All About Parkinson's NZ

All About Parkinson's NZ Sharing info that's interesting and/or useful for people with Parkinson's Disease and their supporters, with a focus on Aotearoa.

If you see something you think the page has missed, please send a message. :)

18/06/2026
12/06/2026

If you’re at Mystery Creek, come say hello to us at the Health & Wellbeing Hub. We’re here to chat about all things brain-related!

Well and truly behind the 8 ball on sharing this as the BOP walk was in April... but there's a personal story in here ab...
11/06/2026

Well and truly behind the 8 ball on sharing this as the BOP walk was in April... but there's a personal story in here about Sonia's path to a diagnosis.
She 'was only 42 and training for a marathon when she noticed symptoms such as muscle tightness, as well as leg and foot cramping'.

Walk, raise funds for locals with Parkinson’s

Found this pic on a sepsis page but it might resonate with people with Parkinson's too.
11/06/2026

Found this pic on a sepsis page but it might resonate with people with Parkinson's too.

Recovering from sepsis is often a long, slow and lonely journey. It can be hard to find people who understand your experience, which makes it even harder.

If this resonates with you, please reach out to our Sepsis Trust NZ Recovery Support and Connect group. This is a private group set up to offer peer support and to share tips/information and comfort for this difficult days. New members are always welcome ❤️‍🩹

11/06/2026

The more we normalize and bring awareness to taboo topics, the less taboo they become. This includes symptoms or challenges related to Parkinson's disease!

Today for taboo Tuesday, we're highlighting intimacy and PD. People commonly feel overwhelmed or too embarrassed to bring up this topic to their doctor. However, exploring new ways to connect and communicate — whether you have PD or you care for someone who has PD — will help strengthen your relationship. 🩵

Here are some suggestions for creating a deeper intimacy with your loved one. Find more at: Parkinson.org/Intimacy

10/06/2026

🌱 We’re at Fieldays! Come find us at stand HW7 at Mystery Creek this week.

The Neurological Foundation is here because brain health matters, no matter where you live or how far from the city you are. 🧠

You can’t miss us - just look for the big brain in the Health Hub 🧠

I know it's not Parkinson's but there's an interesting article in the New Zealand Listener on new Alzheimer's treatment ...
10/06/2026

I know it's not Parkinson's but there's an interesting article in the New Zealand Listener on new Alzheimer's treatment with some familiar themes - clearing buildups on the brain, slowing progression, and the potential for blood tests to help with diagnosis. 📚

10/06/2026
08/06/2026

Parkinson’s Disease is often thought of as a modern illness, but it’s actually anything but modern.

In fact, descriptions of Parkinson’s-like symptoms can be found in ancient medical writings dating back thousands of years. Long before neurologists, MRI machines, and modern medicine, people were already observing the tremors, stiffness, and movement difficulties that we now recognize as Parkinson’s Disease.

For many years, the condition was known as “Shaking Palsy.” That name makes sense if all you know about Parkinson’s is tremors. After all, shaking is one of the most recognizable symptoms.

But here’s where things get interesting.

In the early 1800s, an English doctor named James Parkinson published a detailed description of the disease. His observations were so important that the condition was eventually renamed in his honor, becoming what we know today as Parkinson’s Disease.

Yet even that name can be misleading.

When most people hear “Parkinson’s,” they immediately picture someone with a visible tremor. It’s the symptom that appears in movies, television shows, and public awareness campaigns.

But about 20% of people with Parkinson’s never develop a noticeable tremor at all.

Think about that for a moment.

One out of every five people with Parkinson’s may never experience the symptom most people associate with the disease.

Instead, they may struggle with stiffness, slowness, balance problems, fatigue, sleep disturbances, anxiety, constipation, cognitive changes, or dozens of other symptoms.

Which raises an even stranger question.

How can the same disease affect both your balance and your sense of smell?

At first glance, those things seem completely unrelated.

One helps keep you upright. The other helps you enjoy a meal or notice the scent of fresh-cut grass.

Yet Parkinson’s can affect both.

Many people lose part or all of their sense of smell years before they are diagnosed. Others struggle with balance as the disease progresses. The connection is that Parkinson’s affects multiple areas of the nervous system, not just the parts involved in movement.

That’s one reason Parkinson’s can be so difficult to understand.

It isn’t simply a movement disorder.

It isn’t simply a tremor disorder.

It isn’t simply a balance disorder.

It’s a complex neurological condition that can affect nearly every aspect of a person’s life in different ways.

And perhaps that is the most important thing to remember.

No two people experience Parkinson’s exactly the same way.

One person may have a tremor.

Another may never shake at all.

One may lose their sense of smell.

Another may struggle primarily with balance.

Different symptoms. Different journeys.

The same disease.

That’s what makes Parkinson’s both fascinating and challenging—and why there is still so much for all of us to learn.

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