Grant Us Grace

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Grant Us Grace Walk with Grant and Grace on their Multiple Sulfatase Deficiency (MSD) journey.

Our mission is to bring awareness while raising funds for a treatment or cure, to give children suffering with MSD a chance at life.

With your generous giving, Grant Us Grace presented the 2026 MSD Virtual Summit. For two days we helped bring together r...
09/20/2026

With your generous giving, Grant Us Grace presented the 2026 MSD Virtual Summit. For two days we helped bring together researchers, clinicians, families, advocates, and industry partners from around the world to learn, connect, and be part of the momentum toward a treatment for MSD. We are so proud of everything our community is accomplishing.
United MSD Foundation
Jason Goodin Tonya Goodin

09/06/2026
Grace celebrated her 12th birthday at this castle, and now she will celebrate her 16th in the same magical spot.✨ A few ...
09/04/2026

Grace celebrated her 12th birthday at this castle, and now she will celebrate her 16th in the same magical spot.✨ A few days ago we surprised Grace with the news that she is flying to Disney World on Sunday for her 16th birthday, a mom and daughter trip that is. Grace has traveled to places across the world, and to her Disney World is still the most magical place on Earth.

With having MSD, it was a miracle when Grace turned 10; then it was a miracle when she became a teenager. Now Grace will be 16. A Sweet 16 that is!💖

Disney describes a princess as hero with a heart of gold, with the courage to face challenges, the kindness to care for others, and the strength to believe in herself and her dreams.

I watched this very brave, strong and determined child walk into a hospital to have an experimental bone marrow transplant in attempt to save herself and others living with MSD. Grace made it clear that she did not want MSD to steal her voice like Ariel in the movie, Little Mermaid. Grace has used her voice to be a wonderful advocate for herself and others. Grace has broken every medical boundary with having MSD. Grace is a miracle, and I know that God has an extra special plan for her life.
It is not my birthday, but I feel like I am the one getting the biggest gift… a precious daughter that is still thriving on this earth. I am excited to celebrate Grace with all the magic of Disney. 💖✨


United MSD Foundation

School is back in session! Grace is a sophomore, and Grant is in his LAST year of middle school.🍎
08/26/2026

School is back in session! Grace is a sophomore, and Grant is in his LAST year of middle school.🍎

After being down South for a month, we came home to this beautiful piece of mail—and what an incredible surprise it was....
08/10/2026

After being down South for a month, we came home to this beautiful piece of mail—and what an incredible surprise it was. 💙

Governor Kehoe has officially proclaimed Multiple Sulfatase Deficiency (MSD) World Day in the State of Missouri for 2026! 🌎💙

We are beyond thankful to Governor Kehoe and the great State of Missouri for standing with the MSD community and helping us shine a light on this devastating, ultra-rare disease.

Every proclamation brings us one step closer to making sure MSD is seen, understood, researched, and—one day—defeated.

United MSD Foundation Governor Mike Kehoe

If you were planning to order Pampered Chef or items from Park Lane, please get your orders in by tonight. Thank you all...
07/31/2026

If you were planning to order Pampered Chef or items from Park Lane, please get your orders in by tonight. Thank you all for helping us push for a cure for MSD & for your support on MSD World Day and everyday!
http://Www.pamperedchef.com/party/grantusgrace
If cooking is not your thing, add to your jewelry collection. Park Lane has a great summer collection.
Thanks for helping us Cure MSD.
https://parklanejewelry.com/f/4157

At Park Lane Jewelry we value our customers and our community of Stylists. We will never sell your email to a third party. You may unsubscribe at any time by clicking "Unsubscribe" at the bottom of our emails.

The United MSD Foundation has a $12,000 goal for this MSD World Day. They are 70% of the way there. Let's finish strong....
07/31/2026

The United MSD Foundation has a $12,000 goal for this MSD World Day.

They are 70% of the way there. Let's finish strong.

Every dollar, every hour, every minute counts this .

Every donation helps turn today's momentum into tomorrow's breakthroughs-fueling research, advancing clinical trials, and bringing hope to every family living with MSD.

• Make your gift before midnight:
https://secure.qgiv.com/event/2026msdworldday/

Built on Hope. Bound for Breakthroughs.


That’s a wrap!✨
05/22/2026

That’s a wrap!✨

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402 East Broadway
Bloomington, MN
55425

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