Keratoconus Self-Help and Support Association

Keratoconus Self-Help and Support Association We are a UK based charity run by a committee all of whom have a passion for helping those with this condition.

We have a Website, Forum, newsletters and Conferences.

Every keratoconus journey is unique - and your story could make a real difference to someone else navigating theirs. 💙Wh...
27/05/2026

Every keratoconus journey is unique - and your story could make a real difference to someone else navigating theirs. 💙

Whether you want to share your diagnosis journey, lens experiences, surgery story, challenges, or words of encouragement, we’d love to hear from you.

By sharing your experience, you could help raise awareness, provide comfort, and remind others in the KC community that they’re not alone. 👁️

If you’d like to be featured in our Member Stories blog or social media channels, submit your story here: https://forms.gle/NhUS5Jdvn6mL2Kvu9

Living with keratoconus can feel overwhelming at times, which is why sharing real experiences from our community matters...
20/05/2026

Living with keratoconus can feel overwhelming at times, which is why sharing real experiences from our community matters so much. 💙

From diagnosis and contact lenses to transplants and everything in between, our member stories remind us that no two KC journeys are the same - and that support and perseverance can make a huge difference.

Read more stories from people living with keratoconus on our website and hear directly from those who truly understand. 👇

https://keratoconus-group.org.uk/Living-with-keratoconus/member-stories/

While eye rubbing has been linked to the progression of keratoconus, it’s important to remember that KC is a complex con...
13/05/2026

While eye rubbing has been linked to the progression of keratoconus, it’s important to remember that KC is a complex condition with multiple contributing factors - including genetics and underlying eye conditions.

Rubbing your eyes occasionally doesn’t mean you will develop keratoconus. 💙

For those living with KC, reducing eye rubbing where possible may help protect the cornea over time. Things like cold compresses, lubricating eye drops, managing allergies, and gently pressing around the eye area instead of rubbing directly can sometimes help ease irritation.

If itching or discomfort is persistent, it’s always best to speak with your eye care professional for advice and support.

Last week, we had the privilege of attending an incredible three-day programme at Hertford Optometry dedicated to specia...
08/05/2026

Last week, we had the privilege of attending an incredible three-day programme at Hertford Optometry dedicated to specialised contact lens practice, keratoconus management, and ocular surface disorders.

From advanced RGP fitting principles and scleral lens design to hands-on practical sessions and real-world case studies, the event brought together expertise, innovation, and collaboration across the field.

It’s inspiring to see continued education and clinical excellence driving better outcomes for people living with keratoconus. Thank you to everyone involved for sharing knowledge, experience, and passion throughout the programme.

🏁 What a day at the London Marathon!A huge congratulations to Tosin, who took on an incredible challenge - running the e...
30/04/2026

🏁 What a day at the London Marathon!

A huge congratulations to Tosin, who took on an incredible challenge - running the entire marathon in full African attire while raising funds for Keratoconus Group 🙌🏾

He narrowly missed his Guinness World Record target by just 10 minutes… but still achieved something amazing by being part of a record-breaking day with the highest number of finishers alongside thousands of other runners 🎉

We’re so proud of his determination, resilience, and commitment to the cause 💙

Thank you to everyone who came out to support, cheer, and donate - you made a real difference. Your energy meant everything!

If you’d still like to continue to support Tosin’s fundraising efforts, you can still donate here: https://2026tcslondonmarathon.enthuse.com/pf/tosin-adebanjo

Being diagnosed with Keratoconus can bring up a lot of questions - and for many people, driving is one of the first worr...
28/04/2026

Being diagnosed with Keratoconus can bring up a lot of questions - and for many people, driving is one of the first worries.

The truth is, many people with keratoconus continue to drive safely with the right vision correction and support. But it is your responsibility to make sure your vision meets legal driving standards and to keep the DVLA informed if required.

If your vision feels unstable right now, it doesn’t mean it will stay that way.

Take it step by step. You’re not alone in this 💙

Join us for our next informal Zoom drop-in, next week, on Thursday 30th April at 7:00pm.Whether you’re newly diagnosed, ...
23/04/2026

Join us for our next informal Zoom drop-in, next week, on Thursday 30th April at 7:00pm.

Whether you’re newly diagnosed, managing keratoconus, or just want to connect with others who understand, this is a relaxed space to ask questions, share experiences, or simply listen.

Everyone is welcome 💙

📅 30th Apr | ⏰ 7:00pm | 💻 Zoom

Email [email protected] to receive the link!

🏃🏾‍♂️✨ The London Marathon is here this weekend!We’re incredibly proud to be cheering on Tosin, who’s not only running t...
22/04/2026

🏃🏾‍♂️✨ The London Marathon is here this weekend!

We’re incredibly proud to be cheering on Tosin, who’s not only running to raise funds for Keratoconus Group - but also attempting a Guinness World Record 👏🏾

His challenge? Completing the entire marathon in full African attire in under 4 hours 30 minutes. An amazing feat for an even more important cause.

If you’d like to come along and show your support, we’d love to see you there:
📍 Meet us at Temple Tube Station
🕛 Sun 26th Apr at 12:30pm

Let’s bring the energy and cheer Tosin all the way to the finish line! 💙

We’re excited to share that Keratoconus Group will be attending Sight Village on 7–8th July!Sight Village is a leading e...
21/04/2026

We’re excited to share that Keratoconus Group will be attending Sight Village on 7–8th July!

Sight Village is a leading event that brings together:
🔹 Technology providers showcasing the latest assistive tech – from screen readers to magnifiers and braille
🔹 Charities and support organisations offering advice, services and community connections
🔹 Employers and educators sharing opportunities for accessible work and study
🔹 Visitors – including blind and partially sighted people and their families – exploring products and support

With a long and proud history, Sight Village continues to connect innovation, expertise and lived experience – helping people access the tools and opportunities they need for independence and inclusion.

👉 If you’re attending, come and say hello – we’d love to meet you!

👁️ “You might need a corneal graft…”If you’ve ever heard those words, you’ll know how overwhelming they can feel.But her...
16/04/2026

👁️ “You might need a corneal graft…”
If you’ve ever heard those words, you’ll know how overwhelming they can feel.

But here’s the reality 👇
✨ Only 1 in 4 people with keratoconus will ever need one
✨ It’s one of the most successful transplant procedures worldwide
✨ Success rates are over 97%

Our friends at Keratoconus GB break it all down in a clear, honest way on their blog - from what a corneal graft actually is, to what surgery and recovery really look like, plus the risks, myths, and life-changing impact it can have.

They also explore the incredible history behind transplants and the life-saving role of organ donation ❤️

👉 If you’re worried about grafts, considering one, or just want to understand more - this is a must-read.

🔗 Read the full blog: https://keratoconusgb.com/what-is-a-corneal-graft-or-transplant/

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