Endometriosis UK

Endometriosis UK Endometriosis UK provide support, information and a community for people affected by endometriosis

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Join us on Thursday 24th September 2026 at 7pm for a free to attend webinar on ‘Endometriosis and Imaging’ hosted by Con...
02/09/2026

Join us on Thursday 24th September 2026 at 7pm for a free to attend webinar on ‘Endometriosis and Imaging’ hosted by Consultant Gynaecologist Tom Holland.
 
There will be a Q&A at the end of this webinar. All webinar sessions are recorded and shared to our website as soon as possible following the live session.
 
Register now at the ‘Upcoming webinars’ link in our bio or share this post with someone who might be interested.
 
Image description:
A white background with a cut out photo of a woman using a laptop to the right. On the left, white and red text reads: “Endometriosis and Imaging, free webinar, 24th September, Thursday, 7-8pm”

Help improve endometriosis care worldwide by taking part in the survey by World Endometriosis Organisations. This survey...
01/09/2026

Help improve endometriosis care worldwide by taking part in the survey by World Endometriosis Organisations.

This survey asks about experiences of endometriosis, including diagnosis, treatment, access to care, what matters most to you, and how endometriosis may affect daily life. The purpose of the survey is to better understand people’s experiences, values, preferences, and priorities so that future care, policy, and guidance can better reflect what matters to those affected.

The main section of the survey should take around 10 to 15 minutes. If you choose to continue with the extra sections, the survey may take longer depending on how many you answer.

Take part in the survey here: https://www.surveymonkey.com/r/P53BM8M

An update on our Support Services this Bank Holiday weekend.Our Support Services will be closed on Monday 31st August 20...
28/08/2026

An update on our Support Services this Bank Holiday weekend.

Our Support Services will be closed on Monday 31st August 2026.

If you require support during this time, please reach out to our free online community on HealthUnlocked, available via our website.

If you are distressed and need to speak with someone, you are not alone. The following services are available should you need them:
The Samaritans: emotional support 24/7 in full confidence. Call: 116 123⁠
Mind Support Line: open 9am to 6pm, Monday to Friday (except bank holidays). Call: 0300 102 1234⁠
Shout: text ‘shout’ to 85258 for crisis support over text⁠
Hub of Hope: find support services local to you - hubofhope.co.uk⁠

Our Support Services will resume on Tuesday 1st September 2026. A huge thank you to our support network volunteers from all of us at Endometriosis UK 💛⁠

Image descriptions: Yellow slides with red text. The caption above is split over 4 slides.

27/08/2026

Our webinar on ‘Flares and Pain: Making Sense of the Storm’ is available to watch.
 
Dr Kelly Paull and Ms Nico Boingeanu explain the pain mechanisms in endometriosis, pain management strategies and what triggers flares, and practical techniques for flare management. 
 
Webinar recording available at: endometriosis-uk.org/past-webinars or at the link in our bio

Host a Tea for Endo this Autumn in support of the 1 in 10 with endometriosis.  You can come together with friends, famil...
26/08/2026

Host a Tea for Endo this Autumn in support of the 1 in 10 with endometriosis.

You can come together with friends, family or colleagues for a tea party this October (or another date that suits you) to raise awareness and funds to support the 1 in 10 with endometriosis. Every penny you raise helps us to continue our work providing trusted and reliable information resources, essential support services and campaigning for the change those with endometriosis deserve.

It’s time for tea, time to talk, time for change. Learn more: https://www.endometriosis-uk.org/tea-endo

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Image description:
A photograph shows a table set up for an Endometriosis UK Tea for Endo event. Overlaying the image are two message-style speech bubbles. The first reads: “Fancy a cuppa?” The second message below, reads: “Make that a Tea for Endo💛”

There’s still time to write to your MSP/MS to call for change in Scotland and Wales before they return after summer rece...
25/08/2026

There’s still time to write to your MSP/MS to call for change in Scotland and Wales before they return after summer recess.

Elections recently took place in Scotland and Wales and last month, we launched an e-action for you to call on your newly elected representatives asking them to take action to improve endometriosis care.

Our easy to use online form auto-generates an email for you to send to your MSP/MS by using your address to find your local representatives.

Together we can call for the change you deserve. Fill out the online form: https://secure.endometriosis-uk.org/page/195084/action/1

Image description:
A beige background features a large white sheet of paper pinned in the centre, with two illustrated yellow envelopes at the top corners. Each envelope contains a card displaying an @ symbol. White text highlighted red reads: “There’s still time!”. Below red text reads: “Write to your MSP/MS to call for change to improve endometriosis care in Scotland/Wales using our simple online form.”

Run in support of those with endometriosis this September! We have still have spaces for:Saucony Run Shoreditch Half Mar...
24/08/2026

Run in support of those with endometriosis this September!
 
We have still have spaces for:
Saucony Run Shoreditch Half Marathon - Sunday 20th September 2026
Loch Ness Marathon - Sunday 27th September 2026
 
Get in touch with our Fundraising Team at [email protected] for more information about fundraising targets and how to get involved. We’d love to have you on Team Endometriosis UK 💛

Image description: A runner, Jessie, running in the Saucony London 10K 2026. In the bottom left, a red scribble containing yellow and white text reads “Run for us in 2026”

Starting university and moving away from home can be daunting, and navigating endometriosis alongside these changes can ...
21/08/2026

Starting university and moving away from home can be daunting, and navigating endometriosis alongside these changes can make the experience even more challenging for some. 
 
We asked you to share your tips on navigating endometriosis at university and here’s what you had to say, with tips from our nurses and Programmes Manager too!
 
If you would like us to send resources to your university, please contact [email protected].

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Image descriptions:
1. A picture of a study space fills the background of the slide. A laptop sits on a desk beside an open notebook, while a hand holds a pencil above the page. Red text with a white outline reads: “Navigating endometriosis at university”. Below red text highlighted yellow reads “Tips from our community, nurses and Programmes Manager”. The Endometriosis UK logo appears at the bottom of the slide.
 
2. The same background photo appears on all slides faded out. Text reads: “We asked you to share your tips on navigating endometriosis at university.
Here’s what you had to say...with tips from our nurses and Programmes Manager too!”
 
3.  A graphic displaying several community-submitted messages in text boxes over the faded study space background. Messages encourage students to prioritise their health, rest when needed, and feel comfortable saying no to plans during difficult periods. Other advice includes creating an “endo box”, informing housemates how to help during a flare, choosing seating with easy access to facilities, communicating openly with tutors about attendance and symptoms, and contacting student support services for additional assistance.

4. More community messages over the same faded study space background. Messages encourage students to be kind to themselves, pace social activities, avoid comparing themselves to others, spend time outdoors when possible, seek support from university disability services, and consider tools such as TENS machines to help manage symptoms.

Continued in the comments…

Curious about the effects of diet on endometriosis symptoms? While high-quality evidence is still limited, there is a gr...
19/08/2026

Curious about the effects of diet on endometriosis symptoms? While high-quality evidence is still limited, there is a growing understanding of the role of nutrition for symptom relief. Research is ongoing, and many report that making changes to their diet helps with their endometriosis symptoms. 
 
We have gathered the latest evidence and put it all in one place in our Diet and Complementary Therapies for Endometriosis booklet so you can make an informed decision about what may be worth trying for symptom relief. As always, it is important to remember that what works for one person may not work for another.
 
Read more in our Diet and Complementary Therapies for Endometriosis booklet: endometriosis-uk.org/publications

Image descriptions:
1. A slightly faded picture of Mediterranean diet foods in the background, including tomatoes, almonds, broccoli, blueberries, oats, walnuts, leafy greens and a salmon fillet arranged on white plates. In the centre, white text highlighted red reads: “Endometriosis, Diet and Nutrition”. The Endometriosis UK logo appears at the bottom.
 
2. The same faded Mediterranean food background appears on all slides, featuring tomatoes, almonds, salmon, broccoli, oats, walnuts and blueberries on white plates and surrounding the plates. At the top, red handwritten-style text reads: “Diet and Nutrition”. Two bullet points below read: “You may have read the certain diets can help manage endometriosis symptoms. There is little high-quality evidence for this but there is growing understanding of the role of nutrition for symptom relief. Research is ongoing, and many people report that making changes to their diet helps to relieve symptoms. It is important to note that what works for one person may not work for another.”

Image descriptions continued in comments…

18/08/2026

Endometriosis (end-oh-me-tree-oh-sis) affects 1 in 10 women and those assigned female at birth from puberty to menopause, though the impact may be felt for life. In the UK, that’s over 1.5million living with the disease.
 
Learn to say it, learn about it: endometriosis-uk.org

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