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Wilchi Paddy Kapin's Retinoblastoma Treatment, Port Moresby (2026)

03/08/2026

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I can only imagine Wilchi growing into this practice.

This will make hospital visits much easier as he grows older.

For now we are taking each day at a time. 😇❤️

02/08/2026

Blessed Sunday Family & Friends.

We hope you all are doing well.

Soo much has happened during our last post in June.

Upon Wilchi's teleconsult with the Pediatrician ENT Doctor we are scheduled to visit soon to do a deep sleep pattern test and to check his nasal passage before he goes In for brain MRI Scan and eye examination at the end of the year.

Over this 2 months he lost 4kg, stop wearing diapers and just gained a lot of energy. He has been sleeping well without snoring since he was prescribed nasal medication.

He also got sick with Denque with symptoms of diarrhea and no other symptoms except been overwhelmingly weird and hyper.

He has also picked up a habit of throwing things off the verandah and doesn't want to wear clothes.
And this is something we are concerned about but slowly trying to help him.

Wilchi doesn't want to do the basic ABC and numbers anymore, his more into advanced learning about trucks/machines/animals/food/buildings and modifications.

So far his been doing well and we hoping to get him into school once he starts wearing clothes. ☺️

September is the month of childhood cancer and will be sharing Awareness of Retinoblastoma and hopefully selling yellow ribbons 🎗 to raise funds to support Wilchi's ongoing fundraising.

We have fought to come this far and we are incredibly blessed to everyone watching Wilchi's page and praying for him. 😇🙏🏻

Just a sneak peak of some of Wilchi's wrist band throughout the 3 year's of Intraocular Chemotherapy, MRI scan and eye examination under anesthesia that I found whist cleaning. ( flash backs brings tears ).

And another photo of Wilchi loving the outdoors at Gaire. 😍

15/06/2026

Good morning Family & Friends

We hope you all are doing well.

This week marks a special week for Wilchi as we commemorate his life and his milestone in reaching the age of 5.

Wilchi was diagnosed with retinoblastoma at the age of 19 months ( 1 year, 7 months).

He has battled this disease for 3 years and we are proud to say he hasn't done any chemotherapy since February 2024 after his right eye removal.

As we prepare to welcome his 5th Birthday this Sunday 21st June, we also take this time to pray for those of you that supported us and prayed with us in this Healing journey.

Recently during the last month Wilchi has picked up on the viral infection and has been on and off antibiotics for his flu.
This has caused irritation to his eye causing it to get crusty . He had his eye removed one morning on my way to work so I advise Wilchi grand mother to rinse it in warm water ,pat dry and place in a small clean container.
It was after 3 months that we got that opportunity to have his eye washed out properly before fitting back .

We also noticed that he has gained alot of weight and has difficulty breathing at night.

3 weeks ago we saw his Pediatrician at Rainbow PIH, Wilchi was than referred to a Ear,Nose and Throat specialist at PIH 3 mile.

The specialist was unable to inspect his nose properly and referred us to get a thyroid test and go back to see the Pediatrician to check if anymore test are needed.
I asked him if the hospital could put Wilchi under general anesthesia to diagnose him properly and the Doctor said they can't do that.

The ENT specialist suspects that Wilchi has Hypertrophy of Adenoids ( enlarged tissues of the nasal passage).

This may need antibiotics or surgery but no proper explanation if it is serious or not.

We reached out to a pediatrician ENT in St Lukes Manila to have a teleconsult regarding the suspected remarks and his previous brain MRI Scan that also reported which this information was overlooked in February 2026.

The ENT teleconsult is scheduled for this afternoon so please Pray for good results .

Wilchi is super active and full of life, he speaks very good english ( fancy and cute), his still in diapers which we are still trying to get him off .It has been a struggle but will manage someday.

Our resilience to keep him fighting is worth celebrating and you all should be proud of yourself as you have been apart of his thousand stories to tell in this Healing journey.

Soon to 5 years old and a little snick peak of how his progressing.

27/04/2026

Good night family and friends.

I hope you are doing well. I believe it has been 2 months since our last post since Wilchi's last review in February.

Wilchi has been doing well, all thanks to your continuous prayers and support .We continue to ask for your prayers as he continues his journey til the age of 7 years to be cleared from cancer.

It hasn't been an easy journey but are still grateful for everything we have been through.

In the photo collage attached is Wilchi in 2023 during his chemotherapy (2 years old).
2nd photo in 2024 after eye surgery (3 Years old)
3rd photo in 2025 after his 6th medical review (4 years old)
4th photo in 2026 after his 7th review (soon to be 5 years).

So much has changed except for his precious smile and strength.😊

This photos tell a story saved by a thousand prayers🙏

I wanted to take this time to remind parents about the importance of been alert when it comes to your children's health. If you feel that something is not right with your child or their behavior is different, take time to get them checked.It could be a long shot but prevention is better than cure.

Retinoblastoma rate is increasing every day in our country and I hope in our posts we have shared over the years has helped bring awareness and comfort to those facing a similar situation like us.

For those of you that are parents to Retinoblastoma children we are here if you need guidance or someone to talk to. Always remember that when you open up to others you allow God to heal you.

We were blessed on Easter by an Angel (organization)that will be covering Wilchi's medical review in September.😇🙏.

God is amazingly good.❤

We acknowledge all your love and prayers as we continue to pray and stand for those praying with us and praying for us.

27/02/2026

Good morning,Family &Friends.

We arrived back in Port Moresby a week ago and tried getting Wilchi settled into his normal routine however after 5 nights his sleep pattern didn't change and the hot humid temperature was not in our favor causing a lot of irritation to his new prosthetic eye.

Wilchi had his new 2nd prosthetic eye fitted on the 16th February as the original prosthetic eye was unable to adjust due to a slight crack and needed to be replaced.

The new prosthetic eye is slightly bigger in size to accommodate for Wilchi's growth and may last for another 1-2 years.

On the first day upon arrival at home Wilchi was constantly rubbing this right eye until his prosthetic eye fell out and it took alot of tossing, Turning and men power to finally fit it back.

We are happy to be back and our family will also be planning another trip in the next 4-6 months as per Doctors request so I'm reaching out to business houses,individuals or organizations who are willing to donate towards Wilchi's healing journey.

Each trip costs roughly K30,000 for eye examination,MRI brain scan, 4x Doctors consultation,lab tests,accommodation, airfares, transportation and meals.

The purpose for the regular visits is because Wilchi carries a RB1 gene that can develop into other forms of cancer at any time and therefore needs to be monitored.

We will be organizing a little fundraising to get us back on track and will advise in our next post.

Once again thank you all for your continuous support and prayers😇❤.

.

15/02/2026

Good night Families & Friends

This week we started off 11.02.26 with a visit to the Paedatric oncologist who we were referred to by the genetic specialist as per our last visit in September last year. Our next visit will depend on the results after the procedure.

At 11pm Wilchi started his 8 hour fasting in preparation for his procedure under general anesthesia.

On Thursday the 12.02.26 at 7am Philippines time Wilchi underwent his brain MRI contrast scan and a brief eye examination.

This procedure took abit longer than usual 30-35 minutes however it took an hour because Wilchi kept waking up during the procedures which made it difficult to take a clear brain scan. Luckily they managed to get it down.

Wilchi weighs 30.2kg and under general anesthesia it's not safe for him as his tonsils and nasal passage are quite large causing him to snore and lose oxygen thus waking up regularly.

Our mission is to take him out of the house and join kids activities to help him lose abit of weight to prevent this from happening again.

Wilchi attending Dr Honeylen Teo also did a brief eye examination and found that Wilchi left eye is clear with no abnormalities but may need his prosthetic eye replaced, she also stated that upon the review with the radiologist she explained Wilchi's Brain scan was normal.

After an hour's procedure and another hour In recovery we were than discharged.🙏

Even after an hour of been drugged and with his left eye been overly medicated and blurry, this kid had so much energy that I couldn't even match🤭

After a Goodnights rest we set off for another doctor's visit on Friday 13.02.26 to Pampanga. It's approximately 2 hours drive. We hired a vehicle and a driver for this return trip that cost K500. I would say it's the best option for us despite Wilchi's condition.

Upon arrival at the Ocularist, Wilchi's prosthetic eye was removed. It took alot of strength to hold sponge Bob big guy down. 😅

After a 6 hour wait, Wilchi eye was than fitted back and we were told to return on Monday 16.02.26 for another prosthetic eye fitting.

We got stuck in traffic for 4 hours upon arriving back at our apartment. 🤕

Some days are very challenging but we got enough faith to keep us going.😇

Monday we are scheduled for the prosthetic eye fitting.

Tuesday pick up medical records dating since 2023

Wednesday see the Paedatric oncologist to review medical reports and schedule a next review.

Wilchi is doing extremely well and since he carries the Retinoblastoma gene he is required to carry out a MRI brain scan every 4 months until the age of 7. We are praying we find sponsors for our next trip.

We are grateful for his life and how far he has come. God has really blessed him and we would also like also say thank you to everyone that's always praying and supporting Wilchi. 😇❤❤🙏

God Bless you All.

08/02/2026

Hi Family & Friends

February is the month of love but for us this special month not only broke us back to 2023 but also gave us a new perspective of life.

In a recap since 2023 til today;

February 2023 Diagnosed with cancer.
February 2024 Eye removal (surgery)
February 2025 4th Medical review
February 2026 6th Medical review and new prosthetic eye.

February, 8th 2026 today also marks Wilchi's 2nd year Anniversary since his eye surgery.

God has been so amazing 😇❤

This will be our 4th Valentines away from our beloved family but we know we are blessed despite the distance.

On Friday the 06th we embarked on another healing journey for Wilchi to the Philippines.

Our schedule started upon arrival as we took a 1 and half hour drive, one stop at home to drop off the cargo, feed Wilchi with his favorite rice and Ox palm before the tears and screaming.

Made it to St Luke's hospital at 7.30pm Png time and managed to get his Chest X-ray, full blood works and Creatinine (kidney) test completed than back home by 8.30pm.

Yesterday the 07th February Wilchi had to see another Paediatrician as his other Doctor had a busy schedule.
Wilchi's blood and chest X-ray results came back normal and was than Medically cleared to undergo his eye examination and brain MRI scan next week Thursday 12th February.

Since Wilchi has been cleared we have to stay indoors as there is a lot of infectious virus going around due to the weather possibly due to a Typhoon in the North of Manila.

We have a very busy schedule next week with having to see a Paediatric Oncologist, eye examination and brain MRI scan under general anesthesia and a 2x road trip (2-3) road trip to Pampanga to see and Ocularist for Wilchi to have a new prosthetic eye.

We are blessed to celebrate Wilchi's healing journey in this beautiful month of Love ❤️

Thank you all to everyone that supported and prayed for us to be back in Philippines again.

We are back and Cancer got nothing on us.

04/02/2026

Goodnight Family & Friends

Today marks a special day "World Cancer Day". This reminds us of our journey to save Little Wilchi and not forgetting other surviors and those who have fought hard but lost their battle to cancer.

We continue to pray for all those battling cancer but especially for a good health system for our country PNG.

Wilchi Paddy Kapin's Retinoblastoma Treatment

03/08/2026

02/08/2026

15/06/2026

27/04/2026

27/02/2026

15/02/2026

08/02/2026

04/02/2026

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