Sarah: Changing the Narrative

Sarah: Changing the Narrative Disabled speaker using lived experience to shift mindsets in education, healthcare and beyond.
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30/05/2026

Still no surgery today. 😭😭😭

Friday Ward 206 UpdateGuess where this is. Here’s a clue and a red herring. 😜PP aka Hubby tried his best to sort my hair...
29/05/2026

Friday Ward 206 Update

Guess where this is. Here’s a clue and a red herring. 😜

PP aka Hubby tried his best to sort my hair out, but sadly there was only so much he could do. I still look like I’ve been dragged through a hedge backwards. 😂

When my hubby arrived, I mentioned that I was sore in a certain place. He had a look and discovered that not only had my surgical pants bunched up, but there was also what looked suspiciously like a syringe cap trapped against my skin. How it got there is anyone’s guess.

The area has now been liberally covered in cream and we’re keeping an eye on it. Fingers crossed it settles down and doesn’t develop into a pressure sore.

It’s a good reminder that one of the less talked about challenges of limited mobility is not always being able to see, feel, reach or reposition parts of your own body easily. Something as simple as clothing, bedding or a small piece of plastic can become a problem surprisingly quickly when you’re spending long periods in bed.

Thankfully we spotted it early.

As for the photo… no, it’s not a satellite image of a distant planet. 😜



Photo description:
Close-up photograph of a patch of reddened skin with darker red pressure marks in the centre. The image is tightly cropped so the body area is not identifiable. The photo illustrates skin irritation caused by prolonged pressure and friction while in hospital.

29/05/2026

Ward 206 update 😭😅 🎶here we go again 🎶

Well, after getting myself mentally prepared for surgery, being told the swelling was suitable, being added to the operating list, and spending the night trying not to think about it too much…

I’ve been taken off the list.

At the moment surgery has been cancelled for today. It might be tomorrow. It might be next week. Apparently we’re now playing a game called “Orthopaedic Roulette” where nobody quite knows what happens next. 😅

I’m not going to pretend I’m not frustrated. The uncertainty is probably the hardest part. It’s difficult to get your head around surgery, recovery and getting home when the goalposts keep being moved.

On the positive side, the swelling is still looking good, my pain is reasonably well controlled, and I’m still being well looked after by the staff. It’s just another reminder that hospitals run on a combination of clinical priorities, bed availability, theatre capacity and what sometimes feels suspiciously like lunar cycles.

For now I’m back to waiting, trying to stay patient, and reminding myself that eventually somebody will either fix my ankle or I’ll evolve into a permanent resident of Ward 206.

Thank you for all the messages, support and good wishes. They really do help. 💋

Second update Those of you who know me personally know that I find talking and writing therapeutic. All the comments and...
28/05/2026

Second update

Those of you who know me personally know that I find talking and writing therapeutic. All the comments and messages from friends are really keeping my spirits up. Thank you all.

This afternoon they removed my full cast, checked the swelling, and fitted me with a back slab instead. Thankfully the swelling has now been deemed suitable for surgery, so I’ve officially been added to tomorrow’s operating list here in Derby. The wait 2-6 weeks for transfer to Wythenshawe was deemed too risky for my long term recovery
I am Slightly terrified, slightly relieved, and mostly just emotionally exhausted at this point if I’m honest.

I also had bloods taken from the other foot, because apparently my veins elsewhere have now filed formal complaints and gone on strike. Thankfully I don’t have any injections in my arms or hands anymore, but I genuinely still feel like a living pincushion at this stage. 😭

The current plan after surgery is for them to request a transfer to Wythenshawe so OT and physio can assess what equipment and support I’ll need before I can safely go home. Given that I currently move with the grace and stability of a baby giraffe still on ketamine from Saturday, this is probably wise.

One of my beautiful DILs and my eldest grandchild visited this afternoon and even came with me to the plaster room to keep me company, which made the whole thing much less scary and miserable. Hospital days feel a lot easier when your people are beside you. Wishing everyone well. 🧡💙

28/05/2026

Absolutely disgraceful.

28/05/2026
28/05/2026

Ward 206 update today.

After yesterday’s exciting combination of vomiting, fever, dizziness and my body generally behaving like a Victorian orphan with the plague, there has now been yet another major plot twist. 😭

The trauma coordinator has apparently now been informed that Wythenshawe currently has too many trauma operations waiting and may not realistically be able to take me for another 2 to 6 weeks.

So… another change of plan. 😅

The current thinking is now that Derby may operate on the ankle here instead. The cast is due to come off today so they can assess the swelling properly and decide whether the ankle is ready for surgery locally.

Unfortunately even if it is operable now, there may still be around a week or two week wait before an operating slot becomes available.

After surgery, the plan would then potentially be transfer to Wythenshawe afterwards for rehabilitation, Physio, OT assessment and discharge planning because the bigger issue remains working out what equipment I can safely use and how I can function safely at home while completely non weight bearing.

At this point my treatment plan has had more rewrites than a government manifesto. 😭😅

Still, despite everything, the staff continue trying their best within a very pressured system and I remain deeply grateful for the kindness from Ward 206, nursing staff in particular.

For now I continue my long running role as “woman lying dramatically in bed waiting for orthopaedic destiny to reveal itself.” 😘 xoxo 💋

27/05/2026

Ward 206 update.

Today I’ve been sick, I now have a temperature and I’m honestly not feeling too great. 😭

Given the amount of pain medication, immobility, stress on the body and the general chaos of the last few days, I suppose my body has finally decided to stage a protest. Hopefully it’s something relatively straightforward and temporary rather than yet another plot twist in the ongoing saga of “Sarah versus orthopaedics.” 😅

The positive is that I am at least already in the right place, being monitored by people who know what’s been happening and who have generally been very supportive throughout all of this.

Still waiting for a trauma bed to become available at Wythenshawe so the ambulance transfer for surgery can happen. Until then I remain on Ward 206 attempting to stay hydrated, appropriately medicated and only moderately dramatic about my suffering. 😘 xoxo 💋

https://keepournhspublic.com/petition-nhs-staff-not-ai/?fbclid=IwZnRzaASDo2dleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc...
27/05/2026

https://keepournhspublic.com/petition-nhs-staff-not-ai/?fbclid=IwZnRzaASDo2dleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeVDEg5S3W5PT0FHbKj_rIh_focjs8KqUWp1D2QOJkbrbE9gZPFZiBS2P9HX4_aem_s2mR8gl0VWfD_UcTqYGhEA

The Government is planning to scale back NHS recruitment and replace vital healthcare roles with AI technology to cut costs. This could leave patients facing fewer trained staff, unsafe care, and longer waits. Keep Our NHS Public is calling for proper investment in NHS staffing, not cuts misreprese

Update Guess who’s still in Derby hospital. 🙃First hour of camping and I was actually having a genuinely good pain day. ...
26/05/2026

Update Guess who’s still in Derby hospital. 🙃

First hour of camping and I was actually having a genuinely good pain day. I had rested beforehand, done all the sensible chronic pain preparation procedures, was feeling unusually human and was having fun doing circuits on a push pedal scooter with Alia. Unfortunately I then took a corner too fast and too wide hit a pothole and went spectacularly arse over tit. 😭

So my bank holiday weekend has been entirely spent in Royal Derby Hospital with a severely fractured distal fibula, whiplash, swelling that has doubled since the original photo, and a brand new appreciation for the “green whistle”. Good drug. 😳

Medical trauma also briefly raised its ugly head when doctors tried persuading me to let them put a cannula in my upper arm because the cannula in my preferred position appeared not to be working. I was extremely panicked because something felt “off” to me. Turns out I was right. Once they removed some of the sticky plaster they discovered the line had kinked. They untwisted it and suddenly it flowed beautifully. Funny that. 😒

To their credit, almost every member of staff handled things brilliantly after that. They understood that chronic pain sufferers often mask pain levels and they stayed proactive with pain relief rather than waiting for me to become distressed. They also came up with a novel, deeply unpleasant but very effective way to sedate me without disturbing the cannula. Liquid ketamine up the nose. 😭

I cannot adequately explain how brutal that felt going in. My brain immediately started comparing it to waterboarding torture, except thankfully much shorter. The sensation of liquid running down the back of my throat while trying not to choke was… memorable. But wow did it work.

Apparently while they manipulated my ankle, my beloved DIL T nearly fainted watching. Meanwhile I was off on a completely different journey. At various points people developed two heads, multiple eyes and occasionally several mouths. Strangely only one nose each. At one point the whole world became a deep reddish pink and I genuinely felt like I’d entered some kind of womb dimension. 😭

I have technically never been “high” before in a drug induced sense. Sleep deprivation and prescription medication hallucinations, yes. Plenty of times, especially the former. People who know me may remember that I once bought a dog while in one of those states. I am not naturally a dog person and yet somehow I now absolutely adore Tilly dog. 🐶

Yes, I wish none of this had happened. But I’m still choosing to acknowledge that the start of the day was genuinely fun and joyous. That matters too.

Unfortunately I’m now not allowed home after all because I cannot weight bear whatsoever and have to wait for a physio assessment before they can decide what mobility aids I can safely use. Apparently they cannot just hand me crutches and hope for the best. Which, fair enough given my track record with corners and speed. 😭

But the frustrating part is the constant drip feeding of information. Being told one thing and then having it changed later. I understand situations evolve, but I’d rather people just told me the realistic possibilities upfront, even if disappointing, because otherwise it chips away at trust.

Pain wise, things tipped over to the dark side tonight and I’m feeling really sick with it, but hopefully they’re getting on top of the regular medication schedule now. The nursing staff have generally been absolutely lovely. Even the CT woman was gracious enough to acknowledge and accept my points in the end, which I genuinely appreciated. 😅

Huge shout out to Derby Royal A&E, X-ray, Orthopaedics, the porters, auxiliary staff and Ward 206. The vast majority of people understood disability related medical trauma, respected informed consent, and helped me feel involved in decisions rather than railroaded through them. That makes an enormous difference when you are frightened, in agony and vulnerable.

Physio and OT have now assessed me and apparently I’m surprisingly good with a rotunda. 😅 Unfortunately Derby cannot allow me to take their equipment home because it belongs to their trust, so they’re trying to negotiate with my local services to see whether they can accept the assessment and sort equipment their end instead of repeating everything. Bank holiday timing is, unsurprisingly, making everything slower and more complicated.

The other issue is that transferring me back to my local hospital or safely home is proving quite complicated because I’m completely non weight bearing and currently unsafe to transfer conventionally. They’ve suggested I may need ambulance transport, but arranging that alongside equipment, local service coordination and physio recommendations is taking time. It’s one of those situations where the actual fracture is only part of the problem. The logistics of safely existing with it are the bigger challenge right now. 😭

Also, while we’re here, hospital bedpans are still clearly designed by a man who has never once asked a woman for feedback in his entire life. 😤💩

Hopefully home tomorrow. But after the amount of changing plans and drip fed information over the last couple of days, I’m trying not to get my hopes up too much until somebody actually wheels me out of the building. 😅



Image description:

Sarah lying on a hospital trolley in Royal Derby Hospital after breaking her ankle. One leg is heavily bandaged and elevated while she uses the “green whistle” pain relief inhaler. Which was very effective. Despite the injury and hospital setting, she is pulling an exaggerated amused expression at the camera.

Hi folks I’ve had an accident and broken my ankle. I was a very silly person and went arse over tit giving me whiplash a...
24/05/2026

Hi folks I’ve had an accident and broken my ankle. I was a very silly person and went arse over tit giving me whiplash and a severely fractured Fibula. The swelling is more than double what you can see in the photo. Silver lining is they’re keeping my meds going on a regular regime. I’m struggling to focus at the moment for writing. I’m slowly reading through comments. I appreciate and value every single one. I will respond when my pain level is manageable. Shout out to Derby Royal Hospital A&E, X-ray, CT, Orthopaedic team, porters, auxiliary staff and all the staff on Ward 206 for their excellent understanding of chronic pain management and disability related medical trauma.

Every single staff member with only one exception clearly understood the issue and enabled me to make informed decisions and manage any anxiety. Team work truly makes the dream work. Hopefully I’m going home tomorrow or Tuesday to be transferred to our local Hospital for the necessary Surgery.

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