Liewen mat Multiple Sklerose

14/06/2026

... ech kommen nit aus dem Bett
Ech hun Kappwéih, Réckwéih... gesin nit kloer....
Ech sin su mitt & dach kann ech nit anstännig schloofen ...

D Wiederkapriolen,
de Stress vun deser, onausgeglachener, Woch,
d Firfreed (mee och den net ze ennerschätzenden & su massiv nit erwaarten Konzentratiounsopwand) rond em méin neien Auto,
di traureg Nooricht vun Gester,
Nit genug Treppeltouren...

Alles zevill & nit genug ... 🤐

Haut well méin Kierper mech zu énger Paus zwèngen...
Mee ech hun aawer och Hausaarbischt di muss gemaach gin 🤷‍♀️

Also maan ech et wi emmer an su Situatiounen :
oprappelen, duerchzéihen & hoffen dass et iergendwi leeft 🤞🏻🤞🏻🤞🏻🍀

11/06/2026

Acceptanz .... 🤔

2 vu méngen prägnansten Charakterbeschreiwungen sin waahrscheinlech :

Immens ONGEDELLEG &
Emmer HANNERFROEN

GEDOLD ... - ech hun mussen op di haart Tour léieren mech bessi ze gedellegen a villen Beraicher & ech muss soen dass daat mir och deelweis nawéll, je no Thema mol méi mol manner, gudd geléngt

ACCEPTANZ ... - et fällt mer emmer nach schwéier ... nit nemmen méng MS-Diagnôse, di doraus folgend Situatiounen asw, mee och soss generell Limitten, Contrainten asw einfach hinzehuelen, ouni ze hannerfroen & noo aaneren Méiglegkeeten, Optiounen, Schlupflächer o.ä, ze sichen
Suguer wann ech genee weess dass et nit aanischt geet, fällt mir schwéier eppes 'einfach' ze acceptieren waan et fir mech zbsp. Onlogesch, Onsennig, domm, onfair asw ass

Acceptanz 🤔
Jo .... fir mech haat daat Wuert (& wärt et déiw a mir dran villéicht fir emmer behaalen) emmer iergendwu deen liichten negativen Touch vun 'Opgin'.
Am Senn vun - endgültig capitulieren
Opgin/capitulieren - Egaal aus wéiéngem Grond (kéng Motivatioun, keen Eiergéiz, kéng Kraaft, kéng Moyens etc)
Eben suguer wann de Grond nit a ménger Muecht loung/léit, suguer wann et eben kéng aaner Optioun gouf/gett
Opgin ass nunmool KENG Optioun.

& Acceptanz waar (ass et leider zum Deel wi gesoot wuel emmer nach😑) fir mech gléichgestallt mat 'Opgin'

Duerfir fillt sech villes a méngem Alldaag mat MS fir mech (emmer nach, emmer mol nees, mol méi mol manner...) no Opgin un 😔

Momentaan graad um Beispill vu méngem Auto
Trotz MS fillen ech mech nach gudd genug (& méng Dokteren bestätigen daat och duerch regelmäßig Tester asw), fir Auto kennen ze fueren
Generell nit mi su vill km, nit mi ze laang Strécken um Stéck, nit am décksten Verkéier asw
Daat sin Upassungen di ech mir selwer operluecht hun wéll ech méng (resp méngem Kierper séng) Limitten erkannt hun & weder aaner Leit nach mech selwer muttwelleg a Gefoohr bréngen well

An deem Kontext & aawer och einfach als Cadeau u mech, hun ech firun 3 Joer méin Auto gewiesselt, bessi mi ee kléngen Wendegen asw

Firun puer Méint hun ech mech dun aawer an een neien Modell Schockverléiwt😅🤷‍♀️ & (noo aawer nees villem Iwerdénken, Hannerfroen asw) décidiert méin Auto Emzesetzen.
& hun dun Décisioun getraff, dann och vun Manueller Schaltung op Automatic ze wiesselen - am Kontext (fir mir et schéinzerieden) vun : ' mi laang mobil bleiwen' je nodeem wi MS sech weider entwéckelt, mech besser op d Strooss, de Verkéier asw konzentrieren ze kennen ouni brauchen erop/eroof ze schalten, mi rouegt entspaant Fueren asw

Elo ass et suwéit .... HAUT gin ech méng kléng Orange gingt méin Neien antauschen

Ech sollt mech drop fréen....

Mee..... am Plaatz maan ech mer Gedanken... suguer Suergen....😑

Opwuel ech dee Modell Proufgefuer sin & dobéi fir flott & gudd befonnt hun, froen ech mech lo aawer, op ech mech mat Automatik ufrennen wärt/kann
Op ech iwerhaapt domat eenz gin ...🙈

ECH, Tanja, .... waat emmer gingt Automatic gestänkert huet : daat ass jo keen 'Autofueren'... asw

Et waar éng Vernunft-Décisioun... och wèll ech wiierklech u mir gemierkt hun, dass ech 'Schaltfaul' gi sin an der Letzt, dass et mech nervt rop/roof ze schalten, dass ech nit mi gudd schalten asw

Et waar ACCEPTANZ dass ech , och am Beraich 'eegenstännig Mobilitéit' & 'Autofueren' Emdénken soll/muss
Et waar dee Moment a méngem Kapp éng gudd Entscheedung, ech waar dovun iwerzeegt

& Elo ? .... elo setzen ech hei & hoffen dass ech se nit bereien di Décisioun...

Deen Auto ass schéin & ech hoffen en bréngt mir och nees bessi mi Spaass um Fueren ...

Am Moment hoffen ech aawer mol un 1.Stell, dass ech alt wingstens domat aus dem Garage bis Heem kommen ... ouni Schaltung... mat vill Gefluchs wann méin linken Fouss an d Néischt trett... mat Schweess op der Stier 🫣

ACCEPTANZ ...méin gréist Liewensthema & Challenge waar ni, wi emmer ugeholl, d Gedold...
NEE .... et waar, ass (a schingt wi wann et bleiwt🙄) emmer ACCEPTANZ

Situatiounen, Pläng, Zieler, Usiichten, Optiounen.... Alles... d Liewen a sech.... asw ännert ... emmer nees, mol mi positiv, mol negativ, vun Haut op Muer, vu Minutt zu Minutt, oder laangwiereg, konstant... asw

Et MUSS een domat liewen, sech upassen/adaptieren

Et muss een et ACCEPTIEREN....

& ECH Muss léieren dass ACCEPTANZ nit OPGIN ass ❗️

Acceptanz ass sech deer jeweileger Situatioun UPASSEN wéll et nit aanischt geet & een soss op der Stréck bleiwt

Ech hoffen, dass daat mir iergendwann besser geléngen wärt

& elo graad hoffen ech dass, wann ech méin neien Auto herno gesin do stoen, ech de Schlessel an d Hand kréien... d Freet och kommen wärt & et mir nit Leed wärt doen dass ech méng Meehnung zu Automatic-Autoen wi et schingt ugepasst & wuel dann aawer alt hun, dass mat MS emmer nees, all Daag op een Neit, Upassungen ze maachen sin...🤷‍♀️

08/06/2026

Sorry - och ech sin nit emmer & all Daag staark
Momentaan sin ech einfach frustriert, granzeg & ech soueren 😑🤷🏻‍♀️

Ierch all 1 (besseren) gudden Start an d Woch gewenscht 🤞🏻🤞🏻🤞🏻🍀🍀🍀😘

07/06/2026

Lemtrada the MS Treatment That Does Not Tiptoe.
It Rebuilds.
There are MS treatments that calm the immune system.
There are MS treatments that slow it down.
And then there is Lemtrada.
A therapy that walks in with a blueprint, a demolition crew, and a plan to rebuild your immune system from the studs up. Lemtrada is not subtle.
It is not quiet.
It is not a starter medication.
For people with highly active MS, it can be one of the most powerful tools available. It is given via intravenous (IV) infusion for 5 consecutive days, and a second course of 3 consecutive days is given 12 months later.
Lemtrada targets CD52, a marker found on many immune cells. When those cells are reduced, the immune system receives something close to a reset. Over the next months and years, it rebuilds itself in a calmer and less inflammatory pattern. This is why Lemtrada is considered an immune reconstitution therapy, not simply a disease modifying drug.

Lemtrada comes with real risks. Autoimmune thyroid disease. Low platelets. Kidney issues. Infections. Infusion reactions. And the commitment to monthly labs for four years after your final dose.
Four years of watching your immune system rebuild.
Four years of making sure it is rebuilding safely.
Four years of honoring the strength of the medication you trusted with your future.

And the truth is many people do incredibly well on Lemtrada.
Some see fewer relapses.
Some see stability they have not felt in years.
Some feel like their MS finally stopped sprinting ahead of them.
Lemtrada is not a quick fix.
It is not a casual choice.
It is a long game. A strategic and high efficacy immune resetting long game.
Choosing it reflects strength, clarity, and intention.
It means you are informed.
It means you are proactive.
It means you are advocating for the version of your life you deserve.
MS with Moxie means facing the hard truths with honesty and courage and still choosing hope.
It means asking every question.
It means reading every line of the monitoring program.
It means advocating for yourself without apology.

You deserve transparency.
You deserve clarity.
And you deserve a treatment plan that honors both the complexity of your MS and the strength you bring to the table.

There are only two true immune reconstitution therapies used for MS.
Lemtrada and Mavenclad (taken orally). These are the only treatments designed to deeply reduce parts of the immune system, allow it to rebuild over time, and offer long lasting benefit after short treatment courses.

07/06/2026

Let’s talk honestly about Ocrevus.

Ocrevus is one of the more powerful medications used to treat Multiple Sclerosis. It works by lowering certain B cells in the immune system that are believed to attack the nervous system in MS.

For many people, it can reduce relapses, reduce new MRI lesions, and help slow progression.

But it is important to understand this....

Ocrevus is NOT a cure for MS.

It does not reverse existing nerve damage.
It does not erase symptoms.
And while it may slow disease activity, many people still live with fatigue, pain, mobility issues, spasms, cognitive changes, and progression.

And because Ocrevus changes the immune system, there are also risks and important conversations that should happen openly between patients and doctors.

One of those conversations involves cancer screening.

In clinical trials, there was a small increase in certain cancers, including breast cancer, seen in people taking Ocrevus. That does NOT mean Ocrevus directly causes cancer. But it does mean routine screenings and monitoring matter.

Powerful medications come with powerful considerations.

That is not meant to scare people. It is meant to empower them.

Because informed patients make informed decisions.

The truth is, many of us with MS weigh risks every single day:
The risk of progression.
The risk of disability.
The risk of treatment side effects.
The risk of doing nothing.

There is no “perfect” MS medication. There are only choices, information, and the hope of preserving quality of life for as long as possible.

Knowledge is not fear.
Knowledge is power.
And every person living with MS deserves honesty, support, and the ability to make the best decision for themselves.

The main B-cell depleting medications used in MS are:
• Ocrevus (ocrelizumab)
• Kesimpta (ofatumumab)
• Briumvi (ublituximab)
• Rituxan (rituximab) — technically not FDA-approved for MS, but commonly used off-label by some neurologists.

That’s MS with Moxie. 💜🧡

07/06/2026

Ech hun mat deem Medikament ganz gudd Erfaahrung gemaach ✌🏻

Mavenclad

Please stay tuned, if your not reading to the bottom of this post. I am on a roll of sharing DMT medications for MS over the next few days.

There are MS treatments that ask for your attention every day.
There are MS treatments that ask for your time every month.
There are MS treatments that require you to show up again and again to keep the disease quiet.

And then there’s Mavenclad, a therapy that says, “Let’s do this in chapters, not in endless cycles.”
Mavenclad is one of the few MS medications designed to work in short, intentional bursts. It doesn’t ask you to suppress your immune system continuously.
It doesn’t require infusions, injections, or a standing appointment every six months. It doesn’t demand constant maintenance.

Instead, Mavenclad works through two yearly treatment courses, each one lasting only a handful of days.
Not weeks.
Not months.
Days.

Because Mavenclad isn’t a maintenance therapy.
It’s an immune reconstitution therapy, a treatment that temporarily lowers specific immune cells, allows the system to rebuild, and aims to create a calmer, more regulated immune environment over time.

How is Mavenclad Is Taken?
This is the part people are always surprised by.
Two treatment weeks in year one, two treatment weeks in year two, and then you’re done with the full course!

Each “treatment week” is only a few days of pills, based on your weight.
After that, there are no daily pills, no monthly refills, no constant dosing, no continuous co-pays!

It’s a therapy that steps in, does its work, and steps back, letting your immune system rebuild itself.

This is what makes Mavenclad different from continuous therapies like Ocrevus or S1P modulators like Zeposia.
It’s not about staying suppressed. It’s about strategic, time‑limited intervention.

What a Mavenclad Cycle Looks Like
Think of it as a two‑year story or waiting for the sequel to a movie you love.
Year one you take a short course (a few days) and one month later, you take another short course.
Your lymphocytes drop
Your immune system begins its rebuilding phase.
Year two, you repeat the same pattern.
Another short course.
Another rebuilding phase.
After year two, you’re not taking Mavenclad anymore.
But the immune system changes continue working long after the last dose. Some people remain stable for years without additional therapy.
Some eventually transition to another DMT.
Everyone’s path is different, but the design is the same-
short treatment and long effect.

Mavenclad targets lymphocytes, especially the ones that drive MS inflammation. It lowers them, not to zero, not permanently, but enough to interrupt the cycle of autoimmune activity. Then the immune system rebuilds.
Not wiped out.
Not shut down.
Rebalanced.

This is the essence of an immune reconstitution therapy like Lemtrada and Mavenclad
Short‑term depletion.
Long‑term recalibration.
Every high‑efficacy therapy has its own personality, its own strengths, its own cautions, its own rhythm.
For Mavenclad, the major considerations include-
Lymphopenia (low lymphocytes)
Infection risk, especially shingles.
Cancer risk warnings (based on early data, now better understood but still monitored).
Pregnancy planning requirements.
Regular bloodwork to track lymphocyte recovery.

It’s not a casual medication.
It’s not a “light” option.
It’s a therapy that requires intention, timing, and partnership with your neurology team.

But it’s also a therapy that gives many people something they deeply value, freedom from constant treatment.

Mavenclad is often chosen by people who want, HIGH efficacy, time‑limited treatment, no infusions, no injections, and no daily pills.
A therapy that works behind the scenes while you live life.
It’s not for everyone.
No MS medication is.
But for the right person, Mavenclad is a powerful, elegant option.

The MS with Moxie Takeaway is;
Mavenclad is a reminder that MS treatment doesn’t have to be constant to be effective.
It doesn’t have to be daily to be meaningful.
It doesn’t have to be ongoing to be powerful.
Some therapies whisper.
Some therapies nudge.
Some therapies walk beside you every day.

Mavenclad is the therapy that steps in, does its work, and then lets you breathe.
MS with Moxie means understanding your options.
It means knowing the science without the fear.
It means choosing the path that honors your life, your values, and your resilience.

07/06/2026

Den Exploit vum Mee, mat 200km Treppeltouren op den Compteur, ass desen Mount wahrscheinlich éier onwahrscheinlech...😒🤷‍♀️

Haut sin mer schons den 7. & alles waat ech bis ewèll Opweises hun sin : 5km 🤐🫣

Ech sin mitt & fillen mech oofgeschloo, genervt, granzeg, ech gesin nit gudd, kann mech nit konzentrieren, nit focussieren, sin bessi wackleg op de Been...
Also Niwwel am Kapp & Gelli an de Been 🙈
& ech laafen iergendwi dauernd der Zait hannendrun.

Di kommend Woch ass gespickt mat RVs & Verpflichtungen vun allen Zorten, sudass, bis elo allzéit mol, deen nächsten, hallefwegs entspaanten (wéll och do muss ech Nomettes nach een Termin anhaalen 🫣) Treppeltour wuel errischt Freideg um Planning steeht. 🙄
Evtl kann ech alt nach puer wéinig km nierwenlaanscht anheimsen ... mee wiirklech vill wärt et nit gin .🤐

Keen optimalen Start an den Juni also
Net nemmen, mee aawer och, dem Wiederemschwong geschold...
Zudeem nawéll rezent éng schlecht Noriicht & Drama am Emkrees, waat mer wuel aawer mi ze schaafen mecht wi geduecht.😔

Ech géréieren méin Stress an der Letzt nees nit wiirklech gudd - den Daag huet ni Stonnen genug fir alles ennert 1 Hut ze kréien😒

Di puer Liichtblécker am Niwwel momentaan, sin wuel nach nit hell genug fir duerch di déck Wollecken ze dréngen

Kann jo dann nemmen nees besser gin ...

Hoffen bei Ierch ass et mi positiv gelaaf bis ewèll - falls nit, dann Kapphéich & doduerch 🤞🏻🤞🏻🤞🏻
Ierch all ee gudden Start an di 2.Woch Juni gewenscht 🍀

07/06/2026