Grant Us Grace

Grant Us Grace Walk with Grant and Grace on their Multiple Sulfatase Deficiency (MSD) journey.

Our mission is to bring awareness while raising funds for a treatment or cure, to give children suffering with MSD a chance at life.

That’s a wrap!✨
05/22/2026

That’s a wrap!✨

We have all been entertained with Grace’s dancing through the years. She now plans to hang up her dancing shoes. Today s...
05/18/2026

We have all been entertained with Grace’s dancing through the years. She now plans to hang up her dancing shoes. Today she had her last hip hop dance recital at CPAC.
Dancing has always been an outlet for Grace. She has danced at CPAC for over ten years. She received an award for the hardest worker in the hip hop category. We are so very proud of her! ✨💖

Grant’s school band had a wonderful concert tonight. We couldn’t see him while he was playing on stage, but they sounded...
04/22/2026

Grant’s school band had a wonderful concert tonight. We couldn’t see him while he was playing on stage, but they sounded great. He really loves playing his saxophone. Grant is one of those people who wants to learn to play all the different instruments. He has played guitar, harmonica, trumpet, saxophone, and anything else that’s in his reach. 😂 We went for his favorite cheese quesadilla afterwards.

Lots of ice cream and soft food is on the agenda for Grace. She had her second phase of braces put on yesterday. Braces ...
04/09/2026

Lots of ice cream and soft food is on the agenda for Grace. She had her second phase of braces put on yesterday. Braces are on top and bottom this time. Our family popcorn obsession needs to be gone for a while.😬
🦷

Happy Easter 2026! ✝️🌸We had a great time celebrating our King’s Resurrection Day with family.
04/06/2026

Happy Easter 2026! ✝️🌸
We had a great time celebrating our King’s Resurrection Day with family.

Rare is many.300 million people worldwide are living with a rare disease.On Rare Disease Day, we are thinking of all the...
02/28/2026

Rare is many.
300 million people worldwide are living with a rare disease.
On Rare Disease Day, we are thinking of all the warriors, the caregivers, and the families who fight battles most people never see. Let’s keep pushing for awareness, funding, and hope.
Today we raise awareness. Today we stand together. 💙
Zebras are the symbol for rare disease, and Zeb is our favorite zebra. 🦓

Happy Valentine’s Day! ❤️🩷❤️🌸
02/14/2026

Happy Valentine’s Day! ❤️🩷❤️🌸

“Cell”ebrating Grant’s 5 year stem cell transplant re-birthday.🌟 Grant received so many stem cells that it literally too...
02/02/2026

“Cell”ebrating Grant’s 5 year stem cell transplant re-birthday.🌟 Grant received so many stem cells that it literally took a whole day for him to receive them. Grant’s donor is unknown, but I think of him often. We are forever grateful for the hope and the new chance at life he provided.❤️
We are excited to let everyone know that Grant is still 100% donor engrafted. This is the best case scenario to see what this experimental transplant does for MSD.
The 5 year re-birthday is also a big deal medically. The risk of severe complications from transplant goes down drastically at this point.
Our God is so great! Please keep the prayers and positive thoughts coming. Grant and Grace have endured more than children should, but they are truly miracles.
Together, we will cure MSD.

01/13/2026

The sunset was breathtaking tonight. It was the perfect time to give thanks for Grant and Grace being miracles in every way.

✨Happy 2026!✨ Cheers to laughter, love, good health, and a year of making many special memories.
01/02/2026

✨Happy 2026!✨ Cheers to laughter, love, good health, and a year of making many special memories.

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402 East Broadway
Bloomington, MN
55425

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