Hobbies for Broken Bodies

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Hobbies for Broken Bodies

🦋🩵 I explain chronic illness the way it actually feels—messy, confusing, and way too real.

Tips, symptoms, survival hacks, and a little dark humor from a chronically overwhelmed girl with a lot to say 🩵 🦋

14/08/2026

⚠️TW: Surgery / Graphic medical photos. Please swipe at your own discretion.

Life update.

The last three months have completely changed my life.

Three months ago, I underwent brain and cervical spine surgery. During the operation, a previously undetected AVM burst when my surgeons opened the dura, turning what was supposed to be one surgery into a medical emergency. I ultimately underwent a second brain surgery and had more of my skull removed than originally planned.

As a result, I’ve permanently lost about 90% of the mobility in my neck and will never be able to fully turn my head again. I’ve also lost feeling in parts of my left hand and left foot. My neurosurgeon told me my case is one of the most complicated he’s treated, and he’s writing a medical case study about what happened.

As if that wasn’t enough, just two months later—and completely unrelated to my brain surgery—I developed severe complications from gastroparesis. I now have a GJ feeding tube and spend 20 hours a day connected to a feeding pump.

Recovery has been nothing like I imagined. Physically, mentally, and emotionally, this has been the hardest thing I’ve ever experienced. Every day has looked different, and I’m still learning how to adapt to a body that has changed so much in such a short amount of time.

If I’ve been quiet or haven’t replied to your messages, please know it isn’t personal. Between everything that’s happened and the numbness in my left hand making it difficult to type, I’ve been putting all of my energy into healing.

Thank you to everyone who has checked in on me, been patient with me, prayed for me, or simply thought of me. Your support has meant more than you’ll ever know.

I’m still here, im just fighting for my life in ways I never expected. But taking it one day at a time❤️

02/02/2026

🩵 “It could be worse.” 🩵
Yeah. We know. And we’re tired of hearing it.

People living with chronic illness or constant pain are already painfully aware that it could be worse. We hear this phrase constantly—from family, doctors, coworkers, strangers—like it’s some kind of insight we’ve never considered.

Here’s the part people keep skipping:
it could also be a hell of a lot better.

“It could be worse” isn’t perspective. It’s dismissal.
It shuts people down and teaches them they don’t have the right to talk about their pain unless they’re at rock bottom.

So we stop sharing.
We stop asking for help.
We convince ourselves we’re being dramatic—even when we’re barely functioning.

Pain is not a competition.
Suffering doesn’t need to be ranked to deserve empathy.

If you don’t know what to say, stop minimizing.
Listen. Believe. Acknowledge what’s actually happening.

We understand you’re trying to help and we’re thankful for the gesture.

But “it could be worse” doesn’t help—it just teaches people to suffer quietly. 🩵

31/12/2025

Before my limits changed.

I used to walk three miles at F1 races without thinking twice.
Now I’m thinking about how I’m going to walk up and down the steps in the stands if I ever have the chance to go again (I will crawl if it comes down to it, is my entire life 🤣)
I miss jet skiing without worrying about the aftermath.
I miss standing in the middle of a concert crowd instead of calculating how long I can last.

There wasn’t a single moment where things changed.
Just the slow realization that my body sets rules now.

I’m still figuring out what that means —
and how to grieve the things I love while learning new ways to stay close to them. 🩵

16/11/2025

I won a care package!!! 🩵
And I’m honestly blown away by how thoughtful every single thing is. The fuzzy socks (my chronic-illness love language), the sparkly cup, the teddy bear with her little crossbody bag, the fidget toy, the rose eye mask, the word search book… it all feels like it was made for a spoonie who really needed a little joy today.

Huge thank you to — the absolute sweetest human who sends love and support to amputees and chronic illness warriors. People like her make the world feel a little softer. ✨

Feeling really grateful today. 🩵

13/11/2025

The giveaway is still going, rules are pinned at the top of my profile!!
💖
And now I’m adding BONUS ENTRIES — every time you share this post to your story, you get 1 EXTRA entry. Share it as many times as you want, I’m counting ALL of them 👀✨

I also have an appointment with Dr. Greenfield (Chiari neurosurgeon) next week in NYC, and having a wheelchair would make it so much safer and easier for me — the amount of walking there is brutal. So every share truly helps more than you know. 💗

09/11/2025

Thank you so much to my amazing friend for setting this up for me. For the giveaway entries, make sure to go on insta if you want to enter for the prizes! Never any pressure to donate, only if you want to!

https://gofund.me/95e84af2b

https://www.amazon.com/hz/wishlist/ls/169VHL2DIQ8TE?ref_=wl_share

07/08/2025

100000%!! People think that staying home all the time sounds amazing. It’s not. I am in pain 24/7. I miss out on family events and friends weddings. I wish I could work and have a normal life. I would do anything to trade. I can’t do anything without feeling faint or nauseous. It sounds great, but I would trade in a heartbeat. Does anyone else feel this way?

26/07/2025

Link in 1st comment

25/07/2025

🩵 Hi! I’m Michelle — invisible illness advocate, stand-up comedy nerd, F1 psychofan, and spoonie lifestyle weirdo who just wants to raise awareness for invisible illness. Also known for run on sentences.✌🏻. 🏁

I’m 30, chronically ill, and emotionally supported by coffee, my collapsey cat Lydia, and an unreasonable amount of Formula 1 content.
I started this page to raise awareness, validate others, and make invisible disabilities impossible to ignore.

My body’s a full-time job. I live with:
💀 Chiari Malformation
🌀 POTS / Dysautonomia
🥖 Celiac Disease
😴 Fibromyalgia
😷 Sjögren’s
🍽 Gastroparesis
🫀 Vasovagal Syncope
🧠 ADHD / BPD / OCD / PTSD / Anxiety

I don’t “look sick,” but I deal with symptoms that seriously affect my life. Some days I’m walking around, other days I need a wheelchair, a shower stool, or a nap after brushing my hair. (Chronic illness, not cosplay.)

I use this space to speak up, speak out, and make others feel seen—especially the ones who’ve been dismissed, doubted, or told it’s “just stress.”
I also want to share accessible hobbies and joy-filled distractions, because not enough people talk about that part of living with invisible illness.

If you’re tired of not being believed, or you just want to talk about your favorite comfort activity from bed—I’m your girl.

🩵 Drop a 💬 if you’ve ever felt invisible in a doctor’s office—or if you just want to help make invisible illnesses more visible.

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https://www.instagram.com/hobbiesforbrokenbodies/

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