18/06/2026
After 3½ weeks in hospital, I finally got home.
I had been counting down the days. Home. My own bed. My own people. No more waiting for transport, surgery dates or discharge plans.
And it is a relief.
But if I’m honest, the reality is more complicated than the fantasy.
I’m still non weight bearing for another 4 to 5 weeks. I can’t use crutches because of my limb difference, so for now I’m largely confined upstairs. Every appointment needs ambulance transport. Every trip to the bathroom takes planning. Everything takes longer than either of us would like.
Hospital is exhausting, but it also comes with routines, equipment and people whose job it is to help. Suddenly you’re home and trying to build a whole new routine from scratch.
I knew all of this before I left hospital. I worried about it for weeks. Yet the emotional impact still caught me by surprise.
I’m relieved.
I’m grateful.
I’m happy to be home.
And I was tired, overwhelmed, tearful and a bit scared too.
Today feels different.
The nurse from the Discharge to Assess team visited and did a sit to stand blood pressure assessment after I mentioned my long history of losing vision when I stand up and my tendency to faint. And yes my BP dropped significantly. A nurse will visit again tomorrow and the day after. A physiotherapist and occupational therapist will also be involved, and when this team discharge me, they will refer me on to the community rehabilitation team.
My consultant follow up appointment has also now been booked for next Thursday. All we need to do now is arrange the hospital transport.
It finally feels as though all the pieces are starting to come together.
After a good night’s sleep, I’m feeling much more emotionally stable and much more regulated in terms of my sensory processing. My body is still overreacting to odd things as though it doesn’t quite believe it’s safe yet, but I no longer feel completely overwhelmed.
Healing isn’t a straight line.
But today definitely feels like another positive step forward.
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Image description:
Trexy, a pale grey T-Rex with ginger hair and an orange leg cast, sits on a bed upstairs at home holding a mug. A small table beside the bed holds medication, a glass of water, a phone and a calendar. Through an open bedroom door, family members can be seen downstairs. The text reads: “HOME AT LAST. Nobody talks about the day after.” The image highlights the mixed emotions of returning home from hospital while recovery and daily challenges continue.