Canterbury Family/Whānau voices - disability system transformation

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Canterbury Family/Whānau voices - disability system transformation We amplify the voice of Family/Whānau and their disabled family members.

10/06/2026

A big thank you to everyone who has taken the time to fill out our Survey on Flexible funding including Individualised Funding and EGL so far, we really appreciate it!

There is still time to have your say. The survey is open until 10 July 2026 and everyone who responds goes in the draw to win a $50 Pak n Save voucher.

We don't usually tag everyone on the page as we know that can feel a bit much, but we want to make sure as many of you as possible get the chance to take part.

👉 Fill in the survey here https://forms.office.com/r/wUAexijzFa

It takes less than 3 minutes. We are reading every response carefully and the insights you are sharing are helping us understand how to best show up for our community.

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Disabled Persons Assembly NZ - DPA, National Enabling Good Lives, and Te Ao Mārama Aotearoa are working together to crea...
09/06/2026

Disabled Persons Assembly NZ - DPA, National Enabling Good Lives, and Te Ao Mārama Aotearoa are working together to create a shared Declaration of Disabled People's Rights for Aotearoa New Zealand, grounded in Te Tiriti o Waitangi, the UNCRPD, and Enabling Good Lives principles.

The declaration is being built by and for tāngata whaikaha Māori, Deaf and disabled people, and your voice matters in shaping it.

There's a short survey open now to gather ideas and priorities from disabled people, tāngata whaikaha Māori, whānau, family and carers.

The survey closes 18 June 2026, so now is a great time to have your say.
👉 https://www.surveymonkey.com/r/KZ6WNYP

You can also read more information here: https://www.dpa.org.nz/dpa-projects/finding-common-ground/

Image description: A purple graphic with bold yellow text reading "Help us shape a Disability Rights Declaration for Aotearoa NZ." In the lower left is an illustrated scroll with the words "Declaration of Rights of Disabled People in Aotearoa." Beside it, a mint green button reads "Share your thoughts in the survey" with a cursor icon pointing to it.

Finding Common Ground: Whanaungatanga, Collaboration & Building Disabled Leadership Date: Tuesday 9 June 2026Time: 8:45a...
08/06/2026

Finding Common Ground: Whanaungatanga, Collaboration & Building Disabled Leadership

Date: Tuesday 9 June 2026
Time: 8:45am - 10:00am
Location: Online via Zoom
Registration: https://events.zoom.us/ev/Akm8T8TLU5KXFXBZvclPPIb31lpi9sa0H1XKIxxWMvgcY0ijaT1v~AivtjsHueQWMAcyM90YKMmrm21idWaUvsMO5gGkJPBH4dj7-7bRhXW0iPQ

See original post for full details.

In a world where governments are increasingly challenged to uphold human rights commitments and international agreements, disabled communities are finding new ways to drive progress from the ground up.

Disabled communities are actively shaping the next phase of UNCRPD implementation, rather than waiting for it to happen.

National initiatives like Finding Common Ground; grassroots organising through MAASHA; and efforts to strengthen disability representation within international climate governance (UNFCCC) demonstrate how disabled people are using the UNCRPD for accountability, advocacy, and collective action to make our rights a reality.

These initiatives move beyond participation alone, creating pathways for meaningful representation, leadership, and civic engagement.

Join us for a official side event on Monday 8th June 4:45pm – 6pm EDT (Tuesday 9th June 8:45am – 10am NZT).

In this dynamic session, we will hear from disabled leaders who are championing these collaborative, cross-sector, cross-community leadership and advocacy initiatives that are shaping disability rights movements and translating the UNCRPD into practice — from Aotearoa New Zealand to the global arena.

This event is open to the general public, but places are limited so please register early to avoid disappointment.

Find out more & register: https://tinyurl.com/3bm6kcsk

If you are feeling concerned about the Disability Support Services Bill, CCS Disability Action has put together a step-b...
05/06/2026

If you are feeling concerned about the Disability Support Services Bill, CCS Disability Action has put together a step-by-step guide to help you make a submission, even if you've never done one before.

It covers what the Bill is, why it matters, and how to share your experience. You don't need to be an expert. Just a few paragraphs about what disability support means to you and your whānau can help the select committee get a clearer picture of your every day life.

Submissions close June 12 2026, learn more here 👇
https://www.ccsdisabilityaction.org.nz/news/dss-bill-submission-guide

Published 26 May 2026 We have put together a guide on how you can have your say on the Disability Support Services Bill. This includes background info, why it matters, detailed instructions on how to make a submission, and what we are calling for in our submission. Click here to download our ful

"An age-friendly community is one where people are included by design, treated with respect, and supported through colle...
05/06/2026

"An age-friendly community is one where people are included by design, treated with respect, and supported through collective action," — New Plymouth District Councillor Sam Bennett

A great article to read by Taranaki Media.

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A controversial government bill overhauling disability support has sparked a fierce pushback in Taranaki, with advocates requesting local mayors take a united stand against Wellington.

Representatives from Enabling Good Lives Taranaki presented to a full public gallery of aged and disability community members at the New Plymouth District Council Public Engagement Committee this afternoon. Craig Nielsen and Daniel Vanderberg used their speaking allocation to outline the impacts of the Disability Support Services Bill.

Introduced to Parliament by Minister for Disability Issues Louise Upston in May, the legislation aims to provide a foundational framework for how disability funding is used. Upston recently stated the proposed laws will bring clarity and stability to the system by improving consistency and transparency.

However, the bill has drawn widespread criticism for stating families hold primary responsibility for care. It also responds to a landmark December 2025 Supreme Court ruling that recognised some full-time family carers as state employees. The new legislation effectively blocks those carers from claiming minimum wage and employment rights, stating the Crown was never intended to be their employer.

New Plymouth District Councillor Sam Bennett is heavily backing the advocates. He published an open letter asking the Taranaki Mayoral Forum to urgently write to Upston and condemn the bill.

Bennett warned the legislation risks diminishing the autonomy of disabled people while placing an unbearable burden on parents, spouses and unpaid caregivers across the region.

"Future generations will judge us not by how we treated the strongest among us, but by how we protected and supported those who needed our advocacy most," Bennett wrote in his letter.

He noted the issue is highly relevant to local government because about 50% of the New Plymouth district population either lives with a disability or is aged 65 and over. Bennett argued these residents are ratepayers who contribute heavily to the civic life of communities from the Coast to South Taranaki.

"An age-friendly community is one where people are included by design, treated with respect, and supported through collective action," Bennett said.

Minister Upston has defended the new framework. While she acknowledged the Supreme Court decision, she argued there are better ways to recognise carers than treating family members as state employees. The Government has promised to consult on a separate support package for carers in the near future.

Disability groups remain concerned that stripping legal avenues and placing the initial responsibility on families will force more people into financial hardship before any new support package arrives.

03/06/2026

This online discussion is on tonight or there is an alternative session on Monday the 8th of June. Please see original post for more details.

Note: This is a session in regards to the Disability Support Services bill NOT Improving support for family carers consultation.

The MMinistry of Social Development NZis consulting on improvements to Disability Support Services (DSS) and they want t...
02/06/2026

The MMinistry of Social Development NZis consulting on improvements to Disability Support Services (DSS) and they want to hear from disabled people, whānau, families, and carers.

The consultation runs from 8 June to 31 July 2026 and covers some key areas:

- Outcomes that matter in everyday life
- Earlier, more planned support as needs change
- Easier feedback and complaints processes
- Better respite options for carers and whānau
- More choice and control in funded supports
- Clearer information to help people access services

You can have your say through online or in-person workshops, written or recorded submissions, or an online survey.

Consultation documents are available now, and you can register for workshops ahead of the 8 June opening.

Visit the DSS website to read the documents and register 👇https://www.disabilitysupport.govt.nz/improving-dss/improving-support-for-family-carers

Note: This consultation is separate from the Disability Support Services Bill.

DSS invites disabled people, families, whānau and carers to help shape further improvements to disability support services.

Upcoming workshop: Introduction to Vision Creation and Plan MakingAllies Aotearoa are running a free one-hour online ses...
02/06/2026

Upcoming workshop: Introduction to Vision Creation and Plan Making

Allies Aotearoa are running a free one-hour online session on Tuesday 17 June, 7.30–8.30pm to help you explore exactly that.

You'll learn the difference between vision and planning, and come away with practical tools you can use yourselves, no agency required.

It's led by Tony McLean, one of Aotearoa's most experienced facilitators in this space, who has been supporting disabled people and whānau to imagine and plan for their future for over 20 years.

📆 Tuesday 17 June
⏱️ 7:30-8:30pm
📍 Online, details will be emailed after registration

Free to attend. Open to everyone. Register here 👇
https://alliesaotearoa.co.nz/training/introduction-to-vision-creation-and-plan-making/

Creating a vision for the good life you would like to live or like for your loved one, is what we call ‘family business’ at Allies. No agency or organisation can do this for us, they may be able to assist but the vision itself is for us to create…

01/06/2026

We want to hear from you!

We're running a short survey to help us understand where the gaps are in Flexible Funding support, this includes Individualised Funding and EGL — and your experience matters.

Whether things are going well or there are areas where you need more help, your feedback will help us build a clearer picture of what families across Canterbury need most.

As a thank you, everyone who completes the survey goes in the draw to win a $50 Pak n Save voucher!

Fill in the survey here 👉 https://forms.cloud.microsoft/r/wUAexijzFa
It only takes a few minutes and every response makes a difference.

Your Way l Kia Roha is offering a free opportunity that may be of interest to your family or the people you support.The ...
28/05/2026

Your Way l Kia Roha is offering a free opportunity that may be of interest to your family or the people you support.

The Changemakers programme | Kaupapa Kaihanga Panoni is a free 20-week online course for disabled people and allies across Aotearoa. It runs from 6 July to 13 November 2026, with 10 online modules and 10 live sessions, all designed and led by disabled people.

Spaces in this cohort are limited, so it is worth getting an application in soon.

Applications close 19 June.

Read more and register 👉 https://www.yourwaykiaroha.nz/supports/supports-programmes/changemakers/

🌿 Nau mai, haere mai. Join the free Changemakers programme | Kaupapa Kaihanga Panoni for disabled people and allies across Aotearoa New Zealand.

This 20-week course runs from 6 July to 13 November 2026 and includes 10 online modules and 10 live online sessions.

Designed and created by disabled people — nā te hunga whaikaha, mō te hunga whaikaha — it’s a chance to learn, connect, and build your confidence to lead meaningful change in your communities.

✨ Register now! Applications close on 19 June.
👉 For more details, visit: yourwaykiaroha.nz/changemakers

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