Niikolo’s Journey

I am Niikolo's mom and I created this page to knock on your kind hearts for support an help. Niikolo was born with several congenital anomalies.

1. Congenital Heart Disease - is a defect in the structure of the heart and great vessels that is present at birth. Niikolo's heart defect is clasified as Ventricular Septal Defect which is defined as a defect in the ventricular septum, the wall dividing the left and right ventricles of the heart.

2. Imperforate A**s - Imperforate a**s is a defect that is present from birth (congenital). The opening to the a**s is missing or blocked. The a**s is the opening to the re**um through which stools leave the body. ( http://www.nlm.nih.gov/medlineplus/ency/article/001147.htm)
He had his colostomy operation during his 2nd day of life and is now using a colostomy bag as his way of disposing his stool.

3. Radial dysplasia (radial club hand, radial longitudinal deficiency) is a congenital difference occurring in a longitudinal direction resulting in radial deviation of the wrist and shortening of the forearm. ( http://en.m.wikipedia.org/wiki/Radial_dysplasia). He haven't had any therapy yet for his RIGHT hand but despite of his hand's deformity, Niikolo have his own way of using it. Which is really amazing to see. Our family isn't wealthy to produce the money that's needed for Niikolo's Open Heart Surgery. We've been reaching out to several organizations to seek for medical and financial help or any kind of assistance that we can get to come up of the amount needed for the surgery. As parents, we never wanted to see our children suffering even from the simplest form of illness, what more if the illness requires an operation? We do not expect too much but we are hoping that you will find time to read Niikolo's journey. Other than money, your prayers are far more important. Thanks and regards,
Mayo