04/12/2026
We are deeply saddened to have to create this, but the welfare of our baby demands it, and we must take action to ensure her well-being. If a donation is not feasible, we kindly request your prayers for her health, safety, and our family's well-being. Please share and thank you for your continued support, love, and prayers. ✝️🙏🩷
~ I CAN PROVIDE PROOF OF TRAVEL FEES (FOOD,GAS,MEDICAL BILLS,HOTELS,RENTAL CAR,ETC) I ALSO HAVE SHARED HER LIFE BEFORE SHE WAS BORN AND ALL THE THINGS SHES BEEN THROUGH🤍
Hey yall welcome to our page! I’m so glad you made it here and this is a safe place. Good afternoon everyone, I’m Lylahs Mama Leigh-Ann and I’ll be the one posting updates and sharing Lylahs story.
I found out I was pregnant right before I was having an emergency surgery that I had to have that was life-saving. I was told I was three weeks pregnant and that more than likely I would have a miscarriage, I was devastated, but knowing I had a son back at home I had to have the surgery and I knew the good Lord had my baby safe. Technically I was pregnant when I had the original surgery that caused me to have to go back and have an emergency surgery. I was already pregnant. My HCG wasn’t strong enough to pick up at the time. With that being said, I was admitted to the hospital for nine days and always placed on a pick line and hook hooked up to TPN which is a type of internal feeding . I was told if I didn’t have this placed I would’ve died in two weeks due to the amount of weight I lost and I wasn’t able to eat or drink. I finally got released from the hospital and I made an appointment with an OB however when I went, they told me I needed to see a high risk doctor due to the circumstances. I then went and saw a higher doctor. They denied me care and said I need a higher level of care so they referred me to Emory where I went for my first prenatal visit and I was told that I should probably just abort my baby because she didn’t have a chance of living and I said hell no. When I left my appointment, I was told to go straight to the hospital to be admitted. I was diagnosed with severe hyper emesis, and I was placed on a trial of a bunch of different medication’s and a steroid that they didn’t mention until three days later that could cause our kid to have a cleft lip. Thankfully, after 10 days in the hospital, they found a regiment to help me eat some on my own, and not be totally dependent on a feeding tube . However, I was in and out of the hospital, always needing fluids ,extra medication support for vomiting , blood transfusions etc and that came along with stays in the hospital . (i got followed by the high risk doctor due to being on a feeding tube,weightloss,placenta previa, baby growth restriction and multiple hemorrhage’s)
went to the hospital for decreased fetal movement where I learned I was in preterm labor. Lylah born the next day on July 30 of 2025 she was doing so good. She would latch in the hospital and suck on a bottle so we got discharged 48 hours later to go home because she was perfect and healthy. We get home for one day and I noticed she stopped sucking her bottle nor taking her bottle at all so I’m having to syringe feed her then later that night around 1:30 AM she started having these weird jerking movements and my mama heart knew-something was wrong . (Ive never seen someone have a seizure ) We loaded up in the car and rushed to CHOA. Upon arriving there, they took her right back, admitted her hooked her up to Eegs and done mris. In the meantime, while waiting on those results to come back, she hadn’t taken a bottle in over 24 hours so they placed a NG TUBE. Two days later during our day, the feeding therapist tried coming in and working with her, trying to take a bottle and her heart rate would shoot high and she would choke, and they believe silent aspiration. We stayed in the hospital for almost 10 days. They placed her on Keppra twice a day as a trial while in the hospital and when we were discharged, we came home on it and an NG tube.
we got home for a week and we noticed she was having seizures really bad back to back again more than what they said she should have if she had any so we immediately rushed her back to CHOA. They then placed her on an EEG and they saw more seizure activity so they added another medication called phenobarbital and we stayed for six days and was discharged to go home. Weve had more admissions to the hospital more than i liked. However, today, Lylah still faces, Myclonic seizures, breakthrough seizures, Epileptic - encephalopathy, Hypotonia, Dysphagia and noisy breathing. She had a G-Tube placed in November last year and is currently doing well with it. She also had a scope done were they found a lesion but still didnt give us answers. We are awaiting more genetic testing and follow up EEGs. We are on waitlist to start feeding therapy. We started physical therapy a couple of weeks ago and we’re waiting to get into speech and feeding therapy. She has an upcoming swallow test and some other test that we’re hoping to go this more answers. Thank you all for being here and as always 💪
This go fund me is for my daughter Lylah , who is 7 months old soon to be 8 months old. She has Epilepsy, silent aspiration, most likely cerebral palsy, genetic condition, complex immune system, dysphasia, hypotonia, Gastrojejunal tube in place, g tube, FTT(failure to thrive), as well as developmental delays.
She is also Allergic to cow milk and all dairy,
She also can’t break down proteins.
We’re gonna have to travel out of state often at-least 4-6 times a month and stay at least 3/4 days for appointments but we have to have a place to stay and they don’t accept her Medicaid so we have to pay for everything out of pocket .
Any and all help would be greatly appreciated. Baby Lylah’s medical travel and specialized formula needs pay for out‑of‑state care
This go fund me is for my daughter Lylah , who is 7 months old soon to be 8 months old… Leighann Rowland needs your support for Travel and Care for Baby Lylah
