Stories of Aria

Stories of Aria Stories of Aria is dedicated in spreading awareness to Beckwith-Wiedemann Syndrome.

30/05/2026

15/05/2026

The medical journey continues..

08/05/2026

ARIA'S FIRST SHOES AFTER 3 YEARS

A year ago today, Aria braved two simultaneous surgeries: tongue reduction and diaphragm plication. ✨We were scared, unc...
23/04/2026

A year ago today, Aria braved two simultaneous surgeries: tongue reduction and diaphragm plication. ✨

We were scared, uncertain, and hopeful all at once. The decision wasn't easy, but it was worth it seeing Aria live a better life after the procedures. We are grateful for the strength we found in people who supported us and the healing that followed. Today, we celebrate our family's resilience, growth, and progress. ❀️

Big shoutout to our dearest surgeons, Doc Kathy and Doc Lissa! 🫢

1 MONTH POST-OP UPDATEThe pin has been removed from her 5th digit! Today is our first day to wash her surgical wound. An...
20/04/2026

1 MONTH POST-OP UPDATE

The pin has been removed from her 5th digit! Today is our first day to wash her surgical wound. Another milestone! ✨

When you thought the expenses ended at the hospital, but the post-op necessities are also expensive. πŸ˜‚

17/04/2026

A Day in Our Life As Aria's Parents ✨

10/04/2026

On this week's episode of Aria and her free will ✨

April 6 is BWS Day πŸ’šπŸ’›It is very timely to share this post of Dr. Raymond Nichols which summarizes the life of parents wi...
06/04/2026

April 6 is BWS Day πŸ’šπŸ’›

It is very timely to share this post of Dr. Raymond Nichols which summarizes the life of parents with a child with rare condition.

It is not easy, but it gets better. ✨

It's been a week after the surgery! Sharing a few things about the surgery last week. Thank you for being with us up to ...
28/03/2026

It's been a week after the surgery! Sharing a few things about the surgery last week. Thank you for being with us up to this day 🀍

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