Foundation for Angelman Syndrome Therapeutics

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Foundation for Angelman Syndrome Therapeutics

FAST is the leading patient advocacy organization working to cure Angelman syndrome. We are based in the USA with 9 global chapters around the world.
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Page Rules:
Thank you for your interest in the Foundation for Angelman Syndrome Therapeutics (FAST). FAST was founded with a single, critical mission: to cure Angelman syndrome. The organization, founded in 2008, is the largest non-governmental funder of Angelman syndrome research, and today has a global presence. We designed this page as a platform to share research, resources, and information to

our Angelman syndrome community and those interested in supporting our mission to cure AS. We have outlined community guidelines to ensure that conversations remain respectful and are aligned to Facebook’s official terms of use and community standards. FAST reserves the right to modify the guidelines, if needed. Your acceptance of these terms is made by the use of this page. To ensure that this page remains a positive resource, we have developed the following page rules. These rules are guidelines for comments on our page, and we reserve the right to delete any comments or threads that violate these rules:

1. Be kind and courteous. We're all in this together to create a positive, informative, and respectful environment. Healthy debates are natural, but kindness is required.

2. No disrespectful comments. Bullying of any kind isn't allowed and degrading comments will not be tolerated. Do not post profane, defamatory, offensive or violent language.

3. Do not share personal and private information. This is a public page and information that is shared will be publicly accessible.

4. No advertising. Don’t use this page for advertising your or someone else’s business, page or website.

5. Do not disclose confidential, nonpublic or proprietary business information that may compromise the confidentiality and security of FAST or any other person or company.

6. Do not post attacks or negative comments regarding groups. Any comments meant to harass, disparage, threaten or abuse an individual will be removed. FAST will do its best to respond to any questions or concerns in a timely fashion; however, at times, FAST may choose to respond privately or not to respond at all.

06/16/2026

Hope in Action advocacy efforts helped move key Angelman syndrome priorities forward this spring, including progress on Capitol Hill, continued Medicaid education for families, and the opening of the FY26 DOD Angelman syndrome grant opportunity.

Plus, mark your calendar: Hope in Action Advocacy Day returns to Washington, DC on March 10-11, 2027.

Read the full Spring Advocacy Update: https://buff.ly/bphDFSQ

06/15/2026

Don't miss your chance to apply!

Parent & Caregiver Scholarships applications are due June 16.

FAST is proud to offer Parent & Caregiver Scholarships in partnership with the generous support of Maddie’s Mission Foundation.

Apply today: https://cureangelman.org/summit-and-gala-scholarship-program?fbclid=IwY2xjawSc_L5leHRuA2FlbQIxMABicmlkETE3VnZjMXhwcjJTN1R1Nkc4c3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHsso7IIXBodK6b9zMvZdINHlFxYssRkFmPjgUolOszUaQV8ipfL335sSN6FN_aem_lPE-3Fhgo-cfYyKJbNQMZg
⏱️ Track this countdown in real-time: www.countdown-timer.app/share/UIRkzQ0958mgapGANQcU

06/12/2026

The Skating Angels, led by the Kowalski Family, parents of Bruce, who lives with AS, hosted their 5th hockey tournament to raise awareness and over $17,500 dollars for FAST!

This year, Bruce’s 6-year-old brother, Grady, did something very special to help: he painted canvas art for donations, which added $500 to the total raised for the event!

Siblings in the Angelman syndrome community are special in so many ways and when one goes above and beyond like this is truly heartwarming and inspirational!

Thank you to the entire Skating Angels community for showing up for Bruce and all individuals living with AS – on and off the ice!

🩵 Find your way to fundraise: https://buff.ly/BU8SUm5

06/10/2026

If you have been thinking, “I wish we could go,” this is your reminder to apply.

Parent & Caregiver Scholarship applications are open for the 2026 FAST Global Science Summit & Gala weekend, November 5-7 in Orlando.

There is something powerful about being in the room.

The science.
The questions.
The conversations.
The families who get it.
The energy of this community together.

If scholarship support would help make it possible for you to attend, we hope you will apply.

Applications close June 16 • Open to US and Global families

Apply today: https://cureangelman.org/summit-and-gala-scholarship-program

06/06/2026

This is your sign to apply!

Parent & Caregiver Scholarship applications are still open for the 2026 FAST Global Science Summit & Gala weekend, November 5-7 in Orlando.

Come for the science. Stay for the community, connection, and the reminder that you are part of something bigger.

Applications close June 16.

Apply today: https://cureangelman.org/summit-and-gala-scholarship-program

06/05/2026

Amelia Beatty & Victoria Johnson, mother and aunt of Orion who lives with AS, hosted a Sip & Shop Jewelry event in Amelia’s Los Angeles home. This sister-led fundraiser transformed their love of travel and Victoria’s talent for jewelry making into meaningful support for Angelman syndrome research.

Read their story: https://buff.ly/5CBbm5A

06/03/2026

Today is a worldwide celebration dedicated to running! FAST invites our community to get moving and celebrate with runners around the world by joining Team Kick-AS.

1️⃣Secure a race bib through Team Kick-AS or sign up for a local race through our Run the Distance program.
2️⃣Honor those living with Angelman syndrome
3️⃣Fuel our drug development pipeline

Sign Up Today: https://buff.ly/6fmRaGc

06/01/2026

Scholarship applications are now open for the 2026 FAST Global Science Summit & Gala weekend, November 5-7 in Orlando, Florida.

For many families, it’s the weekend where complicated science becomes clearer, questions get answered, and the Angelman syndrome community feels a little less far apart.

It’s the place where you will hear directly from researchers, clinicians, and industry leaders about the progress happening across Angelman syndrome research, clinical trials, and therapeutic development. You will also have the chance to connect with other parents and caregivers who understand what it means to navigate this diagnosis every day.

We know getting to Orlando is not easy. Travel, time away from work, childcare, and cost can make it difficult for families to attend. FAST is proud to offer this financial assistance program, because if you want to be there, we want to help!

These scholarships are generously made possible by FAST in partnership with Maddie's Mission Foundation, a family who knows firsthand what this journey feels like and wants others to feel seen, supported, and surrounded by hope.

Apply today: https://cureangelman.org/summit-and-gala-scholarship-program

05/27/2026

Oak Hill Bio has shared a community letter to the Angelman syndrome community with an important update on the next steps of the development of rugonersen.

They are actively preparing to initiate the Phase 3 study in the middle of 2026. Eligibility criteria are available on clinicaltrials.gov; additional details, including study locations, will be updated as they become available.

➡️ Read the Letter: https://bit.ly/OHB-May-2026
➡️ View the study: https://clinicaltrials.gov/study/NCT07605429

05/23/2026

The second FAST LATAM Conference brought together more than 250 people in person in Mexico City, with nearly 500 more joining virtually from across the region 🇲🇽

Over two days, families, clinicians, researchers, and advocates came together to share the latest updates in Angelman syndrome research and clinical trials while also focusing on practical conversations around care, education, and supporting loved ones living with Angelman syndrome.

A huge congratulations to the FAST Latam board and everyone who helped make this event such a success. The continued growth of the Latin American Angelman syndrome community is helping strengthen connections, increase awareness, and move progress forward across the region.

Read the full blog recap: https://cureangelman.org/articles/fast-latam-conference-mexico-city-angelman-syndrome

Address

Austin, TX

Telephone

+16308503278

Website

http://www.cureangelman.org/

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