21/02/2024
Does anyone know when the which day is the rarest of days in the year? 🙋🏻♀️ It's 29th of February, a day that only comes once every four years ‼️ This day has also been coined the Rare Disease Day to raise awareness about the > 7, 000 existing rare diseases in the world (according to the National Institute of Health, NIH). 🦠
In commemoration of this day, BAMEdical is collaborating with M4RD to organise an event on this very topic! 🎉The speakers invited to deliver this event are Dr. Laura Furness 🩺, who will be sharing her experience working with patients living with rare diseases, and Mr. Jibreel Arshad 🧍🏽, who will share his story as a patient with lived experience of a rare disease. More information of the speakers are available below.👇🏼👇🏼
We’ll be talking about why it’s important to be ‘rare aware’ as a medical students. 🧑🏾🎓👩🏼🎓Tips on how to approach rare diseases and be prepared for when we qualify, where we may encounter patients living with a rare disease will also be shared through this talk! ✍🏼🤩
Come along to learn more about rare diseases! ✨ Pizzas provided! 🍕Certificates provided! 📜
Event details 🗓️
Title: RARE DISEASE 101
Date: 28th of February 2024
TIme: 6pm - 7.30pm
Location: The HIVE (UoM Student’s Union)
⬇️Speaker Information ⬇️
Dr. Laura Furness 🩺
“I am a clinical genetics registrar with a background in paediatrics. I have an interest in rare disease with a passion for family led care. I have a particular interest in translational medicine with experience delivering clinical research in inherited paediatric disorders. ”
Mr. Jibreel Arshad🧍🏽
“I am a standup comedian living with a rare disease called MPS 4 (Morquio) who will be sharing my story for Rare Disease Day. This is an amazing opportunity to hear firsthand from a patient with lived experience of rare disease.”
