Deetya's Battle with Tay-Sachs Disease

04/03/2024

As long as i breath u ll be remembered...💝

21/02/2024

Deetya and shivanya both... without hair...after mundan pic

03/12/2023

03/12/2023

“In my dreams, I hold you in my arms again, knowing that you are safe and loved in heaven.”

24/09/2023

Today it has been 7 years, we lost our heavenly angle Deetya. We missing her in every moment. On her death anniversary we remembering her doctor.
*Dr. Anaita Hegde....*
Deetya's pediatric neurologist...one of the best doctor as well as best human being...! We went to see her after almost 6 years bt we felt the same warmth when we use to go with Deetya. After SHIVANYA we really wanted to meet her once, to say thanks for all the efforts she took for our heavenly angel Deetya...she tried her best to give comfertable treatment and life for Deetya..she have done beyond her doctor's limits to give the best for Deetya. She tried to discuss Deetya's case in international conferences. She was in that hope that we can atleast find some sort of treatment for Deetya to prolong Deetya's life.
After knowing that Deetya is not going to live longer with us, as a parent we broke down so many times, she was the one who has taken extra efforts to consol us.
We have seen her teary eyes while treating Deetya. She might have seen so many children with small life span but Deetya and we have been taken good care in person by her.
We really great full to have such a great human being as Deetya's neurological pediatrician.

12/06/2022

Different moods in one frame💝💝😘😘😘❤️

06/10/2021

Deetya
We may have celebrated your 15th Birthday today....!!! It's really so heart broken when ever we think of you ...
but any ways we know you are not here but I am sure you must be celebrating it with universal power...GOD..!!!

06/02/2021

WHAT IS NORMAL AFTER YOUR CHILD DIES?
Normal is having tears waiting behind every smile when you realize someone important is missing from all the important events in your family's life.

Normal is feeling like you can't sit another minute without getting up and screaming, because you just don't like to sit through anything anymore.

Normal is not sleeping very well because a thousand what ifs and why didn't I's go through your head constantly.

Normal is continuously reliving that horrible day of learning of your child's death through your eyes and mind, holding your head to make it go away.

Normal is every happy event in your life always being backed up with sadness lurking close behind, because of the hole in your heart.

Normal is telling the story of your child's death .

Normal is my heart warming, and yet sinking at the sight of something special my child loved. Thinking how she would love it, but how she is not here to enjoy it.

Normal is having some people afraid to mention my child.

Normal is making sure that others do remember her.

Normal is after the funeral is over everyone else goes on with their lives, but we continue to grieve our loss forever.

Normal is seeing other families who are "whole" and thinking of how lucky they are. And thinking back on memories of when we were a whole family and knowing that it will never be that way again because our family chain was broken.

Normal is weeks, months, and years after the initial shock, the grieving gets worse, not better because with every passing day, you miss them more.

Normal is not listening to people compare anything in their life to this loss, unless they too have lost a child. Nothing compares. Nothing.

Losing a parent is horrible, but having to bury your own child is unnatural... a complete nightmare that you never wake up from.

Normal is realizing that you do cry every day.

Normal is sitting at the computer crying, sharing how you feel with chat buddies who have also lost a child.

Normal is not wanting to hear that my child is in a better place because although I know she is in heaven, I will never understand why my beautiful child was taken from this earth. It makes absolutely no sense to this grieving mother.

Normal is being too tired to care if you paid the bills, cleaned the house, did the laundry or if there is any food... too tired to even get ready to go to the doctor to find out why you’re so tired.

Normal is asking God why he took your child's life instead of yours.

Normal is knowing you will never get over this loss, not in a day nor a million years.

Normal is learning to lie to everyone you meet and telling them you are fine. You lie because it makes others uncomfortable if you cry.
You've learned it's easier to lie to them than to tell them the truth that you still feel empty and it's probably never going to get any better— ever.
::: Author Unknown :::
—

02/11/2020

True that 💔💔

23/09/2020

Deetya...

Time is flying ....!
4 years...!

Our heart are still not ready to accept that you are not with us... When ever I see butterfly i feel you... When ever I see flowers i miss you.. And missing you is still the favorite part of my life. And while missing you tears always Rolling down from my eyes...
This year God blessed us with your little sister SHIVANYA! Knowingly or unknowingly it gives us strong flashbacks of time and she start reminding of you...!

“Deetya was exactly doing that”, “Deetya has started crawling in just six months...”
“Why are you not getting chubby like Deetya?” and so on..

Now Shivanya has taken over the place in our heart. She play all over our house. Those places where you were crawling. Those things and corners which you were trying to reach. Early morning prayers with Baa (Grand Ma) which you used to do. Mostly all of you and you see us behind as she plays in our bedroom. Trust us DEETYA you remains everywhere each and every day with us. But you know the most special place where you remain is that deep corner of our heart which nobody could ever replace.

We see reflections of you in Shivanya...
Miss you more sweetheart ...

Love Mumma Papa...😘😘

03/05/2020

Deetya
You are always in our heart and thoughts.
Miss u beta.. 👼