It all began July 1, 2011. Past few months I hadn't felt right, I was just sick and cranky, going from the bed, to restroom to the couch. Sleeping, breaking into cold sweats. We all thought for past few months I was just sick. So We medicated me with NiQuil, Thinking it will pass. Well July first, everything HIT the fan. I was in extreme pain, vomiting, and not really a appetite. My mother, worrie
d, tried making me go to the hospital, but my stubbornness, NO. I hated needles, frightening. Just ahh.. Eventually We went to the hospital. I had to do so many Xrays, a CT scan, and so many blood test. They had to have My mother and nurse hold me down to start IV. I had to drink disgusting contrast just gross as heck stuff. Well there they put me in a room for a week, I had pancreatitis. Painful, so painful. I couldn't eat. That week I was there I went through test and test I was so sick, in three weeks I lost forty pounds. Yeah, that bad. My doctor at the time kept saying nothing was wrong. One day he told me to go outside and i did, and he proceeded to tell my mother she was making me sick. That it was a act.. But we then quit going to him and began to go to Dr. Branner, a gastro doctor. and he was a angel. He actually cared. I went to him for a while, doing a lot of test, going under anesthesia for many procedures. So he would find what is wrong, I went to him for many months, school was coming up and I was put on homebound for medical. I honestly didn't get much of an experience in eighth grade, nor education. No teacher cared no understood. But Dr. Branner found I had Chrons disease and IBS, just beginning. But we treated me for it, and I was getting no better, kept losing weight and the pain so terrible. He referred me to this Indian woman doctor. Dr. G in Charlotte, I met her few times in the clinic and then we did a liver biopsy, a camera down My throat, and so many blood test still. I was on prednisone at this time from a doctor who told my mom she was making me sick and My veins were so little it was bad. I stayed in the hospital for a week, Feb 14,2012 to Feb 21,2012. On Feb 16, Dr. G came in with the news. I had primary sclerosing cholangitis. Rare liver disease. Honestly when she said that everything was a blur. She took me off of some medication and went home and was okay for a bit. then i was suppose to go back to school, and i didn't sleep this one night, because of itching. SEVERE itching and my eyes were yellow. We went to my new pediatrician and he said i had scabies. Which was a lie. Finally Dr. G got on the phone and made him put me on vistiral for itching. I then had a ERCP few weeks after with this Dr. Deal said My bile ducts were almost completely shut. He dilated them. I was okay for one months, no itching no pain no nothing. Then everything once again turned bad. We went back in for a second one, and after he refused to do any other because my bileducts were so bad. Worst he had ever seen. So for many months I had suffered. Trying to go to high school now, unable to because so much. I lost many so called friends. Being called contagious, lies going around , and people saying shes going to die any time now.. people poking fun at My illness.. still happens . I get fussed from teachers because my slipping grades, and they don't understand and so many adults saying I'm contagious. Yes I have marks on my body because I have scratched so badly. I don't wear shorts, skirts, and only reason I wear flipflops is so my feet don't itch as bad. Yes they look very bad. but i am beautiful. I am proud of who i am. And I may have these but they show My fight. i don't want to give up. So many people make fun of me, saying i can die anytime now and ive changed and many don't like it, I've grown up. I have to be careful so I don't suffer as much. I can't eat certain things. People talk about how disgusting I am. How low of a person I am not caring about my looks. No one could live my life. My mother is there, seeing what i go through and she has even said I don't know how you do it. I have done medicine after medicine, experimental after experimental, went through procedures one after the other, living in hospitals pretty much for the past four years, and as a last resort had to get a heart cath to do a form of dialysis is a desperate attempt to not have to go to liver transplant so soon.. My bileducts are closing so fast and so much they cannot do any more for me except a transplant.. If you cannot accept me because I have marks on my body because My disease. You don't like me as a person because How they look. "Disgusting" "gross" "horrible", that's your loss. I may not love how they looks, feel, etc. But they are apart of me. And soon I hope to get this transplant and to be better..
