01/17/2026
Most of my family and friends know I have chronic pain. But it's so much more than that. Often, I'm asked how I'm doing. It's getting harder and harder to smile and say I'm fine. But it's also hard to explain what's really going on. So, this group is to share what I am going thru day to day with people who are truly interested.
Plus, a place for me to track the changes that are happening, good and bad. Maybe someday it will help others, especially my family who may develop this ugly disease. My mom suffered for years with this, only nobody knew how bad it was for her. Many didn’t believe it was that bad, I was one of them. I regret not believing! I now know how she must have felt, and it’s horrible.
When people see me, the first thing they see is an obese old woman who has let herself go. They are usually nice, but the look on their faces tells the story. Then they find out I suffer from chronic pain, and along comes the fake sympathy, the “oh I have pain too, you just have to keep moving” or try this cure, diet, exercise, yoga, take this mineral or vitamin, you just have to stand on your head and recite the alphabet!!!
I’m not doing this for pity, more for understanding when I must cancel plans at the last minute, when I don’t want company, don’t feel like talking on the phone, when I have appointments every day, when I cry often and that I do have to use pain medication. I don’t mind helpful suggestions, and I’m always open to ideas, but don’t expect me to jump on the band wagon.
Anyway, maybe nobody will be interested and that’s fine. It will be documented just in case….
If you’re not interested, you can find the other me, the one who posts funny stuff and posting my grand kids on my original page!
