14/05/2026
Nuestra solidaridad y apoyo te acompañan siempre, querida Luz, manteniendo viva la llama de la esperanza y la determinación para seguir adelante con valentía, dignidad y fortaleza en cada paso de tu camino, iluminando tu sendero con fe, amor y coraje. 💖✨💫🌟💪
Luz │ Venezuela
"My name is Luz Osorio. I am 32 years old, a physiotherapist, and I have been living with pulmonary hypertension for 11 years. I am Venezuelan. And like many patients, my story is not only about a disease. It is about everything we have had to go through just to be able to live.
When I was first diagnosed, I was told I had idiopathic pulmonary hypertension. It was only after leaving my country that I received a more precise diagnosis: a congenital heart disease associated with Eisenmenger syndrome. That change was not a coincidence. It was access. Access to tests, to specialists, to opportunities I simply did not have in Venezuela.
In Venezuela, treatment options are very limited. In many cases, only one therapy is available, and even that is not guaranteed continuously. Patients deteriorate every day, losing not only their health but also their hope. The advances that are changing the course of pulmonary hypertension around the world, treatments proven in clinical trials to improve lives, do not reach everyone. And that is why I had to migrate.
Today I live in Colombia, where I have been able to access triple therapy and regain stability. But my condition has progressed, and I have already been told about the possibility of a heart-lung or double lung transplant with correction of the congenital defect. A highly complex surgery that, in my environment, still does not have favorable outcomes.
My story is not unique. It is the voice of many patients in Venezuela and across Latin America who do not have access to timely diagnoses, appropriate treatments, or clinical trials.
It is not fair that we have to leave our country just to have a chance to live.
We need access. We need equity. We need innovation to reach those who need it most. Today I raise my voice, not only for myself, but for all those who are still waiting."
— Luz Osorio, Venezuela/Colombia 💙
➡www.worldphday.org
➡www.phaeurope.org
➡www.belaircenter.info
