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Being Sickled Being Sickled

Sickle cell awareness through storytelling, animation & real-life experiences.

Chronic illness journey + advocacy
Carefully Curated Sickle Cell Essentials🛒👇🏽
https://shopusefully.com/product-category/chronic-illness-essentials/

12/07/2026

For many people living with sickle cell, blood transfusions are not rare emergencies. They are a regular part of staying alive during severe anaemia or complications.

If you’re eligible to donate blood, please consider becoming a donor. A single donation could help save the life of someone you’ll never know❤️🩸

Warriors, when was your last blood transfusion? Or have you ever needed one?
Share your experience in the comments.

And to everyone else-have you ever donated blood?😊 How was the experience?

02/07/2026

Paint Beyond Pain wouldn’t have been possible without the incredible people and partners who believed in the vision. ❤️

Thank you to everyone who supported this event, especially Ceracerni’s ArtHub , DirectorTJ , our sponsors, contributors, volunteers, and every warrior who showed up.

We appreciate you. 🫶🏽

🎥 DirectorTJ

02/07/2026

You’ve seen the photos.

You’ve seen the montages.

Now, hear the stories behind Paint Beyond Pain. ❤️🎨

On World Sickle Cell Day, we chose to celebrate the people living with sickle cell.

We painted.
We shared stories.
We laughed.
We connected.

Most importantly, we reminded one another that while sickle cell is part of our journey, it does not define our potential.

Here’s a look back at a day we’ll never forget. 🫶🏽

Over the coming weeks, we’ll be sharing Warrior Spotlight, a series featuring individual stories and the inspiration behind each warrior’s artwork. Stay tuned. ❤️

🎥 Tolani Julius
📍 CeraCerni’s Art Hub

01/07/2026

You’ve seen the photos.

You’ve seen the montages.

Now, hear the stories behind Paint Beyond Pain. ❤️🎨

On World Sickle Cell Day, we chose to celebrate the people living with sickle cell.

We painted.
We shared stories.
We laughed.
We connected.

Most importantly, we reminded one another that while sickle cell is part of our journey, it does not define our potential.

Here’s a look back at a day we’ll never forget. 🫶🏽

Over the coming weeks, we’ll be sharing Warrior Spotlight, a series featuring individual stories and the inspiration behind each warrior’s artwork. Stay tuned. ❤️

🎥 Julius
📍 ’s Art Hub

29/06/2026

I’ve heard too many stories of sickle cell warriors being laid off from their jobs because of their health, and I do not think that is right.

Rather than sacking someone because of something they cannot control, workplaces should put measures in place to accommodate their needs: remote work, flexible work hours, understanding sick leave, and other reasonable accommodations that help employees thrive according to their individual capacities.

This animation is dedicated to my warrior friend, Bolade 😊(with his permission to share of course), who was laid off because of his health. I watched it happen in real time. Thankfully, he is doing well now and is in a different country with a more considerate system..something he is always grateful for 😂. I only hope we continue moving toward that kind of consideration here too.

And let us not even start with the discrimination some warriors face at the interview stage simply because they disclose their medical condition.

Many warriors already push themselves twice as hard because they don’t want to be seen as incompetent. They work longer hours, show up even through pain, and constantly try to prove they are capable. Ironically, that pressure often places even more strain on their health.

People living with sickle cell are not less intelligent.
They are not less hardworking.
They are not less deserving of opportunity.

Accommodation is not favoritism.
It is equity.

Let’s build workplaces where warriors can work, live, and thrive with dignity. 🩸❤️

Have you or someone you know experienced discrimination at work because of sickle cell? Share your story in the comments!👇🏽

From blank shirts to personal stories. 👕✨There was something special about unfolding each design and discovering the sto...
23/06/2026

From blank shirts to personal stories. 👕✨

There was something special about unfolding each design and discovering the story behind it.

Through paint, color, and creativity, each warrior shared a piece of their sickle cell journey; their strength, hopes, challenges, and identity. Every shirt told a different story, but they all carried the same message: we are more than sickle cell. ❤️🎨

📸: DirectorTJ

19/06/2026

Today’s the day. ❤️🎨

Paint Beyond Pain is here.

The host and the team are ready to welcome all attendees at 📍CeraCerni’s Art Hub.

Happy World Sickle Cell Day. 🌍❤️

Happy World Sickle Cell Day. ❤️🌍Today, we celebrate the strength, resilience, creativity, and achievements of individual...
19/06/2026

Happy World Sickle Cell Day. ❤️🌍

Today, we celebrate the strength, resilience, creativity, and achievements of individuals living with sickle cell disorder around the world.

We celebrate progress, but we also recognize that stigma, discrimination, and barriers to quality care still exist.

Today, we celebrate.

Today, we advocate.

Today’s agenda: 🎨 Paint Beyond Pain

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