The Walking Spondies

25/05/2026

Hey WalkStars! We have entered the last week of Walk Your A.S. Off with Spondylitis Association of America. Don't forget to log your steps for last week!

I just entered my step count as well as Anne-Marie's step count. As a pro athlete who is engaging in numerous kinds of sports at 70 years of age, she is clocking over 100,000 steps a week easily.

I won't share my step count. I'll only say that I am getting my steps in every single day the best way I can: walking, stretching, and seated movement.



See you at the finish line!

Chronically yours
Carrie Marshall
Team Captain of and Founder of My Several Worlds

(Yup, still averaging 3-4 appointments a week. 🫠)

25/05/2026

Go WalkStars, Go!

19/05/2026

Hey WalkStars! Have you logged your steps for Walk Your A.S. Off ?

The Walking Spondies
are walking for awareness with the
Spondylitis Association of America and 50 other teams around the world. We hope you'll join us in this last half of May.

I've posted the log in link in the comment section so you can log your steps.

18/05/2026

Check out these WalkStars for Walk Your A.S. Off!

16/05/2026

It's and . Did you know that team members also walk for awareness for these awareness initiatives during May too?

Purple for in 2026. It's my first fibro awareness event in Canada after 17 years.

I've supported Kristal's annual event since 2018. Maybe longer? Time to !

I try to support all my friends and their awareness initiatives. This one is for Kristal Kent, author of The Fibromyalgia Pain Chronicles and Veteran Voices For Fibromyalgia. 💜

11/05/2026

Hello WalkStars! It's time to log your steps! (Check the link in comments to see where to log your steps.)

I'm introducing a new member to our team today and she's moving like wildfire. Meet Anne-Marie! I call her The Legend. This was her response last week when she sent me her totals.

“I am hardly a superstar athlete. I just love my ability to do triathlons even at 70.”

Over the past 10 days, her training included:
🏊‍♀️ Multiple long-distance swims
🚴‍♀️ More than 130 km of cycling
🏃‍♀️ Long run/walk sessions up to 20 km
💪 Strength training, Pilates, and interval work
🐾 And even extra walks with Sammy
This adds up to 206,000 equivalent steps of movement!

What inspires me most about Anne-Marie's mindset:

“My motto is keep on moving — whatever you can do that will help you enjoy life.”

That is exactly what Walk Your A.S. Off and The Walking Spondies are all about.

Movement does not have to look perfect. It does not have to be fast. It does not have to break records. It just has to keep you connected to life, joy, community, and yourself.

Anne-Marie's passion is triathlons and aquabike. At 70 years old, she is still showing up, still moving, and still proving what is possible with determination and love for sport.

Absolutely inspiring. 🌟

Are you moving for awareness with us this May?

Chronically yours,
Carrie Marshall, Team Captain of The Walking Spondies

Spondylitis Association of America x My Several Worlds - Chronic Pain and Disability Awareness

03/05/2026

Hiya friends! I was super busy this weekend at and it rained yesterday. I got out today on after chatting with Sean Ewert and Manny Caro at Spondylitis Association of America!

Reasons to watch my video:
1. Why we are moving in May
2. How you can join us!
3. Where to log your steps. (See comments)
4. How to grab steps if you can't walk or stand for long like me.
5. How to get your Million Step medal. It's much easier than you think!

Walk Your A.S. Off

01/05/2026

Hello WalkStars!

It's THE big day! May is here!

The starts today. Join the Spondylitis Association of America for its 8th Annual Global Spondyloarthritis Summit for two days of free, virtual presentations by the world's leading experts on Spondyloarthritis. (I'm looking forward to Dr. Kuhn's presentation on the latest research on SpA.)

Join us here: https://spondyloarthritissummit2025.vfairs.com/

May 2 is Day two of the Summit. It's also .

On May 3, we move into joining the SAA for a Zoom check-in with fellow Walk Your A.S. Off walkers from around the world. Sean Ewert and Manny will be hosting.

💙 Wear blue. 💙 Pay attention to your step count and movement this month. Log your steps with us

Help us continue walking through the Stars to Mars in our 14th year of raising global awareness for SpA.



➡️ I'm pleased to say I'm covering the Spondy Summit again for the SAA and look forward to another summit jam-packed with great info.

It's a fantastic way to learn, network and connect with experts and patients, while sharing the most up to date information on Spondyloarthritis with your own community.

Meet renowned rheumatologists and other health experts who provide the most up-to-date findings and medically reliable and comprehensive information on essential topics that matter to those living with the disease.
🔗
Register for free here:
https://spondyloarthritissummit2025.vfairs.com/

30/04/2026

Tomorrow we start walking for Walk Your A.S. Off!

The Walking Spondies have been walking for awareness for well over a decade. See you at the starting line with Spondylitis Association of America and friends.

Hello, Walk Your AS Off community! It’s time to lace up!

Sign up to say hi in our Zoom room on Walk Your AS Off Day, Sunday, May 3rd. It’s also a great day to let everyone know that we're so close to our fundraising goal of $25k!

Don’t forget to log steps and join a team for the May challenge, results will be posted in early June.

See you on Zoom for the walk kickoff on May 3rd ! The Zoom room is open from 9:00 AM Pacific Time to 6:00 PM Pacific Time.

See you there. Keep finding your happy pace!

https://youtu.be/aCQ3hRL2GAk?si=Xxt9TklO6vW2KBQe

13/04/2026

Hey WalkStars! This train is moving out of the station.
📣👣 I’m looking for walkers for The Walking Spondies. We're moving to raise awareness for Ankylosing Spondylitis through Walk Your A.S. Off. Spondylitis Association of America is leading the way!

Life with aka is a pain in the AS!

Join us in our 13th year of walking for awareness with .

❓How can you help raise awareness for Ankylosing Spondylitis? Join us here
🔗 https://spondylitis.org/walk-your-as-off/

Life with / is a pain in the AS!

The Walking Spondies are looking for walkers for 2026. Join us for with ! We're in our 12th year of walking!

I got my diagnosis in 2009. By 2014 I was out of remission for the second time. I feel like I got into bed in Dec 2014 and never got out! That was the end of my life as I knew it. My arthritis has left me bedridden, housebound, and it has changed my body in ways that are irreversible.

All my joints are affected, but my knees have been ravaged by this disease. I never believed that I would become housebound or bed-bound, but that is what has happened. It's my new normal.

I’m no longer able to walk in this event like I used to, but I’m still logging steps with my team. We're walking through the stars to Mars! 🌠

❓How can you help raise awareness for Ankylosing Spondylitis?

📣👣 I’m looking for walkers for The Walking Spondies. We're moving to raise awareness for Ankylosing Spondylitis through Walk Your A.S. Off. a is leading the way!

Join !

Learn more here: https://spondylitis.org/walk-your-as-off/