The bladder warrior - Jeremy Keen

07/09/2026

Let’s Talk About My Noonan’s Syndrome 💙

I was born with Noonan’s Syndrome, and one of the things I have lived with since birth is a pigeon chest, where the chest is noticeably sunken in. For years, I wanted to have this corrected, and eventually I had surgery, becoming one of the first to undergo this particular type of procedure.

I honestly believed that things were finally going to get better.

Unfortunately, my journey took a very different direction. I went on to experience internal bladder failure for more than 10 years.

Eventually, on 12 September 2025, I underwent major surgery to have my bladder completely removed and a stoma created.

Once again, I thought this would be the beginning of a better chapter.

But things haven't gone the way I hoped.

This afternoon, I received a phone call regarding my Noonan’s Syndrome, and I was told there are now concerns involving several areas of my health, including my kidneys, liver, heart, lower abdomen and bone structure.

Hearing all of this has been a huge shock, and honestly, I'm still trying to process everything I've been told.

At this stage, I know that I need to have regular check-ups and ongoing monitoring, but I don't yet know what the future holds or what the next steps will be.

I'm feeling a mixture of emotions right now fear, confusion, sadness, frustration and uncertainty but I'm also trying to stay strong and take everything one step at a time.

I've spent years raising awareness about Noonan’s Syndrome and sharing my own journey to help others feel less alone. This is another chapter of that journey, and while it's not one I expected, I'm going to continue speaking openly about what I'm going through.

I don't have all the answers right now. I'm simply taking it one day at a time. 💙

Thank you to everyone who continues to stand beside me, support me and follow my journey. It means more than you know.

The Bladder Warrior Jeremy Keen 💙

06/09/2026

04/09/2026

💙 FATHER’S DAY 6TH SEPTEMBER 💙

As we approach Father’s Day on the 6th of September, we want to take a moment to recognise that Father’s Day isn’t the same for everyone.

For some, it’s a day of celebration. For others, it’s a day of remembering a father who is no longer here, a father they never had, or someone who stepped into that role and made a lasting difference.

So, let’s use this post to keep their names and memories alive. ❤️

👇 Tell us your Dad’s name in the comments and let us know if he is still with us or if he is watching over you from above. 🕊️

Do you know a father who has made a difference in your life? Tag him and let him know how much he means to you.

And we also want to recognise the incredible mothers who have had to take on both roles being a mum and a dad. 💐

If there is a mother in your life who has been there for you through everything, tag her and tell us what she means to you.

This Father’s Day, let’s celebrate every father, every mother who has filled both roles, and every person who has stepped up, loved us, supported us and helped shape who we are.

Because sometimes, family isn’t just about a title it’s about the love, support and memories that stay with us forever. ❤️

Let’s fill the comments with names, memories, love and appreciation.

Happy Father’s Day to all the amazing dads, father figures and incredible mums doing both jobs. 💙

01/09/2026

This is another kind of stoma people can have

cervical oesophagostomy (cervical esophagostomy), sometimes called a “spit fistula.” The oesophagus is brought out through an opening in the neck, and a pouch is placed over it to collect saliva and swallowed liquid/food.

31/08/2026

💙 A Little Help Can Make a Big Difference 💙
Hey everyone,

I’d like to ask for your support with something that means a lot to me.

If you have a moment, I’d really appreciate it if you could share my page, react to my posts, and leave a comment. Even something as simple as engaging with a post can help more people discover this page and the important conversations we’re trying to create.

If there’s something you’d like to know more about, a topic you’d like me to talk about, or a question you’ve been wondering about, please don’t hesitate to let me know. Your questions and suggestions help shape the content I share.
This page isn’t just about me. It’s about raising awareness, breaking stigma, sharing real experiences, and letting others know they’re not alone.

Every share, reaction and comment helps this message reach someone who may need it and together, we can make a real difference in people’s lives. ❤️

Thank you from the bottom of my heart to everyone who continues to support, follow and believe in what this page stands for.

Together, we can raise awareness, break the stigma and make a difference. 💙

30/08/2026

Celebrating my 1st year on Facebook. Thank you for your continuing support. I could never have made it without you. 🙏🤗🎉

30/08/2026

Here's a massive question for you all what is in 1 week 6 days ?