What is Scleroderma

08/26/2026

Ladies with Scleroderma and menopause, this is for you! Click the link to participate: https://redcap.link/menopausessc

12/09/2025

Friday, December 12th at 2:00 PM Eastern

Explore the Future of Scleroderma Treatment! 🔬

Join Dr. Dinesh Khanna and Dr. Monalisa Ghosh for an in-depth webinar on cell therapies in systemic sclerosis.

Learn about potential benefits, who may qualify, and where to find information on upcoming clinical trials.

Register today at https://ow.ly/FTco50Xqw3j

11/21/2025

💙 Before scleroderma, there was friendship. Later, both were diagnosed with the same disease.
Kay and Carol, former teachers, share their journey after both being diagnosed with scleroderma.
Kay and Carol, former educators, share how they’re facing scleroderma with courage and connection.
🎥 Watch their journey in this short video:

...

11/19/2025

The Chronic Crusaders crusaded to see Carol and Kay. Watch as Sheri Harworth Hicks and Carol talk about her journey with scleroderma.

Meet Carol. A fighter, advocate, and inspiration. In this Chronic Crusaders spotlight, she opens up about her journey with scleroderma and how she’s turned c...

11/18/2025

What happens when you have Carol and Sheri talk about the rainbow of Raynaud's colors.

07/01/2025

🥸Have You Taken Our Quiz Yet?
Click on the image below
👉We need your feedback! You will receive an email requesting your input. Please share your thoughts with us!
📩You'll have to provide your email address to get your results!

Dive into our exciting pop quiz, learn more about scleroderma, and put your understanding of scleroderma to the test. Are you a Scleroderma Explorer, Enthusiast, or Expert?

06/20/2025

🌞 Summer Joy Bingo is in Full Swing! 🌞
June and July are all about finding joy in the little moments, and Summer Joy Bingo: Scleroderma Edition is here to make it even better!

🎯 How to play:
-Join the private Facebook group Scleroderma Backers
-Complete as many squares as you can!
-Snap a pic of your favorite moment and share it in the comments! 📸
-Tag and invite your scleroderma friends to join in
-Blackout Challenge🏆: Complete all squares. Take a photo of your filled card and post it along with three pictures of your favorite activities in June and/or July for a chance to win a special prize! 🎁

📝 For a paper version, send me your email address at [email protected] or DM me, and I will send you a printable Bingo card.
-Let’s make summer joyful and meaningful—together! ✨

06/16/2025

🚨 Reminder! 🚨
The wait is almost over—Sheri’s Scleroderma Session is happening tomorrow!
✅ Tuesday, June 17th
✅ 6:30 PM ET on Zoom
✅ Featuring Andrew Buttieri Botieri Helene Golston and Barbara Butorovich
Don't miss this chance to hear powerful stories and connect with others who truly understand. See you there!
Join the Scleroderma Backers for the Zoom link.

06/15/2025

🎉 Meet The Guest Speakers🎉
Join us on June 17th at 6:30 PM ET, featuring powerful journeys, advocates, and changemakers.
📚 Andrew Buttieri Botieri has written a book
🥳Helene Golston and Barbara Butorovich run thriving Facebook communities - Adapting to Scleroderma and Thriving with Scleroderma
Their stories will educate, uplift, and empower—so don’t miss out!
🔗 Zoom link posted on Monday and Tuesday in the Scleroderma Backers group. Join to get the link. You don't have to turn on your camera.
📧Comment or DM me your email address for a reminder.