08/19/2026
TODAY’S LUPUS/LIFE UPDATE 💜🦋
Whew… when I say my body has been going THROUGH IT lately, I mean that! Yesterday I told y’all just how EXTREME this fatigue has been. I’ve been sleeping off and on, barely able to keep my eyes open, feeling weak and completely drained…and today things got a little scarier.
I woke up this morning and got up to go lock my front door. I was walking and had absolutely NO WARNING…no dizziness, no feeling funny, NOTHING. The next thing I knew everything went black, I heard myself falling, and then I opened my eyes and I was laying on the floor. I had passed out for a few seconds and fell hard enough for me to fall on top of my vase and put a huge dent in it and push it to hit the wall while also knocking over my sons dirt bike and my ring light. 😩
That definitely scared me because being exhausted, weak and in pain is something I deal with regularly…but actually BLACKING OUT with no warning is different. I do have a doctor’s appointment coming up, and I’ll definitely be discussing everything that has been happening so we can figure out what’s going on.
But I also want to explain WHY I share so much of my health journey…
I’m not posting any of this for sympathy. 💜
I choose to be TRANSPARENT about my journey with lupus, fibromyalgia and my other chronic illnesses because I want y’all to see THE GOOD, THE BAD AND THE UGLY. Every day is NOT sunshine and rainbows. Some days I’m creating content, being a mom, laughing, getting dressed and living life like normal…and other days simply getting out of bed feels like I’ve already used every ounce of energy I have.
Social media shows so many highlight reels, but THIS is real life too.
I know there are people living with chronic illnesses who are fighting these same battles SILENTLY. People who feel guilty because they can’t get anything done. People who sleep for hours and still wake up exhausted. People who look perfectly fine on the outside while their body is fighting them on the inside.
I want YOU to know you are NOT ALONE. 🦋💜
So I’m thinking about turning these into little DAILY LIFE/HEALTH UPDATES and bringing y’all further into my world—how I’m feeling each day, what symptoms I’m dealing with, the good days AND bad days, what I’m doing to cope and manage each day, doctor updates when I have them, and just the REALITY of navigating everyday life while living with chronic illnesses.
Some days that update might be “I FEEL GREAT TODAY!” 🙌🏽
And some days it might simply be “Y’all…I made it through today.” 💜
Both deserve to be shown.
Would y’all like for me to start sharing DAILY health/life updates and take y’all along with me through the REAL ups and downs of this journey?
Because if being transparent about what I’m going through helps even ONE person sitting somewhere thinking they’re the only one struggling like this…then sharing my story is worth it. 💜🦋
This is my life. This is my journey. And this is what living with chronic illness REALLY looks like.
