06/09/2026
It has been such a LONGGG week! Waiting for scan results is the hardest thing ever! Usually I speak with the radiologist the day of scans or the morning after he calls me. I was informed at Ciara’s appointment that he no longer works for Texas Children’s. 🫤 I absolutely hate that because he’s read her imaging for 8 years! Ugh. 😑 I have no clue who this radiologist is that read this scan but it’s very clear that this person is absolutely not as detail oriented as Dr Kan was. Which makes me feel like I need to send this mri elsewhere to make sure everything is ok.
Nobody prepares you for your cancer kid becoming what feels like a non priority. I guess after so long of her not having a recurrence she just gets thrown in line with the rest of the world for imaging to be reviewed. I don’t know… Now that she’s 16 I will most likely be getting in touch with another facility to continue her check ups. Ever since Dr Chappie retired everything has just been different. 😔 I know I sure do miss him giving us the reassurance we needed when scans came back…
Thankfully no NEW nodules were seen! I want to be sure this “more defined” area of contrast uptake is not something we need to be concerned with. I know cancer wise (the biggest worry) there is NO RECURRENCE! Thank God! Mechanical wise I need to an ortho surgeon who’s familiar with tendon and bone grafts to review her imaging.
She will never have a “normal” mri but when someone unfamiliar with her case comes in a reviews her imaging and makes notes about “more defined with post contrast uptake” it makes me worry. I’ll probably be sending her scan to MD Anderson or to Dr Chappie’s old office.
Thank you for all your continued prayers for Ciara and our family. You guys have been a tremendous help in supporting us for the last 8 years.♥️
🎗️🌻
