Patients For Patient Safety US

10/08/2026

We’ve been working with HHS, and our president and CEO, Susan Sheridan, presented to the Physician-Focused Payment Model Technical Advisory Committee in June, and the report was recently published, mentioning our work!

From the report: “In embarking on designing a patient safety model, CMS should consider and collaborate with other organizations that are promoting patient safety. For example, Patients for Patient Safety US (PFPS US), as part of its Project PIVOT (Patients Involved in deVeloping Outcomes Together), has proposed an earn-back model whereby payment is withheld for failure to meet benchmarks but can then be earned back by demonstrating improvement. The PIVOT Model emphasizes patient-reported measures.”

“Patient-reported experience and outcome measures have not been broadly used, but they are critically important, providing value by measuring what matters to patients, transparency by revealing potentially hidden harms, and accountability by making patient experiences measurable. It is important to include patients and their caregivers in the creation of patient-reported measures to ensure that what matters most to patients is being measured and identified. Recently, PFPS US, through its Project PIVOT, has focused on creating patient-reported experience and outcome measures, such as asking patients about whether they experienced unexpected harm, were treated differently due to personal characteristics, felt their concerns were dismissed, were informed of how to report a concern about patient safety, were informed of how to escalate care or obtain a second opinion, and were provided test results. These questions were developed for use in hospitals but are being refined to also apply to ambulatory care.”
Read more here, and if you want to see the presentation from June, the link is in the comments!https://aspe.hhs.gov/sites/default/files/documents/c332e799c48465352db04973688a6894/PTAC-Jun-2026-Patient-Safety-RTS.pdf

10/06/2026

"He said studies showed doctors more often attributed women’s symptoms to anxiety and made more diagnostic errors with female patients, even when test results were positive."

Men with heart, kidney or liver conditions more likely to be offered intervention compared with women, global analysis finds

09/30/2026

Patients for Patient Safety US (PFPS US) today announced the appointment of Dr. Charity S. Watkins and Vonda Vaden Bates to its Board of Directors.

Both bring lived experience of diagnostic errors together with perspective on the role of bias as a contributor to avoidable harm in health care. Their appointments strengthen PFPS US leadership as it drives change, including expansion of research and measurement of diagnostic accuracy and timeliness, effective use of patient reported outcomes and experience measures, and a nationwide effort to harness the power of AI to prevent patient harm.

Two nationally recognized patient safety advocates join PFPS US as the organization expands its work in diagnostic excellence and patient and family engagement

09/22/2026

The Guardians of the Patient Safety Structural Measure are a workgroup of patients and patient safety advocates developed and led by PFPS US Patient Safety Champions.

The purpose of the Guardians is to inspire every hospital to authentically adopt the patient safety best practices identified in the PSSM and encourage trustworthy PSSM reporting.

Learn more and sign up to share your story here:

Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.

09/21/2026

"As in the OpenAI experiment, those agents could draw on enormous bodies of information, divide responsibilities, share findings and solve problems collectively. In medicine, that could mean combining the breadth of medical knowledge available through large language models with a patient’s complete medical history, test results, medications and data from wearable devices. In conjunction with the person’s doctors, the agents could continuously analyze the data and identify clinical patterns that might be missed or find relevant peer-reviewed medical articles that might be overlooked. That kind of capability has the potential to transform medical care."

One of the biggest obstacles to understanding the power of generative AI, and its potential to save lives, is the human mind itself. Whereas people have no trouble imagining linear growth — improvement progresses at a constant, arithmetical rate of 1, 2, 3, 4, etc.

09/18/2026

It's been a busy few weeks! With World Patient Safety Day and launching PIVOT DX, we've been meeting with our board, PFPS US champions, and key stakeholder groups to advance patient-reported measures of diagnostic safety and experience. Read more about it here: https://www.einpresswire.com/article/943092155/patients-for-patient-safety-us-launches-pivot-dx-to-advance-patient-reported-measures-for-diagnostic-safety

09/17/2026

WASHINGTON, DC, UNITED STATES, September 17, 2026 /EINPresswire.com/ -- Patients for Patient Safety US (PFPS US) today announced PIVOT DX — Patients Involved in Developing Outcomes Together for Diagnostic Excellence, a national initiative that unites patients, patient organizations and key stakeholder groups to advance patient-reported measures of diagnostic safety and experience.

PIVOT DX builds on Project PIVOT, a national patient-led initiative that asked patients and families what matters most in safe, timely, and equitable healthcare. PIVOT generated more than 40 potential patient-reported experience and outcome survey questions addressing diagnostic safety, communication, dismissal of patient concerns, care biases, and the physical, emotional, and financial consequences of missed, incorrect, and delayed diagnoses.

Patients for Patient Safety US (PFPS US) today announced PIVOT DX — Patients Involved in Developing Outcomes Together for Diagnostic Excellence, a national