Roy-Reigns 18 Reasons

Roy-Reigns 18 Reasons hei kakano tonu 🀜✨ Mauri Oraβœ¨πŸ€›

Malo, Kiaora my name is Roy-Reigns, I want everyone to know that being rare can sound scary but I am having the best time learning I was diagnosed with Tetrasomy 18p but I am so much more.

05/06/2026

So proud of Roy! We’ve been encouraging him to handle his own medication, and it’s been a game-changer. πŸ’Š No more finding "lost" tablets in random spots.

He now understands what each dose is for and has turned a difficult chore into a great routine. He’s a pro now! πŸ‘

04/06/2026

❀️ Kiaora, Malo, Hi, Howzit πŸ˜ƒ

Things have been hectic, but baby Roy is doing amazing!

Hope everyone is doing well on your end.

Budget DIY hack! πŸ–ΌοΈ Got these Shein prints for $13 of son. Canvases were $29 EACH no thank you πŸ˜† so I went thrifting ins...
03/06/2026

Budget DIY hack! πŸ–ΌοΈ Got these Shein prints for $13 of son. Canvases were $29 EACH no thank you πŸ˜† so I went thrifting instead. Found a Bruce Lee poster canvas for $5 and spent $9.50 on black paint. Made 9 custom photo canvases for a fraction of the cost!

Best part after his brithday we can put them up in our house 🏠 πŸ˜‰

Counting down the weeks to celebrate πŸ₯³ our beautiful boy, 10 years old wow!!!!!

30/05/2026

Roy often gets up before us, so i normally found him doing something, this morning watching clips of Random Acts Of Batman.

His world is so full with magical people ✨️ thankful for each one of them.

Good Morning Whānau (family)

29/05/2026

Today's Budget makes disabled people's lives more restricted, harder to live in their own communities, and less visible to the rest of the country.

The Government is calling it a record investment. The numbers tell a different story – a Disability Allowance baseline in long-term decline, a one-off return of underspent money repackaged as a lift, community-based supports squeezed, and a quiet cut to the small ministry whose job is to advocate for disabled people inside Government.

26.9% of disabled children are already living in material hardship – more than double the rate for non-disabled children. The median disposable income for disabled households is $45,693, compared with $56,485 for households with no disabled people. Against that backdrop, this Budget makes ordinary community lives harder to live, not easier.

At CCS Disability Action we are sitting with whānau every week who are choosing between trips to medical appointments and trips to see family, between running essential equipment and heating the house, between food in the pantry and a school excursion for their child. These are kitchen-table decisions, made by people who are doing everything right and still falling behind.

πŸ“ We are asking the Government for three things:
1. Lift the Disability Allowance in line with the actual cost of being disabled.
2. Rebalance Disability Support Services toward flexible, community-based supports.
3. Reverse the cut to Whaikaha - Ministry of Disabled People and resource it to do its job.

A country that narrows the lives of one in five of its people is a smaller country for all of us. We can choose differently.

πŸ”— Read the full op-ed by our Chief Executive Mel Smith (link in comments).
➑️ Share if you agree.

Image description: On a light green background is a circular photo of dollar bills. Underneath in green is the headline: Budget 2026 risks further isolating disabled people. Image has rounded corners, a white border, and the CCS Disability Action icon in the top left corner.

29/05/2026

When you wake up to your kid munching on chips lol πŸ˜† Mr independent

28/05/2026

A little brithday waiata to anyone that maybe having a birthday πŸŽ‚ πŸ₯³ from Roy.

Good night whanau

27/05/2026

Music is such a huge part of his healing journey, and I couldn't be prouder. 🎢

This is how our boy preps for bed: shower with the music playing, and teeth brushing with the music blasting. I really do have the coolest kid. πŸ’™βœ¨πŸ˜Ž

Do not own music rights, just the kid lol.

27/05/2026

Throw back !!!!!

Times got hard!!! with out big boy, but we never stopped dancing,hopping and praying πŸ™.

Now look we are three weeks away from our boy being 10 πŸ‘Œ 😲 ❀️ .....

Have some exciting goals to share with you guys soon 😊 πŸ˜€ ☺️ πŸ˜„ ✨️

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Whangarei
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