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Moss & Sand Studio, Harbour View, Kilbrittain (2026)

08/10/2026

We need to remember that living with any type of chronic condition is a marathon not a sprint. We are navigating life in the “more finely tuned vessel” but we don’t need to solve all the problems, today or this month or this year even. This ‘urgency’ to fix or to cure can actually be contributing to the overwhelm and symptoms flare. Sometimes hitting pause is one of the most helpful things we can do. Do you agree? Have you ever chosen to actively take a break from managing your health and then returned to this journey with a little less urgency and overwhelm? I’d love to hear.

06/10/2026

I’ve been told my child might be hypermobile but I don’t know what to do with that information ……
We don’t just need to wait on a list as parents there is plenty we can do
• Early body awareness training
• Early communication about the messages our bodies give us and valuing that information as important and worthy of being shared and believed
• Early proprioceptive training (working on actually feeling my body and knowing where it is in space)
• Teaching key phrases and communication about our bodies and parents can model this themselves to show children that we too are getting valuable messages from our bodies and we can actively choose rest, support or movement when needed
• Early modelling of pacing, and showing that pacing is valuable and means participation can be sustainable

06/10/2026

I’ve been told my child might be hypermobile but I don’t know what to do with that information ……
We don’t just need to wait on a list as parents there is plenty we can do
• Early body awareness training
• Early communication about the messages our bodies give us and valuing that information as important and worthy of being shared and believed
• Early proprioceptive training (working on actually feeling my body and knowing where it is in space)
• Teaching key phrases and communication about our bodies and parents can model this themselves to show children that we too are getting valuable messages from our bodies and we can actively choose rest, support or movement when needed
• Early modelling of pacing, and showing that pacing is valuable and means participation can be sustainable

28/09/2026

Background noise with waves 🌊

We need your help! Can you support our new social enterprise and our mission?? Please get it touch. Please spread this far and wide. This is a movement and I cannot do it alone. Could you volunteer some time and your skills to help change healthcare for those with bodies like mine in Ireland?

Volunteer skills in;
Social media / marketing / PR
Research / stats
Communications / excel / admin
Fundraising

20/09/2026

We advocate for screening for ALL bodies like mine in this country. First awareness, then research, then education, the root cause change. Will you join our mission?

17/09/2026

It’s ALL connected. And it’s ALL CONNECTIVE!!!! Our issues are in our tissues. And our tissues are everywhere. Including our teeth and gums. Here we go again, explaining my body to another new professional. Imagine if our kids never had to do this? Imagine if ALL health professionals were trained to understand and believe us. Join our mission, share and follow along for more

15/09/2026

I would love to include your voices, your stories, your bodies. We need to start where we are. We have big plans and we’re in this for the long haul but getting the right funding, grants and partnerships all takes time. And doing research is timely, costly and doesn’t happen overnight. However this I can do now. First. A handbook with YOUR voices aswell as mine. A lived experience guide that is a starting point not an end point. It is a map of our bodies. We would love to republish in years to come and add in all the research and evidence-based gold standards for our bodies but at this point in time let’s work with what we have. Your experiences and voices matter and can help shape a book that can support all clinicians and professionals that work with our bodies aswell as patients, parents and carers. Let me know in the comments or dm what you would like included about YOUR body. Please include whether you are AFAB or AMAB and if you know if you are neurodivergent or not. All voices shared will be completely anonymous. But we would love to have an idea of gender and neurotype with each voice as it can all help shape learning. Let’s hand our gps a book they were never told to read in university. A guide to help them understand, believe and expect us. Please share this with anyone who could help contribute.

11/09/2026

One good professional in your corner - who believes you. Who is willing to learn with you and advocate for you is worth its weight in gold. That’s where to start. Being heard and believed and supported has healing benefits in and of itself. Bring the literature. The website is a wealth of knowledge and has lots of printable resources. Summarise your health journey and symptoms into one page. Prioritise your symptoms. Don’t expect to address more than 2 complaints in any one appointment. If you’re not happy you are entitled to a second or third opinion until you find someone that listens and that is open to learning alongside you. If it’s not a gp it might be a consultant, a physiotherapist, a dentist, a midwife or other allied health professional. Just one is a starting point. It’s a step. It’s slowly growing your care support team. I know it shouldn’t be this hard to be believed and to find the right care and to be believed. I agree. And I’ve been there. But we have to start where we are and meet the current system where it is at until we can embed real long term change

08/09/2026

I had severe Pelvic girdle pain and hyperemisis on both of my pregnancies. Pregnancy is NOT the time to try to get strong or to overstretch if you are hypermobile. And we are not giving adequate training to health professionals about this. I had to completely discontinue yoga throughout my pregnancies and my exercise involved a lot of breathwork, slow low to the ground gentle stability work and swimming (no breaststroke). As an active person this was very tough to accept. In reality I could hardly walk far so my walking was what was necessary not for exercise purposes. Are you hypermobile? What did your pregnancies look like? Are you a midwife or physio that has a special interest in hypermobility / hsd / hEDS? We would love to hear from you

07/09/2026

I’m seeing all the messages even if I’m not managing to reply personally to each. I see you all. Missed. Misunderstood. Not believed. Not that rare. Bodies Like Mine.

Moss & Sand Studio

08/10/2026

06/10/2026

06/10/2026

28/09/2026

20/09/2026

17/09/2026

15/09/2026

11/09/2026

08/09/2026

07/09/2026

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