Petals of Hope: Laramie Rose

Petals of Hope: Laramie Rose Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Petals of Hope: Laramie Rose, Medical and health, Cincinnati, OH.

Raising awareness for Congenital Heart Disease
while walking through this crazy thing called life, with our RoseyGirlđŸŒ·

Congenitally Corrected Transposition Great Arteries, Double Outlet Right Ventricle, Ventricle Septal Disorder, Pulmonary AtresiađŸ«€đŸŽ—ïž

06/19/2026

If you live this life like we do; surrounded by diagnosis, death, and appointment dates.
You know, you can never fully get rid of this lump in your throat.

The mountain of baggage knowing you may outlive your child. But not the 80 & 50 year old kind of way like it should be.. but the 20 & 1 year old way.

Your notes app full of funeral details you’ve had to plan multiple times. Life insurance policies that drain your account but you can’t afford to cancel.

“She’s going to be fine”
“Think positive”
“She’s came all this way”

But they weren’t there.
Not for 2 hours post open heart, a tear streaming down her swollen cheek when you said
“It’s okay if you want to go be with Jesus”

They weren’t there.
Not feeling and hearing her bones crack beneath your hands, nurses flying down hallways & the ungodly sound coming from your soul because all you ever wanted was your child to live.

They weren’t there.
Not when you sobbed uncontrollably at the church alter, demanding God to spare your baby. Not begging or asking, but demanding.

CHD has no mercy.
Not for you. Or your child.
That’s the worse part.

Although I never let Laramie’s “disabilities” overcome to fact that she is a baby, a human; with a spunky attitude, cont...
06/15/2026

Although I never let Laramie’s “disabilities” overcome to fact that she is a baby, a human; with a spunky attitude, contagious laughter, and an outgoing personality.

Not just a diagnosis.
A patient.
A 100k page medical record.

But inevitably, she will grow to understand she is different.
Her long, deep scar from her throat to her belly.
Her invasive GJ port, eating by tubes.
Her dark bruises from many many PICC lines.

Being different has never stopped her. Ever.
Not when odds were 30-70.
Not when comfort care was suggested.
Not when doctors said she didn’t make it.

So in honor of her. As everything I do is.
We have matching GJ tubes.

January 21st, 2026.
Her first GJ placement, of MANY because this girl just can’t leave stuff alone. Lol

No matter how different you see yourself, Laramie Rose. You’ll always be the girl I look up to the most.
You’re everything I want to be when I grow up & so so much more.
I love you more than my soul can handle. đŸ€

06/10/2026

June is PTSD Awareness Month.
Petals of Hope is here to say; we see you.

Majority of mothers to medically complex children will suffer from PTSD, suicidal thoughts, sleep paralysis, anxiety, depression, flashbacks- and may even develop other severe health conditions like eating disorders, addiction, hypertension, etc.

Not only do we share our heart with medical mothers, but domestic violence survivors too.

I, first hand, know what it is like to be in and escape a domestic violence relationship.
As well as the PTSD that comes with it.

If you are a mother in either of these circumstances, we want to help. Text or call the number linked to Petals of Hope, you will never face these challenges alone. đŸ€

06/09/2026

Laramie Rose, you will never be a sad story.
Your story just has a lot of sad in it, but you light this world up twice as bright. đŸ€

My child’s condition is not a conversation starter. It’s not a Sunday morning discussion with insincere “praying for y’a...
06/03/2026

My child’s condition is not a conversation starter.
It’s not a Sunday morning discussion with insincere “praying for y’all.”
It’s not an out for dinner ask all.
We’re not a show & tell for all your friends.

My child’s condition is my entire life.
Her entire life.
It’s everything we’ve ever known.

Death, triumph, overcomings, cries for help
 it’s everything to us.
Not just something talked about over coffee while glaring at us with pity in your eyes.

We’re not your gossip session.
This is our life that we live every day.. never knowing if or when my daughter will die.

06/01/2026

Let me be very clear.
My photo’s are watermarked for a reason- anyone claiming to have taken a photo of MY daughter while actively being blocked or abandoning her is very odd behavior that is not tolerated.

I do not need Laramie’s face to raise awareness or do fundraisers. It’s a privilege to see her grow.
A privilege that is at my own discretion, respect it.

This pretty girl is super excited about her new Bluey toy!And look at those chunky cheeks😍
05/24/2026

This pretty girl is super excited about her new Bluey toy!
And look at those chunky cheeks😍

Rounds called this morning.Said her pacemaker/heart is short circuiting, basically she’s having short irregular rhythm m...
05/23/2026

Rounds called this morning.
Said her pacemaker/heart is short circuiting, basically she’s having short irregular rhythm most likely caused by her heart being so inflamed & irritated with the infection & antibiotics.

Right now it’s not too big of an issue, if it continues or lasts longer she’s at high risk of heart attack & stroke.

She has been fever free for 12 hours though, so that’s a plus.
They did warn us that if the fevers begin to be uncontrollable or she stops responding to the antibiotics then emergency open heart surgery would happen.

The Plan:
6 week antibiotic course
PET scan after antibiotics
No infection = come home
Infection = open heart/replace conduit

Our girl could use all the prayers possible. Definitely not the news we wanted to hear.

And a picture from her at her Goppy’s house because she’s just too prettyđŸ©·

05/20/2026

Laramie has had a very unexpected surgery.

Her GJ tube balloon had burst inside of her stomach and her GJ tube came completely out.
She has already recovered from the replacement surgery and is doing well.

We’re looking at a PET, CT, and more labs this week to see what is going on !

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Cincinnati, OH

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