Gorlin Syndrome Alliance

Gorlin Syndrome Alliance Empowering those with Gorlin Syndrome to live rich, full, happy lives.

Our mission is to promote universal access to the most effective and appropriate information and resources for individuals with Basal Cell Carcinoma Nevus Syndrome and to promote research into new treatments and a cure.

Every great band needs a reunion tour. 🎸Old friends. New friends. Families who have watched each other’s kids grow up. A...
09/02/2026

Every great band needs a reunion tour. 🎸

Old friends. New friends. Families who have watched each other’s kids grow up. And people who are about to meet someone else with Gorlin syndrome for the very first time.

Whether you've been part of the GSA community for years or you're just finding us, there's a place for you here.

Let's get the band back together. 💜

Register Now: gorlinsyndrome.org/2027conference

The GSA is proud to partner with the Pediatric Dermatology Research Alliance - PeDRA on the 2026 Gorlin Syndrome Challen...
08/25/2026

The GSA is proud to partner with the Pediatric Dermatology Research Alliance - PeDRA on the 2026 Gorlin Syndrome Challenge Grant.

This new funding opportunity will support research focused on improving the diagnosis, treatment, prevention, and quality of life of children with Gorlin syndrome. Researchers are encouraged to submit innovative projects addressing critical gaps in pediatric basal cell carcinoma care.

One grant of up to $25,000 will be awarded. Applications are due December 3, 2026.

Learn more and apply:

08/25/2026

🎊 Exciting news! Together with its partners, PeDRA is pleased to announce the launch of two grant programs.

PeDRA has partnered with the Gorlin Syndrome Alliance (GSA) to launch the 2026 GSA-PeDRA Gorlin Syndrome Challenge Grant, supporting research focused on improving the diagnosis, treatment, prevention, and quality of life of children with Gorlin syndrome. Investigators are encouraged to submit innovative basic, translational, clinical, epidemiologic, or patient-centered research addressing critical gaps in pediatric basal cell carcinoma care.

Additionally, in collaboration with the Society for Pediatric Dermatology (SPD), PeDRA is thrilled to launch the 2026 Consensus Grant Program, supporting the development of evidence-based guidelines, best practice recommendations, and consensus treatment plans for pediatric skin diseases. The program aims to address gaps in care and reduce variability in treatment practices by supporting rigorous, collaborative consensus efforts.

Don't miss this opportunity to secure funding for your work—the application deadline for both grant programs is Thursday, December 3 📅

👉 Learn more and apply today: https://pedraresearch.org/resources/new-grant-opportunities-gorlin-syndrome-challenge-grant-and-consensus-grant-program/

Our next Community Group meeting is just around the corner! Join in on the conversation next Thursday, August 20th at 8P...
08/13/2026

Our next Community Group meeting is just around the corner! Join in on the conversation next Thursday, August 20th at 8PM EST on zoom.

Formerly the group for those over 50, this group is now open to all adults with Gorlin syndrome, 18+.

If you have already attended this group this year, there is no need to sign up. You will automatically receive the zoom information.

New to this community group? Register now!

https://gorlinsyndrome.org/community-groups

A big congratulations to Christine E., whose name was drawn in our InnerGlow Vitamins Giveaway! 🎉A huge thank you to eve...
08/07/2026

A big congratulations to Christine E., whose name was drawn in our InnerGlow Vitamins Giveaway! 🎉

A huge thank you to everyone who entered and helped make this giveaway so much fun. We appreciate your support and loved seeing your enthusiasm!

Big ideas start with opportunity and today, we're excited to share one that brings us another step closer to better trea...
08/06/2026

Big ideas start with opportunity and today, we're excited to share one that brings us another step closer to better treatments and, ultimately, a cure for Gorlin syndrome.

The 2026 GSA Cure Accelerator Grant is now open! Through this program, the Gorlin Syndrome Alliance is investing up to $100,000 in research that reflects the priorities our community helped identify in the GSA Research Roadmap.

While this funding is for researchers and clinicians, every grant awarded is driven by one goal: improving the lives of people and families living with Gorlin syndrome.

Know a researcher or clinician who may be interested? Please share this opportunity with them!

Learn more: https://gorlinsyndrome.org/cure-accelerator

🎉 Registration is NOW OPEN!The 2027 GSA National Conference is your chance to reconnect with old friends, meet new ones,...
08/04/2026

🎉 Registration is NOW OPEN!

The 2027 GSA National Conference is your chance to reconnect with old friends, meet new ones, and spend a weekend surrounded by people who truly understand.

✨ Join us in Nashville, TN
📅 June 25–27, 2027
🎉 Welcome Reception on Thursday, June 24

Plus, the first 25 registrations will receive an exclusive GSA 2027 Conference water bottle sticker!

Register today: gorlinsyndrome.org/2027conference

A reminder for our parent community! 💜Our Parent Community Group meets tomorrow at 8:00 PM ET. This peer-led discussion ...
08/03/2026

A reminder for our parent community! 💜

Our Parent Community Group meets tomorrow at 8:00 PM ET. This peer-led discussion is a chance to connect, ask questions, and share experiences with others who truly understand.

Register now to receive your Zoom link before the meeting. We hope to see you there! 💜

https://gorlinsyndrome.org/community-groups

Participants in the GSA Natural History Study reported 560+ imaging studies, including panoramic X-rays, dental X-rays, ...
07/29/2026

Participants in the GSA Natural History Study reported 560+ imaging studies, including panoramic X-rays, dental X-rays, CT/CAT scans of the jaw, and MRI scans. Every participant's experience helps build a better understanding of Gorlin syndrome and contributes to future research.

Nashville, here we come! 🤠👀 Conference registration goes live this week, so keep an eye on your inbox for the announceme...
07/27/2026

Nashville, here we come! 🤠

👀 Conference registration goes live this week, so keep an eye on your inbox for the announcement!

The hotel room block for the 2027 GSA National Conference is now open! Reserve your room and stay with us for an unforgettable weekend of connection, education, and community.

Learn more and book your stay:
gorlinsyndrome.org/2027conference

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Austin, TX

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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+12676896443

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