Leo's SASH3 Journey

Leo's SASH3 Journey Leo is normally a healthy, happy teenager, except he has an auto immune disorder called SASH3 that is potentially life-limiting.

Follow his journey to race in orienteering and get a stem cell transplant as a potential cure.

Excited to announce another fundraising event to support Leo to travel to the USA for treatment! We're getting closer to...
25/05/2026

Excited to announce another fundraising event to support Leo to travel to the USA for treatment! We're getting closer to confirming the trip as we wait for news on scheduling from the team in the USA.

Grampians Full Moon Rogaine - 2-Hours navigating around this iconic inner city park. Pre-entry coming soon.
Wednesday 1 July 2026 between 6 and 8pm

Thanks to Jodie Fa'avae and Jane Lambert for organising! ❤️

Massive thank you to Nelson Orienteering Club for hosting the event and donating proceeds to Leo's cause ❤️

Also, a huge thanks to Orienteering NZ who will be donating the event levy to our fundraiser ❤️

Woohoo!!!Very excited to announce the next event linked to our fundraiser for Leo's treatment. The Aniseed Ascent on 25 ...
12/05/2026

Woohoo!!!

Very excited to announce the next event linked to our fundraiser for Leo's treatment.

The Aniseed Ascent on 25 July 2026! A 10km or 20km trail run.

A massive thank you to Dougal Shepherd for making our cause the beneficiary of the second running of the Aniseed Ascent. A huge thanks to Tasman Pine Forests Limited for access to private land for the event. https://www.aniseedascent.co.nz/

The second edition of the Aniseed Ascent, is a unique trail race set in the rugged beauty of the Aniseed Valley, just outside Nelson. Starting at the iconic Twin Bridges, this event takes runners deep into the heart of the Tasman Pine Forests estate, where private dirt forestry roads wind their way through a dramatic landscape of pine-clad hills and unique terrain.

Event page for updates and socials:
https://www.facebook.com/events/aniseed-valley/aniseed-ascent-v2/26952923227676999/

Entries:
https://www.aniseedascent.co.nz/entry

27/04/2026

Thanks so much to Jenny Willers, her family and friends for their work and support in putting on the movie night fundraiser for Leo this evening! They raised $409 to support us.

Massive shout out to Mark from State Cinema Motueka for hosting the event. It's greatly appreciated.

As an update on Leo, last Friday was spent as a day patient at Nelson Hospital getting IV immunoglobulin after another immune flare. We're currently waiting to hear from the team in the USA to hopefully schedule the transplant for later this year. Fingers crossed we find out soon!!

UPDATE: Get your ticket from Motueka State Cinema tomorrow!!!A massive thanks to Jenny Willers, a Year 13 student at Mot...
22/04/2026

UPDATE: Get your ticket from Motueka State Cinema tomorrow!!!

A massive thanks to Jenny Willers, a Year 13 student at Motueka High School, for organising our next fundraiser for Leo. You can read about this amazing young woman and her adventures here:
https://www.topsouthnow.co.nz/news/6977de992313dd451dc3dee5

Jenny had already organised the event as a fundraiser for her next adventure but after learning about Leo's story reached out to support him instead.

If you have a student at Motueka High School you can shout them out to the movie by buying a ticket at the school library or get a couple for yourself.

Wow! What an amazing fundraising quiz night.$2,000 raised after a very generous top up from our hosts at Sprig and Fern ...
31/03/2026

Wow! What an amazing fundraising quiz night.

$2,000 raised after a very generous top up from our hosts at Sprig and Fern Tavern Motueka.

Massive thanks to our hosts and to Maia and Meeka for organising. Thanks too to all the generous donations for the prize raffle.

Look out for another fundraising event soon.

Address

Port Motueka

Website

Alerts

Be the first to know and let us send you an email when Leo's SASH3 Journey posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Leo's SASH3 Journey:

Shortcuts

Share

Category