 beds on either side, the gap between each patient is approximately 12 inches, and occupied by men and women with levels of illness that run across the spectrum of clinical need. The room was formerly a store cupboard in which I had previously interviewed members as a trade union representative.

It is a “walk through” from one corridor to another area; it is noisy; it is in no way clean; and then, as now, it is obviously understaffed. I am on two types of IV antibiotics, of which a side effect is needing regular toilet breaks, but I can barely stand let alone walk. Sometimes I manage to use a bottle, but mostly I cannot pull a curtain around and wet myself. The infection is making me delirious and I am scared. The nurses apologise – it is never their fault, and later, even now, I cry for them.

Later that evening I am moved to another A&E “Ward”; a large room, no windows, curtained beds, and I never did manage to find the toilet. I am on a hospital bed which I cannot use as my legs are covered in open blisters and sores – I virtually beg for a chair and the only one available is a hard back one. The next day I threaten to crawl out of the place and go home. Shortly afterwards I am moved to the Infectious Diseases Ward in the newly developed part of the hospital, with an ensuite room, and an adequate but not full staff team. The Ward is down one floor and along a corridor – it is heaven after hell. I cry with relief at my new surroundings, some privacy, and staff who work incredibly hard. Two weeks later, as a result of several letters to the local paper organised by myself, the Trust Chief Executive states that in 2 years’ time A&E will be much improved. If only that was the truth.

20 months later and I experience 4 admissions and each time I experience the disaster that is A&E where it has been repainted and a few walls have been taken. The increased volume of patients shows with every available space taken up, beds stacked behind each other in larger areas and staff run ragged. On this occasion, I am admitted and moved 4 times in 20 hours. With the same medication I need the toilet often. The nearest is out of order, so is the next and the third is two corridors away, often with patients waiting outside. Once, a lovely nurse lets me into a new, fully equipped, empty A&E Ward – she explains that there is no staffing budget to open it.

I suggest to one nurse that she could hold a sheet in front of me whilst I use a bottle – this would not be acceptable to the other patients, apparently, but wetting myself whilst sitting next to them is okay! I have lost all dignity yet again, I am embarrassed beyond anything I have experienced before, and yet I am lucky. I have several family members and friends that maintain a presence through the day. Most patients, the majority elderly, are not visited at all.

After 20 hours, the one thing I have left is desperation. I cannot do this anymore. I stumble to the island in the middle of this large room where the doctors, consultant and admin are based. I stand patiently for 15 minutes knowing that I have been seen, then loudly ask to see the consultant as I have a complaint. I explain all of the above to him and his response is to ask if I am refusing treatment. I am not. I say I am going outside to take a break - in fact, I need the toilet in A&E reception (it is never clean, but needs must) and with my sister's help I make it.

Five minutes later a porter appears to say I am going to the Infectious Diseases Ward, that my belongings are being collected so I do not need to return to my place in the Department. I like to think this move was about to be communicated to me – the evidence says the opposite as when I get to the ID ward, no room is ready and the one I do go to is musty (but it is not A&E).

Guilt, anger, embarrassment and exhaustion. My experiences have destroyed a part of me. A&E needs major investment; not in 2 years, but right now. We could build temporary hospitals during Covid, so why not now in a crisis? Not to do so is a political decision that lies at the top of government. Britain is the fifth-largest economy in the world, yet our NHS A&E departments are like war zones. We - myself, patients, staff - paid National Insurance all our lives to, amongst other things, be looked after “From the Cradle to the Grave” (Aneurin Bevan). It is time to take a stand and defend a public health service but also to improve it. It does not have to be this way.

This blog is written by Alex Knutsen, a retired trade union representative and Just Treatment supporter based in the South East of England.

13/08/2026

😷US data giant Palantir got a foothold in the NHS during COVID, on a £1 contract,to ‘help manage NHS data and resources'.

🤑They now have unprecedented access to OUR data via a contract worth £330 million.

We stand alongside our friends at to tell Government: kick Palantir out of the NHS.

Sign up to join the protest at https://keepournhspublic.com/events/

🚨The Financial Times has found that at least six senior NHS leaders have financial or professional links to Palantir, th...
07/08/2026

🚨The Financial Times has found that at least six senior NHS leaders have financial or professional links to Palantir, the US company holding the £330m contract to build the NHS's national data platform.

One sat on Palantir's UK health advisory board for three years while serving as a director at University Hospital Southampton and deputy chair of the Isle of Wight NHS Trust. Another advised Palantir through a lobbying firm while chairing four London hospital trusts, and told fellow executives that GP patient data should be added to the company's platform. A senior NHS England director responsible for the health service's national tech strategy held Palantir shares until 2024.

David Rowland of the Centre for Health and the Public: "There is no good reason for any senior NHS official to own shares in a company that holds an NHS contract, and such holdings should be banned outright."

This lands on top of what was already shown this year. The data used to claim the platform is working was full of errors. NHS England has admitted it does not prove Palantir's effectiveness. A government adviser criticised NHS England for failing to disclose that Palantir staff could access identifiable patient records.

Your health record is some of the most personal information that exists about you. Decisions about who handles it should be made in the open.

The contract comes up for renewal next spring, and ministers will choose whether to end it. The government must scrap Palantir's contract - trigger the break clause!

06/08/2026

Patients let down by the NHS have written to new Health Secretary Yvette Cooper.

We've asked her to meet us and discuss the solutions our desperately needs. Share this and help build the pressure.

For families on the Isle of Wight, ambulance delays are even more costly...In 2018 I lost my dad, after watching him tur...
04/08/2026

For families on the Isle of Wight, ambulance delays are even more costly...

In 2018 I lost my dad, after watching him turn into a shell of himself, sick for most of my childhood. But this isn’t my dad’s story; this is the story of a family left behind six years after his death, and of a husband and wife reunited in death.

In autumn 2024, I had recently graduated from university. My brother was moving to Australia, another brother was coming down from Germany for a week, and one of my sisters was on holiday in Greece. Less than a week after my brother left to go back to Germany, I was home alone with my mum when she collapsed. I immediately called 999 and was told to stay with her and that an ambulance was en route.

In my panic, I messaged our family group chat, forgetting that three out of six children were not in the country. The siblings who were able to came to the house. As my mum's condition worsened, we called the 999 operator again and again. Each time we were assured that an ambulance was en route. We lived only five minutes away from the hospital, and at no point were we advised to take our mother ourselves even though this would have been quicker.

Over the course of 45 minutes, we watched in horror as her cognition declined, her hands changed colours, and she broke into a cold sweat. The recommended ambulance response time for a Category A emergency is seven minutes. From her records, we later found that she had been classified in this category from my very first call.

When the paramedics finally arrived, she went almost immediately into cardiac arrest. We were asked to help lift her from the sofa onto the floor. The paramedics then spent a devastating hour performing CPR. During that time, her heart stopped five times.

In this time, the house flooded with paramedics. Cars and ambulances lined the street outside our home. All we could do was watch, while our siblings who were abroad tried to find out what was happening.

After she was stabilised enough to be moved, we were informed that she would be taken by air ambulance. We live on the Isle of Wight, and the only hospital on the island is grossly under-equipped. The closest specialist heart hospital is in Portsmouth which can only be reached by boat or helicopter.

Unfortunately, we found out in her records that the air ambulance ran out of fuel and had to divert to Southampton.

Myself, my sister and brother, along with her husband and our nan, travelled by car ferry. It was an agonising journey. For over an hour, we had no idea whether we would find our mother alive on the other side of the water.

When we finally arrived at the hospital, it took almost four hours before any medical staff could tell us what department she was in, let alone provide an update on her condition. Eventually, we found her in the ICU, attached to tubes, with blood on her teeth and pillow, and a vest around her abdomen to help keep her organs warm.

A doctor took us aside and explained that her condition was critical. She was unstable, and even if she did wake up, there was no way of knowing the extent of any brain damage until then. We were told that multiple blood clots in her lungs had caused the catastrophic heart attack.

I will never forget standing in that room with our mum, and then in the waiting room, juggling phone calls to siblings who were desperate for news. As they scrambled to get back to the UK before anything happened, those of us who were with Mum were told to go home, get some rest, and return the following day. We were told that if we had any questions, we could ring the hospital.

The following morning, the first thing we did was call for an update. The devastating news was that Mum had declined overnight. Her organs were now beginning to fail.

It was on this second day that my brothers and sister made it home. By the evening, although her condition remained critical, she was stable. Once again, we were advised to go home and get some rest. While some family members stayed behind at the hospital, still waiting for one brother to arrive from Australia, the rest of us got on the boat and came home.

Later that evening, we received the call that nobody ever wants to get. We were told that we needed to get back to the hospital immediately. Mum's condition was deteriorating, and it was likely that she would die soon.

The problem was that we were separated by a stretch of water. There was only one ferry left that evening. If Mum died before the ferry arrived, we would not make it in time, and if we missed it, the next crossing would not be until the morning. Thankfully, we made it to the hospital by 2 a.m.

Upon arrival, we were told that the doctors had done everything they could and that treatment was being withdrawn. We then spent the next six hours at her bedside, painfully watching the machines. We were told that when her blood pressure dropped too low, that would be when she passed away.

After what felt like an eternity, a nurse came in and switched the monitors off so that we would stop torturing ourselves by watching them. After six hours by her bedside, my mum passed away surrounded by her six children, our partners, and her mum in an ICU bed.

The Isle of Wight is supposed to be one of the safest places to raise a family and grow old, but I would argue that the limited medical care here makes it not only unsafe but deadly. Patients on the Isle of Wight frequently have to rely on unreliable and expensive ferries to get them to better equipped hospitals, sometimes missing treatment and appointments due to cancelled or delayed ferries. And add in the cost of travelling, with the Solent often referred to as the most expensive stretch of water in the world. Then lifesaving treatment is made inaccessible and creates a postcode lottery for patient care.

I cannot say for certain that if an ambulance had arrived earlier that my mum would still be here, but I can say that at 22 I was not prepared to have lost both my parents. I was not prepared to navigate my early 20s and all that comes with it alone, nor were my siblings. I would do anything to have a hug and catch up with my parents. But I cannot do that, so instead I choose to tell their story and fight so that other families do not have to go through this.

For families on the Isle of Wight, we face additional challenges and financial costs when a family member is transported to a hospital on the mainland due to a lack of resources on the island. As a family we were lucky that we could pull together the hundreds of pounds we spent at short notice, but not everyone can afford that. Subsidised travel would have eased the financial burden we took on.

I wish we would have known that an ambulance coming for my mum was going to take longer - we might have been able to get her there ourselves, but in any event, families like mine and operators telling us to hold on shouldn’t be put in this position. The government needs to tackle the delays in urgent care so that families like mine aren’t left waiting, and with a new cabinet about to be seated there is an opportunity to make sure that change happens fast.

This blog is written by Lauretta, a Just Treatment supporter based on the Isle of Wight.

🚨NHS England has just been forced to revise its figures on Palantir after months of scrutiny from staff. The pressure is...
04/08/2026

🚨NHS England has just been forced to revise its figures on Palantir after months of scrutiny from staff.

The pressure is working. No Palantir in our NHS!

31/07/2026

🚨A GP registrar explains something most patients in England have never been told…

The NHS data opt-out doesn’t apply to Palantir’s software. But your GP practice legally controls your medical records and can block your data being extracted into US spy-tech company Palantir’s NHS England data platform by requiring explicit consent.

Over 80,000 people have already written to their local NHS Trusts objecting, and the government is deciding right now whether to cancel the contract.

If you’re registered with a GP in England, our toolkit has a template letter ready to send. Comment "toolkit" to get the link in your DMs!

30/07/2026

🚨The Prime Minister just promised to fix social care with better pay for care workers and a National Care Service built on NHS principles. Patients have been campaigning with us for years for exactly this. So could it be a turning point?

Only if action starts right now, not in 2027. Patients stuck in hospital corridors and ambulance queues can't wait that long. Just ÂŁ0.5bn a year could free up 8,000 care beds and help end the corridor care crisis.

And Burnham must get serious about the scale of investment required to fix social care. He must fund this vital change by taxing the corporations and super rich, not by cutting the NHS.

If you agree, share this video & help us keep the pressure up.

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The House Of Commons
London
SW1 0AA

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