All About Parkinson's NZ

All About Parkinson's NZ Sharing info that's interesting and/or useful for people with Parkinson's Disease and their supporters, with a focus on Aotearoa.

If you see something you think the page has missed, please send a message. :)

05/09/2026
This one looks useful.
05/09/2026

This one looks useful.

Join us on Thursday 10th September from 1-2pm for our upcoming webinar on My Parkinson’s meds and me.

This webinar with Neurologist Barry Snow will answer some of the most common questions you have about Parkinson’s medications.

Dr Barry Snow's wealth of experience includes up-to date and expert knowledge of dopamine agonists, MAO-B and COMT inhibitors, apomorphine pumps, newer treatments available overseas, and medications that may help with insomnia and REM sleep behaviour disorder.

During this webinar Dr Snow will also explain the differences between Madopar and Sinemet, slow-release medicines, levodopa dosage and the effects of protein on levodopa.

Register now.

https://us06web.zoom.us/webinar/register/9617876064118/WN_UTlKUFKTSF2dIRxGmV33lw

05/09/2026
03/09/2026

We're at the Australasian Winter Conference for Brain Research in Ōtautahi! Our CEO, Rich Easton, has just shared news of brand-new funding opportunities for New Zealand researchers. These include the exciting inaugural Sir Richard Faull Fellowship and a Neurological Foundation Human Brain Bank travel grant. Are you a researcher who's interested in finding out more?

Check out our website www.neurological.org.nz/apply-for-funding

27/08/2026

If you missed out on CBR Director Professor Hanneke Hulst’s sold-out Raising the Bar talk at The Birdcage, you can still see her tips for keeping our brains healthy as we age.

In her talk, We don’t have a spare: keeping a healthy brain, Hanneke shared the science behind keeping our brains healthy so it can develop, adapt and respond to challenges throughout life.

Read her tips in the NZ Herald: https://www.nzherald.co.nz/lifestyle/how-to-keep-your-brain-healthy-as-you-age-according-to-a-neuroscientist/A4RA4S6YFVCDVKHSB642QZZGRY/

25/08/2026

Alan Alda’s Parkinson’s Story: Keep Moving, Keep Adapting

For millions of television viewers, Alan Alda will always be Hawkeye Pierce—the witty, compassionate Army surgeon from M*A*S*H. Behind the familiar humor, however, Alda has spent more than a decade adjusting to life with Parkinson’s disease.

His story did not begin with an obvious tremor or difficulty walking. It began while he was asleep.

Alda dreamed that someone was attacking him and that he threw a sack of potatoes at the person. In reality, he threw a pillow at his wife, Arlene. After reading that physically acting out dreams can sometimes precede Parkinson’s, he asked to be evaluated.

He was diagnosed in 2015 but did not reveal it publicly until 2018. By then, he had already lived with the diagnosis for more than three years. He explained that he wanted to tell the story himself rather than allow others to notice his symptoms and speculate about his health. CBS News⁠

The symptom that appeared during sleep

Most of us temporarily lose much of our muscle movement during REM sleep. With REM sleep behavior disorder, that protective paralysis may not work properly. A person might talk, kick, punch, grab or leap from bed while responding to a dream.

REM sleep behavior disorder can occur independently, but it is also associated with Parkinson’s and other neurological conditions. It does not mean that everyone who acts out a dream will develop Parkinson’s, but repeated or potentially dangerous episodes should be discussed with a doctor.

Alda’s experience helped many people understand that Parkinson’s can begin long before the symptoms commonly associated with the disease become noticeable.

Choosing movement over fear

After his diagnosis, Alda did not stop working or retreat from life. He continued acting, writing, teaching, podcasting and advocating for clearer communication between scientists, medical professionals and the public.

Movement became an important part of his response. He took boxing lessons, played tennis, marched to music and practiced juggling. His message to others was simple:

“If you get a diagnosis, keep moving!”

That message does not suggest that exercise cures Parkinson’s. It recognizes that regular, appropriately chosen activity can help people preserve strength, mobility, balance, confidence and quality of life.

Alda also acknowledged the fear that can accompany the words You have Parkinson’s. He warned against mentally jumping immediately to the most advanced possibilities. Parkinson’s is progressive, but it is also highly individual. A diagnosis does not reveal exactly how quickly someone will progress or what tomorrow will look like.

A more difficult reality over time

A positive attitude has not made Alda immune to progression.

In a 2025 interview, he explained that managing Parkinson’s had gradually changed from a part-time responsibility into something resembling a full-time job. Everyday problems required new strategies. Tasks that were once automatic could demand concentration, experimentation and assistance.

Rather than pretending those difficulties did not exist, Alda described approaching them as puzzles. When something became difficult, he looked for another way to accomplish it. Solving one of those problems gave him a genuine feeling of achievement. His wife also helped with tasks that had become harder, such as opening packages. People⁠

That is perhaps the most meaningful part of his story. His outlook is not based on denying Parkinson’s. It is based on adapting to it.

There is a significant difference between saying, “Parkinson’s isn’t difficult,” and saying, “Parkinson’s is difficult, but I’m going to keep searching for ways to live.”

Humor as another form of resistance

Alda has always used humor to connect with people, and Parkinson’s has not taken that away.

He looks for the funny side of frustrating situations—not because the disease is funny, but because laughter gives him another way to handle it. Humor can create a little emotional distance from a problem that might otherwise feel overwhelming.

It also allows him to remain recognizably himself. Parkinson’s may alter movement, facial expression, speech and independence, but it does not erase the personality, experiences or values of the person living inside that changing body.

The lesson in Alan Alda’s story

Alan Alda’s experience should not be treated as a formula everyone must follow. Not every person with Parkinson’s can box, play tennis or march around the house. Some are limited by pain, balance problems, fatigue, other medical conditions or advanced symptoms.

“Keep moving” will mean different things to different people.

For one person, it might mean boxing or cycling. For another, it could mean walking to the mailbox, exercising from a chair, practicing speech exercises or simply getting out of bed and participating in the day.

The deeper message is to remain engaged. Keep learning. Keep communicating. Keep adapting. Accept help when it is needed, but continue looking for the things you can still do.

Alda has never claimed that optimism makes Parkinson’s easy. His story shows something more believable: a person can recognize the seriousness of the disease while still refusing to surrender every meaningful part of life to it.

Parkinson’s may keep presenting new problems. Alan Alda keeps looking for new solutions. And whenever possible, he keeps moving.

Address

Hamilton

Website

Alerts

Be the first to know and let us send you an email when All About Parkinson's NZ posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share