WesliAnn's World

WesliAnn's World We wanted to create this page for everyone to keep up with updates better with WesliAnn and her jour

From jamming to the music and laughing the whole weekend through, WesliAnn had the best time at the Northwest Florida Ch...
10/04/2026

From jamming to the music and laughing the whole weekend through, WesliAnn had the best time at the Northwest Florida Championship Rodeo! She was the ultimate cheerleader for her daddy and Tritech Fiber, making sure the parade candy made it to the crowd with endless smiles and giggles along the way. 🤠🍬 Big weekend for our favorite supervisor!

Edited again: they are having issues with the new MRI and are canceling surgery until they have all the kinks worked out...
09/25/2026

Edited again: they are having issues with the new MRI and are canceling surgery until they have all the kinks worked out. I will keep everyone updated when I know more. :)

Edited: Change of plans- Radiology had a scheduling conflict. We are now having surgery on October 28! ❤️

We finally got the call we have been waiting for. WesliAnn's next surgery date is set.

On October 14, she will be having a procedure called 🧠 Laser Interstitial Thermal for Corpus Callosotomy Single Trajectory. 🧠 Basically, going to finish disconnecting the part of her corpus callosum that is still intact.

This procedure is relatively simple, compared to her previous surgeries. They will go in a small incision (guided by MRI) to disconnect the remaining corpus callosum. We will likely be in the hospital post-op a few days.

It is never easy watching them take my baby back into brain surgery, but we know God is in complete control and guiding all the surgeons, doctors and nurses that come in contact with WesliAnn. She is one loved little girl, not only by us, but by all her doctors at Orlando Health.

We can never thank you enough for your prayers for our girl and us. đź’śđź’ś

This week has been incredibly heavy. We were heartbroken to learn that our amazing neurologist, Dr. Bello, passed away u...
07/19/2026

This week has been incredibly heavy. We were heartbroken to learn that our amazing neurologist, Dr. Bello, passed away unexpectedly on Saturday. He was so much more than a doctor; he was one of WesliAnn’s biggest cheer-leaders and her fiercest advocate at Arnold Palmer Hospital. His shoes will be impossible to fill, and we are holding his family and his colleagues who worked so closely with him in our prayers.

Despite this loss, we are finding peace and moving forward with the plan for WesliAnn’s care. We recently had a productive telemed appointment with our neurosurgeon, Dr. Jafrani. Because he and Dr. Bello had spoken at length about the next steps for WesliAnn, Dr. Jafrani is confident and comfortable moving ahead with the scheduled SEEG in August.

We will head to the hospital early in August for an MRI and the implantation of bone fiducials, followed by the SEEG later in the month. While this is a familiar process for WesliAnn, Dr. Jafrani believes that because they are focusing on a more targeted area—the amygdala—she will only need 6-8 probes this time, rather than the 18 she had previously. The hospital stay is typically about a week, depending on how quickly they can capture the data they need.

We covet your prayers—not just for WesliAnn, but for the entire medical team as they navigate this next chapter. Thank you for walking this road with us.

💜 Update on our WA: 💜NucMed was only in the room for about 40 minutes when WesliAnn had a 2-minute seizure—exactly what ...
05/10/2026

đź’ś Update on our WA: đź’ś

NucMed was only in the room for about 40 minutes when WesliAnn had a 2-minute seizure—exactly what was needed to inject her for the test. They got her down, and the scan was successful!
Because everything aligned so perfectly, we decided to stay in Orlando to knock out Part 2 this Friday. Getting this done now is a huge relief.

While the scans are done, WesliAnn’s body hasn't caught a break. All week and through the weekend, she has been having large seizures, requiring her (1st stage) emergency meds almost every day. It is exhausting for her, and for us.

The "Neuro Board" now has her MEG, Interictal, and Ictal SPECT scans. Her name is BOLD & UNDERLINED on their list to discuss. The doctors and surgeons will be determining our next steps and possible surgical options.

🙏🏻​ Please pray with us for: 🙏🏻
💜 ​Rest: For the seizures to "chill" so WesliAnn—and Mama and Daddy— can rest.
💜 ​Guidance: For total clarity and wisdom for the surgeon and doctors as they review her case this Thursday.
💜 ​Peace: For us as we prepare to hear the board's recommendations.

💪🏻💜​She is a true rockstar! Thank you for walking this journey with us. 💜💪

We have officially been admitted for WesliAnn’s scheduled SPECT scan here in Orlando. Our girl is all hooked up to the E...
05/04/2026

We have officially been admitted for WesliAnn’s scheduled SPECT scan here in Orlando. Our girl is all hooked up to the EEG and settled in. 💜

​As crazy as it sounds, we are asking for a specific prayer: Please pray that she has a significant seizure tomorrow. For this test to be successful and give us answers, the medical team needs to capture an event in real-time. It’s a strange thing to wish for, but it’s the key to moving forward in our journey.

​WesliAnn is so strong, but we truly feel the power of this community behind us. Thank you for walking this path with us and for your continued prayers.

Address

Bonifay, FL

Website

Alerts

Be the first to know and let us send you an email when WesliAnn's World posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share