Max's Trust

Max's Trust We are a registered charity supporting adults, children and their families.

Max's Trust has been set up, in memory of Max Finnigan, to raise awareness of and provide support and good quality information to the anorectal malformation (ARM) community.

Our new one day conference will be held on 10th October 2026 at the Pinewood Hotel in Manchester. You will have the chan...
19/05/2026

Our new one day conference will be held on 10th October 2026 at the Pinewood Hotel in Manchester.

You will have the chance to engage with medical professionals and other people impacted with Anorectal Malformation.

Tickets will be on sale soon, so remember to save the date!

This article highlights the importance of kidney care in Anorectal Malformation
30/04/2026

This article highlights the importance of kidney care in Anorectal Malformation

This article by ERN eUROGEN ePAG Representatives Kate Tyler and Dalia Aminoff reflects the presentation they delivered during the ERN eUROGEN Thematic Session at the European Association of Urology annual congress on 15 March 2026. Drawing on their patient advocacy and lived experience, they explore...

We would like to say a massive thank you for all of your donations for We have raised an incredible £541.34. We could ...
01/04/2026

We would like to say a massive thank you for all of your donations for

We have raised an incredible £541.34.

We could not have done this without YOU!

31/03/2026
31/03/2026

Today is the last day of . Thank you to everyone who is fundraising and donating. Money raised goes towards our conference for families and adults affected by ARM. There is still time to donate or make a one off/monthly donation. https://www.paypal.com/donate/?hosted_button_id=WX6EFCDTXLFMW&fbclid=IwdGRjcAQxNM9jbGNrBDE0t2V4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHv9ie9ABXl0OB6FlgcL0GpoMIBk-h8AScjarFeiBXhdw1MKwRvdGy1of0Je6_aem_AvkpEXZek6FFYkn6p0etwQ. Shout out to our mini marcher James

26/03/2026

The annual European Association of Urology (EAU) congress held this year in London from 13 to 16 March provided ERN eUROGEN with an outstanding platform to share our work, connect with the wider urology community, and demonstrate the vital role that European Reference Networks play in improving care...

20/03/2026

🌍 Today is World Anorectal Malformation (ARM) Day — and for the first time, 14 countries are officially recognising this global milestone together.

ERN eUROGEN joins the worldwide ARM community in marking this important day. We know that behind every diagnosis is a patient and family navigating complex, lifelong care — and that access to reliable information makes a real difference.

That's why we want to make sure our ARM resources reach as many people as possible:

🔹 Combined Clinical Practice Guideline – the full care pathway in one consolidated document
🔹 Patient Journey – in full-text, brochure, and audio formats
🔹 Sexual Support Website – in collaboration with ERNICA, in English and Dutch

👉 Download the Guideline: https://eurogen-ern.eu/our-work/guidelines/
👉 Explore the Patient Information: https://eurogen-ern.eu/our-work/patient-information/
👉 Visit: https://sexualsupport.eu

Today, we raise our voices for everyone affected by ARM. Together, we are stronger. 💙

European Commission Jardin Joint Action ESPU - European Society for Paediatric Urology ESPU-Nurses AIMAR - Associazione Italiana Malformazioni Anorettali Max's Trust

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