Alana’s Epilepsy Mission

Alana’s Epilepsy Mission Follow Alana’s journey raising awareness about seizures and all the many forms and symptoms. Epilepsy⚡️NEAD 🐐 Neurological 🧠 Devon 🇬🇧

08/06/2026

✨ As you may have already seen, we are incredibly honoured to have received the Epilepsy Action Star Award. ✨

When we first started sharing our journey, we never imagined where it would lead. Opening up about some of our hardest days, our fears, challenges, and the reality of living with epilepsy has not always been easy. Being vulnerable can feel uncomfortable, especially when you’re sharing such personal moments with the world.

But we’ve learned that vulnerability is also powerful.

Every story shared helps break down misconceptions, starts important conversations, and reminds other families that they are not alone. Awareness grows when people are brave enough to tell their stories, and we are proud to play a small part in that.

Alana’s Epilepsy Mission has given us purpose during a time when we often felt isolated, overwhelmed, and misunderstood. What began as a way to navigate our own journey has become an opportunity to educate, advocate, and connect with an incredible community of supporters.

This award means so much to us, but the work doesn’t stop here. We are excited to continue this journey, raise even more awareness within our community, and keep shining a light on the realities of epilepsy.

Thank you to everyone who has followed, shared, supported, and stood alongside us. This recognition belongs to all of you too. 💜

Link in the comments if you’d like to read about all we are achieving through Alana’s Epilepsy Mission 💜

08/06/2026

Fabulous feeling to be recognised by Epilepsy Action …… thank you 💜 we can’t wait to share our exciting journey with you and all we have planned this year ….. let’s keep the conversation going and keep shining a light on the reality faced by families as they navigate an Epilepsy or seizure diagnosis 💜💜💜

Next meeting this Wednesday 10th June 💜 Nurse Sara will be attending to do a follow up 💜 all welcome ✨
05/06/2026

Next meeting this Wednesday 10th June 💜 Nurse Sara will be attending to do a follow up 💜 all welcome ✨

05/06/2026

☕💜 Just a reminder that our next Coffee & Chat is taking place next week, on Wednesday 10th June from 12:00pm–2:00pm at Plymouth Unitarian Church (main hall).

We are delighted that Sara, our Epilepsy Nurse, will be joining us for an informal Q&A session. If you have any questions you'd like Sara to answer, please pop them in the comments below. Even if you've asked a question before, feel free to post it again so Sara has a chance to see it beforehand and come prepared.

Unfortunately, I won't be able to attend this month's meeting due to health reasons, but our wonderful volunteers Clare and Sue will be there to give you all a warm welcome.

Whether you're living with epilepsy, a seizure disorder, supporting a loved one, or simply looking to connect with others who understand, we'd love to see you there.

Have a wonderful meeting everyone!

Best wishes,

Caroline 💜

04/06/2026

“A poem for the medical parents, carers and caregivers who spend so much of their lives putting someone else first that being unwell themselves can feel like a failure. This one’s for you.” 💜

02/06/2026

⚡ Not All Seizures Look the Same ⚡

When most people think of epilepsy, they often picture someone falling to the ground and convulsing. While tonic-clonic seizures are one type of seizure, they are far from the only presentation.

Seizures can be subtle. They may look like a brief stare into space, unusual movements, confusion, sudden loss of awareness, repetitive actions, changes in sensation, emotional changes, or even a moment where someone simply appears distracted.

What many people don’t realise is that not only are there many different types of seizures, but the very same seizure type can present differently from one person to another. Two people with the same diagnosis may have completely different experiences, symptoms, triggers, and recovery times.

This is one of the reasons epilepsy can be so misunderstood. Many seizures go unnoticed, are mistaken for other conditions, or are dismissed entirely because they don’t fit the stereotypical image people expect to see.

For those living with epilepsy, every seizure matters, whether it lasts a few seconds or several minutes, whether it’s visible to others or hidden in plain sight.

By understanding that seizures don’t have a “one-size-fits-all” appearance, we can improve recognition, increase safety, and help create a more supportive world for the millions of people affected by epilepsy.

💜 Awareness saves lives.
💜 Understanding reduces stigma.
💜 Every seizure is different.
💜 Every person’s experience is valid.

01/06/2026

Hospital and Epilepsy Through the Eyes of a Child 💜

While many children fill their pages with unicorns, castles, superheroes, and magical adventures, children living with complex medical conditions often draw a very different world.

Hospital beds, ambulances, medicines, doctors, EEG wires, seizures, and medical equipment become part of their everyday experiences. Their artwork tells the story of the life they know.

There is nothing wrong with this. In fact, creativity can be a powerful and therapeutic way for children to process emotions, experiences, fears, and memories.

But these drawings are also a reminder of something deeper. They show how much chronic illness can shape a child’s identity and how much of their childhood is spent navigating challenges that most children never have to think about.

When hospitals become familiar, medical terminology becomes normal, and emergency plans become part of daily life, it highlights the reality of what so many children and families face behind closed doors.

Every drawing tells a story. Sometimes it’s a story of bravery. Sometimes it’s a story of resilience. And sometimes it’s simply a child making sense of a world that became far more complicated than it should have been.

This is epilepsy through the eyes of a child.

Even the sky supports epilepsy awareness 💜 if you are in Plymouth, Devon right now take a look outside 🥰💜
01/06/2026

Even the sky supports epilepsy awareness 💜 if you are in Plymouth, Devon right now take a look outside 🥰💜

31/05/2026

One of the most damaging parts of living with a disability isn’t always the disability itself, it’s the assumptions people make.

Too often, people see a diagnosis and immediately place limits on what someone can achieve, experience, contribute, or enjoy. Abilities are judged before they are understood. Potential is questioned before a person has even had the chance to show who they are.

For children living with disabilities and complex medical conditions, these misconceptions can create barriers far greater than the condition itself. Opportunities are missed. Expectations are lowered. Inclusion becomes an afterthought rather than a priority.

A disability does not define intelligence, determination, personality, kindness, creativity, or dreams.

People living with disabilities should not have to constantly prove their worth, capability, or right to participate. They deserve to be seen for who they are, not who others assume them to be.

The reality is that every person has strengths, talents, and something valuable to offer the world. When we focus on limitations instead of possibilities, we risk overlooking extraordinary individuals.

The next time you meet someone living with a disability, choose curiosity over assumptions. Ask questions. Listen. Learn.

Because the greatest limitation is often not the disability itself but the misconceptions surrounding it.

💜

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