Chiesi Global Rare Diseases

Chiesi Global Rare Diseases We are making a rare difference.

06/08/2026

Every 8 May, , the world turns red for a reason.

Through the global initiative from the Thalassaemia International Federation - TIF, landmarks and communities are shining a light on those who too often remain unseen.

At Chiesi, this commitment takes shape both locally and globally. From our headquarters to the Parma Town Hall, these lights represent a shared responsibility to amplify the voices of the rare disease community.

Share this post to help shine a light on the thalassemia community.

05/08/2026

What does feel like in real life?

This , and every day, we’re listening to and learning from the stories of those living with thalassemia and the families who support them, every step of the way.

Let’s bring more understanding to what these journeys truly look like. Share this post to help spread awareness.

Thalassaemia International Federation - TIF

05/07/2026

Sometimes the most impactful part of the rare disease journey is finding someone who simply understands it. Someone to share advice and experiences with. Or even just to talk – beyond the condition.

For those living with cystinosis, these connections can help them feel supported, even from a distance. This , let’s help more people feel less lonely. Share this post to help raise awareness.

05/04/2026

Managing LDL-C is crucial for reducing the risk of cardiovascular diseases, especially for people living with . Learn more at r.chiesi.com/GRD4 and help spread awareness for .

04/24/2026

Living with disease looks different for everyone. The emotions, the challenges, the moments of resilience – all unique, deeply personal, and shaped by lived experience.

Some stories are quiet. Others are openly shared. Some unfold across generations, touching families in different ways – yet they all deserve to be heard.

For , we join Fabry International Network (FIN) and their global campaign “Living with Fabry, Your Unique Strength” – honoring voices from around the world that show how strength can take countless forms.

04/21/2026

Some challenges are visible. Others quietly reshape everyday life. For people living with disease, symptoms don’t just interrupt the day — they often influence its rhythm.

That’s why having time for oneself becomes so precious. Whether it’s spending time with family, enjoying a hobby, or simply finding a few minutes of stillness, these moments can offer a sense of grounding — the strength needed to face what the disease brings.

During , their stories remind us how powerful these small, personal moments can be, and how much they can help people feel like themselves again.

To learn more, visit r.chiesi.com/GRD255FB.

04/04/2026

disease doesn’t always present the same, especially in women. As a result, it can go unrecognized—sometimes for years.

Lori, Mandie, and Sandra’s stories show how important it is to listen when something doesn’t feel right—and the difference it can make when those experiences are truly heard. In recognition of , they are sharing their stories to help others better understand what living with Fabry disease can look like.

To learn more, visit r.chiesi.com/GRD254FB.

03/31/2026

is rare and often mistaken for more common metabolic conditions. Recognition of symptoms can be the first step toward clarity and a correct diagnosis. ​
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In occasion of , learn more about what may be hiding in plain sight by visiting: r.chiesi.com/GRD256FB.

03/30/2026

Ahsan's story is one of family and community. When his father, Hassan, first learned about his son’s diagnosis, the questions came quickly. What would life look like? Who would understand? Where could answers even come from? Through social media, Hassan found other parents like Cynthia—people who had been there, who understood the weight of loving and caring for a child with a rare condition. That connection changed everything. Watch their story and learn more about living with HoFH: r.chiesi.com/GRD247FB

03/26/2026

Thalassemia may be part of the story, but it doesn’t get to dictate who the person is.​

Frequent transfusions can disrupt daily life routines and social connections, influencing both emotional well‑being and everyday life. That’s what makes connection, understanding, and community all the more essential. ​
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Share this post and click the link to learn more about living with this rare disease: r.chiesi.com/GRD245FB

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