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Apologies for being so so quiet recently! I’ve just had a Port a Cath put in to make treatment easier! As you can see fr...
22/05/2026

Apologies for being so so quiet recently! I’ve just had a Port a Cath put in to make treatment easier! As you can see from the bruise, trying to put a cannula in has become as an issue! This will make taking bloods/giving chemo treatment soooo much easier! 😁

Now I’m just healing, I’m in a bit of pain but other than that doing well 💞

What Cancer do i have? Primitive Neuroectodermal Tumour (PNET) of the o***y is an extremely rare and aggressive cancer t...
14/05/2026

What Cancer do i have?

Primitive Neuroectodermal Tumour (PNET) of the o***y is an extremely rare and aggressive cancer that starts from immature cells that resemble early nerve cells. These tumours are usually found in the brain or bones, so finding one in the ovaries is very unusual. Because it’s so rare, there is limited research and many people, even medically have never heard of it before diagnosis.

Because so few people are diagnosed with it, there is still limited research, no single standard treatment plan, and much of what doctors know comes from individual case reports rather than large studies.

One reason it is so rare is because the ovaries do not normally contain much tissue related to the nervous system. Scientists believe these tumours may develop from:

* very early embryonic-type cells left behind during development, or
* cells inside certain ovarian tumours (such as teratomas) that unexpectedly transform into primitive nerve-like cancer cells.

Doctors often describe ovarian PNET as:

* Fast-growing
* High-grade/aggressive
* Difficult to diagnose because it can look similar to other ovarian cancers
* So rare that there are very few documented cases worldwide

13/05/2026

A bit of a vulnerable one from me.🫶🏼

09/05/2026

It's prime time meme time 🤣

07/05/2026

Long long day having chemo, but we’ve completed cycle 2! 😁

Sending love to anyone who’s going through Cancer or know someone
else going through this journey. 🫶🏼

Let’s be real about chemotherapy… because I wish someone had been this honest with me.Everyone talks about hair loss. Bu...
04/05/2026

Let’s be real about chemotherapy… because I wish someone had been this honest with me.

Everyone talks about hair loss. But chemo is so much more than that.

Some days, you’ll feel almost normal… and other days, it hits you like a brick. The tiredness isn’t just “a bit tired” it’s the kind where your body feels heavy, like even getting up is a task.

Let’s talk about the stuff people don’t always say out loud…

Your stomach and toilet habits? All over the place. One minute you can’t go, the next you really can. Cramps, discomfort, weird digestion it’s unpredictable and honestly just annoying.

Your nails can change too. They might become weak, sore, discoloured, or feel like they’re lifting. It sounds small, but it’s another reminder your body is going through something big.

Your mouth can get sore. Food might taste completely different, things you loved suddenly taste off, metallic, or just not right at all.

Then there’s your mood… and this one’s big. The ups and downs are real. One minute you’re strong and positive, the next you’re overwhelmed, emotional, or just not yourself. And that’s not weakness, that’s everything your body and mind are processing.

Steroids can make you feel constantly hungry, restless, or wired. Sleep can be off. Emotions can feel louder.

And the weirdest part? You might have days where you feel okay… and then question everything, like “is it even working?” but feeling okay doesn’t mean it’s not doing its job.

Chemo is not one straight line. It’s a rollercoaster of good days, hard days, and everything in between.

If you’re going through it, you’re not alone in any of this. Every strange symptom, every emotional swing, every “what is happening to my body” moment… someone else has felt it too.

And if you’re supporting someone through chemo ,just know, there’s so much going on beneath the surface.

Be kind to yourself. Take the good days when they come. And on the hard days, just getting through is more than enough 🤍

01/05/2026

My hair was falling out, I knew it was time to shave it. Feeling a bunch of emotions, I’ve done it once & I can do it again. Hair grows back! 💞

To anyone who’s facing cancer: never give up. Keep going, not just for yourself, but for everyone who believes you will....
29/04/2026

To anyone who’s facing cancer: never give up. Keep going, not just for yourself, but for everyone who believes you will. 💞

I’ve been meaning to share my story properly for a while, for anyone who’s new here or hasn’t heard it from the beginnin...
26/04/2026

I’ve been meaning to share my story properly for a while, for anyone who’s new here or hasn’t heard it from the beginning 🤍

My symptoms started around February/March 2024. I kept going back and forward to my GP and the hospital, but I wasn’t really being listened to. Eventually, everything changed when they found a tumour and confirmed it was cancer.

At first, I was misdiagnosed at MK Hospital with Stage 4 ovarian cancer. They believed it had spread to my liver (on the surface, not inside), my pelvic lymph nodes, spleen, and I had peritoneal nodules. There was also talk that it could be primary peritoneal cancer.

From there, I was passed between hospitals—Milton Keynes, then Northampton, and eventually I was referred to the Royal Marsden in London. Around June/July 2024, I finally got a more accurate diagnosis: Stage 4 Primitive Neuroectodermal Tumour (PNET) arising from my ovaries. Even then, there was still some uncertainty because my cancer is extremely rare and doesn’t behave like typical cancers.

Everything moved very quickly after that. I had major surgery to remove the tumour, along with a full hysterectomy and other affected areas. After recovering, I went straight into BEP chemotherapy. I managed 4 cycles, but it was incredibly tough and had to be stopped due to toxicity.

After that, I had over a year without chemotherapy—from December 2024 to April 2026. During that time, things were stable. My October 2025 scan showed a small amount of growth, which we monitored, but by December 2025 there was further progression in all the original areas.

Because of that, we needed to act again. On April 16th, I started a new round of chemotherapy: carboplatin and paclitaxel.

When I was first diagnosed back in early 2024, I was given a 5-year prognosis. That’s something that naturally sticks with you. The truth is, I don’t have a clear answer on how long I have—and that’s one of the hardest parts of all of this.

What I do know is that I still have treatment options, and I’m taking things one step at a time. If this chemo works and gives me more stability, that would be everything right now.

I won’t lie—I do worry about what happens when the options run out. But for now, I’m focusing on what’s in front of me, and that’s continuing to fight this with everything I’ve got 🤍

24/04/2026

A reminder than surviving the day is enough 💞 ゚viralシfypシ゚

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