Endometriosis UK

Endometriosis UK Endometriosis UK provide support, information and a community for people affected by endometriosis

linktr.ee/EndometriosisUK

10/06/2026

The APPG on endometriosis has launched an inquiry into endometriosis in the workplace. This is your opportunity to have your say and share your experience of living with endometriosis and how it’s impacted your career.

This could include things like best practice, so if your employer has done something really great to support you, that’s exactly what the APPG wants to hear to inspire other employers to do the same. Or if you’ve had a negative experience, or you’ve had to leave the workplace, or faced challenges in accessing the support you need, this will inspire MPs to understand why they need to make change.

The call for evidence will close on Friday 24th July 2026 and both employees and employers can fill out the survey.

Find the link to the surveys below:

Employees with lived experience - https://www.surveymonkey.com/r/L6YRR6J

Employers - https://www.surveymonkey.com/r/L67CLCR

Have you got questions about Walk for Endo this July? Swipe to see Walk for Endo FAQs answered. If there’s anything we’v...
09/06/2026

Have you got questions about Walk for Endo this July?

Swipe to see Walk for Endo FAQs answered. If there’s anything we’ve missed, pop your questions in the comments below ⬇️

Will you be joining Walk for Endo this July? Register here: https://www.endometriosis-uk.org/walk-endo-2026 💛


Image description:
1. An image of a walk for endo t-shirt on grass with trainers and sunglasses at the top right and endometriosis socks and stickers on the top left of the t-shirt. White text highlighted red reads “Walk for Endo 2026”. Below, red text highlighted yellow reads “FAQs”.
On the next 11 slides, the same image is faded in the background. Text on each slide reads:
2. “What is Walk for Endo? Walk for endo is a fundraising challenge where you walk 9,000+ steps a day throughout July and collect sponsorship.”
3. “Can I start the challenge at any time? We will be encouraging everyone to start their challenge on 1st July and continue throughout the month. However, if you are joining the challenge later or you have missed a few days, you can continue into August or make up the difference with extra steps throughout July.”
4. “What if 9000+ steps a day is too much for me? Don’t worry! If you can’t do your steps one day, why not nominate someone to do them for you and donate. You could get a group together and do a relay with you each taking it in turns to walk on different days. If you need longer to complete your challenge that’s ok too!”
5. “How do I keep track of my steps? Most phones have built in step counters or you can use a fitbit or pedometer to keep a track. If you do have a fitbit, you can link it to your Just Giving page so your supporters can keep track of your progress.”
6. “How do I get my fundraising pack? Your fundraising pack will be automatically sent you one hour after registration. If you haven’t received it please email [email protected]”
7. “How do I set up my JustGiving page? Visit www.justgiving.com/campaign/walkforendo2026 and click ‘start fundraising’. It will take you through step-by-step to set up your own fundraising page.

Continued in the comments…

08/06/2026

Here are 5 ways we can support you 💛

From our local support groups and online support services to our free webinars, we have a variety of support options available for all those affected by endometriosis.

Learn more at endometriosis-uk.org/get-support

Save this post so you can come back it 💛

We asked you to share some love to our volunteers if you have been supported by them. Here’s what you had to say 💛 So ma...
05/06/2026

We asked you to share some love to our volunteers if you have been supported by them. Here’s what you had to say 💛
 
So many of you mentioned how you feel seen and heard and no longer feel alone on your endometriosis journey by accessing our volunteer-led support services. From all of us at Endometriosis UK and the community, thank you to each and every one of our incredible volunteers who offer their time to use their lived experience to support others, we couldn’t do it without you.
 
For more information on our support services and how you can access them, please visit the ‘Get Support’ link in our bio.
 

 
Image description:
1. A picture of a field of flowers. Text over the image reads: “Words from our community to our volunteers. Volunteer Week 2026.”
2. A picture of a field of flowers with red boxes with quotes from the community to the volunteers and a sticky note stuck on at the bottom right corner that reads: “Thank you“. The red boxes with white text read: “the webchat was just what I needed, it was like a weight had been lifted”, “the volunteer on the helpline was so patient and just gave me the space I needed”, “unbelievable help, thank you so much”, “I cannot express what it means to be heard and around people who get it”, “I’m glad there are people and groups like you or I imagine there’d be a lot of people left in the dark, like me! Really helpful!”, “my support group is my lifeline”.

We are wishing our LGBTQIA+ supporters a Happy Pride Month! 

We are excited to be attending Pride Month events across t...
04/06/2026

We are wishing our LGBTQIA+ supporters a Happy Pride Month! 

We are excited to be attending Pride Month events across the UK to raise awareness of endometriosis and the support we offer for LGBTQIA+ communities. 

This year we will be at:
Cardiff Pride 13th June
Edinburgh Pride 20th June
Sheffield Pride 20th June
London Pride 4th July
Belfast Pride 25th July

You can also request an Endometriosis UK Pride pack to host your own information stand at your own local pride event. 

There’s still time to volunteer with us so learn more at the link in our bio today 💛

Thank you to Clare, Rebecca, Ellen and Lizzie for sharing what motivates them in their role as an Endometriosis UK volun...
03/06/2026

Thank you to Clare, Rebecca, Ellen and Lizzie for sharing what motivates them in their role as an Endometriosis UK volunteer. We are so grateful for the work of our amazing volunteers at Endometriosis UK, we couldn’t do it without each and every one of them 💛

Comment a 💛 to show some love for our incredible volunteers as we celebrate them this week (and every week!)

Did you catch Emma Barnett’s BBC Documentary Fighting Endometriosis’ on Monday? Everyone at Endometriosis UK was incred...
03/06/2026

Did you catch Emma Barnett’s BBC Documentary Fighting Endometriosis’ on Monday?

Everyone at Endometriosis UK was incredibly moved by this documentary - which highlighted some of the issues we have been campaigning on for years: reducing diagnosis times, improving access to treatment, and calling for investment in research.

We’d like to say a huge thank you to and the for producing this film, as well as all the incredible women who took part. The film will no doubt highlight to millions why this must become a Government priority, so nobody is robbed of the future they deserve.

You can watch the documentary on BBC iPlayer. Please be aware that the film does contain scenes that you may find distressing – including topics on fertility and su***de. Our support services are here for you if you need them 💛

Read more at endometriosis-uk.org/news.

02/06/2026

Our team are ready to step towards change this July 👏

Will you join us?

Walk 9,000+ steps per day* this July to represent the more than 9 years it takes on average to get a diagnosis of endometriosis in the UK.

Register now at the link in our bio 💛

* if 9,000 steps feels like too much, we encourage you to adapt the challenge and take each day as it comes. You could team up and do a relay or simply adjust the step count. Every step is a step towards greater awareness and understanding of endometriosis 💛

Walk for Endo is back! Our latest diagnosis report revealed that the average wait for an endometriosis diagnosis in the ...
02/06/2026

Walk for Endo is back!

Our latest diagnosis report revealed that the average wait for an endometriosis diagnosis in the UK has risen to 9 years and 4 months. Walk for Endo this July and take on 9,000 plus steps per day to represent this.

We are more determined than ever to come together to take steps towards driving down diagnosis times, improving access to care and expanding support for those with endometriosis, and we hope you’ll join us.

Your fundraising and awareness raising helps us to continue our work providing reliable information resources, vital support services, and campaigning for the change those with endometriosis deserve.

Register for Walk for Endo 2026 today: https://www.endometriosis-uk.org/walk-endo-2026

If 9,000+ steps feels like too much, you can adjust the distance to suit your needs and take each day as it comes.



Image description: An image of a walk for endo t-shirt on grass with trainers and sunglasses at the top right and endometriosis socks and stickers on the top left of the t-shirt. White text highlighted in red reads "Walk for Endo 2026" with a sun emoji at the end. Below, red text highlighted in yellow reads "1st July - 31st July 2026". At the bottom of the image, white text with a red outline reads "free socks and stickers when you raise £25!"

01/06/2026

Happy Volunteers Week!

1-7 June is Volunteers week, a week to recognise and celebrate the essential work of volunteers across the UK. Today, our CEO Emma and Trustees Liz, Catherine and Jenny share this message 💛

Here at Endometriosis UK, volunteers are truly at the heart of all we do. From running our peer support network, to raising awareness with the media and supporting at events, we truly couldn’t do what we do without them.

The majority of our volunteers have endometriosis themselves and their dedication to supporting others with the disease inspires us every day. This week and every single week of the year, we could not be more grateful for those who give their time to keep Endometriosis UK going.

Thank you, thank you, thank you.

Please join us in sharing some love for our incredible volunteers in the comments!

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